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ME/CFS: A disease at war with itself
We can all agree that ME/CFS is a nasty disease, particularly in its severe form, but there are abundant nasty diseases in the world. What is unique and particularly confounding about our disease is that so much controversy surrounds it, and not only surrounds it, but invades it too.
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3 Things that Help the Most!!

Discussion in 'General Treatment' started by livingwithcfids, Nov 11, 2011.

  1. Fifi

    Fifi

    Messages:
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    5
    Rest
    Pacing
    Meditation
  2. Nielk

    Nielk

    Messages:
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    5,192
    Queens, NY
    Ambien CR 12.5 - for sleep
    Decongestant/antihistamines - for constant allergies
    Advil/Vicodin - for pain

    (I take some supplements but, do not feel a difference whether I am on them or not)
    In addition (I know it's more than 3) I have been taking Klonopin for about 4 years now - 3mg a day. In the beginning I think it helped but, now since I have been on it for so long, I don't know if it's doing anything anymore. I am in the process of trying to wean off it.
  3. Cort

    Cort Phoenix Rising Founder

    Messages:
    7,025
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    440
    Raleigh, NC
    Stress Reduction techniques
    Chemical avoidance
    Dietary Modifications - no wheat, corn, dairy, reduced sweet intake

    (blood volume enhancer)
  4. sensing progress

    sensing progress Senior Member

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    9
    Tucson, AZ
    what is the blood volume enhancer?
  5. u&iraok

    u&iraok Senior Member

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    30
    U.S.
    I can't keep it to just three!

    1. Nutrients--esp. minerals, Vit B & D, antioxidants, good diet
    2. Methylation/Detoxification
    3. PMGs from Standard Process for endocrine system
    4. Stress reduction
    5. MMS
  6. Frank

    Frank Senior Member

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    Europe
    1.Amitryptiline for sleep and pain (massive difference)

    2.Dietary changes for IBS (no diary and gluten, no aspartame, no msg, little meat, ...)

    3.B12 hydroxycobalamine IM for energy

    4.Pancreatic support (digestive enzymes) for better stools and digestion, for gaining weight
  7. Emootje

    Emootje Senior Member

    Messages:
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    95
    The Netherlands
    1 Ujjayi breathing with Hemi-Sync's binaural beats (Deep 10 Relaxation).
    2 Vitamin C
    3 Vitamin B complex
  8. Shalomali

    Shalomali

    Messages:
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    14
    Tasmania, Australia
    Meditation
    Rest
    T3 - early days with this, but I'm noticing increased energy.
  9. livingwithcfids

    livingwithcfids

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    7
    Thank God I found this, I thought it was accidentally deleted. Your experiences are priceless, so I greatly appreciate all of the responses thus far. I know what may work for one person may not for another, but I am hopeful in that I will some day have myself back so I continue to try what my limited budget permits. :)
  10. Calathea

    Calathea Darkness therapy

    Messages:
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    538
    Scotland
    1. Pacing and rest.
    2. Darkness therapy to keep my sleep pattern in the right place and generally improve my sleep quality.
    3. Powdered mix I put into herbal tea of low-sodium salt, D-ribose, acetyl L-carnitine, magnesium citrate, and magnesium ascorbate. I'm reasonably sure that most of those are helping a certain amount, but it's always really hard to tell, and I occasionally tweak the proportions.

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