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Nitric oxide and its possible implication in ME/CFS (Part 1 of 2)
Andrew Gladman explores the current and historic hypotheses relating to nitric oxide problems in ME/CFS. Part 1 of a 2-part series puts nitric oxide under the microscope and explores what it is, what it does and why it is so frequently discussed in the world of ME/CFS. Part 1 focuses...
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3 Things that Help the Most!!

Discussion in 'General Treatment' started by livingwithcfids, Nov 11, 2011.

  1. livingwithcfids

    livingwithcfids

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    What 3 things have helped you the most in dealing with your ME/CFIDS symptoms?
    Mine have been...

    1. Naltrexone 4.5mg (LDN)

    2. Vitamin D

    3. Valerian root


    And thank you to all those who responded to my brain fog thread! I have ordered a few of your suggestions and am hopeful.
  2. Ocean

    Ocean Senior Member

    Messages:
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    U.S.
    I haven't had much success in improving so I don't have much to offer. But for me so far the few things that have helped or at least not hurt are:

    1. Pacing
    2. Daily rest with lights out and eyes closed, regardless of how I'm feeling
    3. Sudafed (I think someone mentioned this can help with POTS, I think it was Carrigon maybe?) and I find I have been feeling maybe slightly better since taking Sudafed daily for congestion
  3. heapsreal

    heapsreal iherb 10% discount code OPA989,

    Messages:
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    australia (brisbane)
    1 Zopiclone for sleep
    2 famvir for ebv/cmv reactivation
    3 pregnenolone for energy, low doses of transdermal cream used, 5mg.
  4. Marg

    Marg Senior Member

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    Wetumpka Alabama
    1. LDN

    2.

    3. Equilibrant
  5. sianrecovery

    sianrecovery Senior Member

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    Manchester UK
    My three would be dietary modification ( found out reacted badly to diary and wheat, cut them out, and now eat high protein/low carbs/sugar diet, Dr Myhill's mito protocol, inc injectable B12 and Magnesium, and Perrin technique. Oh - actually, cant limit it to three - everything I have done to stay hopeful and connected, and of use to others, and everything I have done to calm my sympathetic nervous system down - yoga, meditation, earthing, energy medicine. Next things to try - methylation protocol, anti-viral and anti-bacterial treatments, mold avoidance and sorting out my hormonal status. Just wish I had lottery win to fund it all!
  6. Marg

    Marg Senior Member

    Messages:
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    Wetumpka Alabama
    I will try again, don't know why number 2 did not print.

    1. LDN

    2. Imunivor

    3. Equilibrant
  7. taniaaust1

    taniaaust1 Senior Member

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    Sth Australia
    All the things which has helped only worked on certain symptoms of mine, hard to choose 3 as all these things made a big different to something.

    1. Dietary changes (low carb/high protein diet .. avoidance of artificial things, no sugar)
    2. B12 (hydroxocabalamin) injections every 3-4 days
    3. Chiropractor - got rid of my constant dizziness with a neck adjustment, neck issues I didnt know I had worsened ME stuff, he also used homeopathics and also got rid of constant thirst.

    (Pacing, Aggressive rest therapy, undenatured whey, selenium/molybdenum, fibre supplements have really helped me too)
  8. madietodd

    madietodd Senior Member

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    East Coast, USA
    1. Intense dietary modification and vitamins/minerals, especially Bs

    2. Sleep support: L-Tryptophan, Theanine, Benedryl

    3. Adrenal support: Drenamin, Adrenal Response.

    I'm in the process of tailoring the methylation protocol to my needs; that's likely to get on the list in a bit.
  9. Bob

    Bob

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    9,930
    England, UK
    1. Rest (as much long-term total rest as possible)

    2. Pacing

    3. Clonazepam (no more than 0.125mg a day)
  10. snowathlete

    snowathlete

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    UK
    1. amytriptyline for sleep. Massive difference!

    Nothing else yet, but im trying a few things.
  11. Dreambirdie

    Dreambirdie work in progress

    Messages:
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    3,081
    N. California
    1. Adrenal adaptogens (Schisandra, Ashwaghanda, Siberian Ginseng)

    2. Acupuncture

    3. Being in by the Ocean

    Am currently trying the full methylation protocol, so we'll see how that goes.
  12. mellster

    mellster Marco

    Messages:
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    San Francisco
    1. LDN

    2. CVAC

    3. Methylation/Supplements
  13. Alesh

    Alesh Senior Member

    Messages:
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    0
    Czech Republic, EU
    1. Escitalopram

    2. Clenbuterol

    3. Oxandrolone
  14. Lou

    Lou Senior Member

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    southeast US
    1. gcmaf

    2. edta chelation

    3. Immunepro
  15. determined

    determined Senior Member

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    USA: Deep South
    1. chemotherapy for cancer
    2. doxycycline
    3. "homeopathic" doses of methylfolate and mB12
  16. fla

    fla Senior Member

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    Montreal, Canada
    1- Rest
    2- Pacing
    3- Omega 3 for slight cognitive improvement
  17. ahimsa

    ahimsa Senior Member

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    Oregon, USA
    1. Treating my Orthostatic Intolerance (in my case, NMH = Neurally Mediated Hypotension)

    Treatment is a combination of prescription drugs (midodrine, fludrocortisone, and time-released potassium) plus extra sodium (salt tablets) and water (3 liters a day). I listed this as one "thing" since they all work together. Any single item alone might not help as much.

    2. Resting

    What works best for me is lying back in the recliner with my head supported and my feet elevated (and not using the laptop!). Sitting in a regular chair, for me, is actually still "work" for my body because of the NMH.

    3. Cane that folds into a portable 3-legged stool

    I used to dread doing anything -- from groceries to picking up my prescription -- that required standing in line. I still don't like lines but at least I can do them if they are reasonably short (a few people). I use this folding cane/seat to sit down while I wait in line. This one little tool makes it possible for me to do a few errands on the good days (as long as I schedule enough rest days before and after).
    L'engle likes this.
  18. soxfan

    soxfan Senior Member

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    North Carolina
    nothing so far..
  19. SaraM

    SaraM Senior Member

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    Methylation protocol for sleep
    Diet( coffee, gluten,dairy,eggs, foods high in citrate, acidic foods, night shades,and MSG are triggers), and Ibuprofen for pain, energy, and OI
    Large doses of Vitamins , Minerals(at night) , Amino acids, Glutathione, Creatine for OI, adrenal fatigue, and energy( I had lots of deficiencies)
    Vitamin A for gritty eyes(multi was not enough, 25,000 iu)
    Grape fruit seed extract for white tongue
    Progesterone cream at night , Pregnenolone in the morning
  20. richvank

    richvank Senior Member

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    Hi, all.

    It's heartening to see variants of methylation treatment mentioned several times so far.

    It's also interesting to see how the things that have helped people here the most jibe with the rankings of effectiveness on the CureTogether dot com site:

    http://curetogether.com/chronic-fatigue-syndrome/treatments/

    Some of the things mentioned here are fairly high in the rankings there, too.

    Best regards,

    Rich

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