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3 HIV DRUGS WITH POSSIBLE EFFICACY AGAINST XMRV, by Mindy Kitei

Discussion in 'Media, Interviews, Blogs, Talks, Events about XMRV' started by Mindy Kitei, Aug 2, 2010.

  1. Mindy Kitei

    Mindy Kitei

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  2. Sasha

    Sasha Fine, thank you

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    Thanks, Mindy - informative, as always!
  3. Stone

    Stone Senior Member

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    Great article and in a format that works well for my CFS brain. Thanks so much!
  4. liverock

    liverock Senior Member

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    Dr Jamie Deckoff-Jones and her daughter have both been found positive for XMRV and been using tenofovir and raltegravir since March.

    Not having much success unfortunately.

    http://treatingxmrv.blogspot.com/
  5. jdeckoffjones

    jdeckoffjones

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    Jeez, liverock. You're impatient:). We're doing well. Did you want a miracle? I know, me too. But lots of ideas on the horizon for the next steps. Maybe I'm nuts, but things are looking up at my house. I really think the arv's are helping.

    Warmly,
    Jamie Deckoff-Jones
  6. leaves

    leaves Senior Member

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    Yes I am impatient too!!
    Thanks so much for your frequent updates, they are very important for us.
  7. Tembo

    Tembo Australia

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    Thanks for the update Mindy - fantastic as always:)

    Dr Jones - your blog is wonderful -my chronic fatigued riddled family lives for your updates - we are so happy to see such improvement already! You should be renamed Pioneer Woman :)
  8. SOC

    SOC Moderator and Senior Member

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    Thanks for keeping us all informed, Jamie. I, too, am a PWC with a college-age daughter struggling with ME/CFS. We have no hope at the moment of finding a doctor who would prescribe arv's, so we haven't tested for XMRV, yet. We're treating HHV-6 in the meantime and hoping to learn from your experience, so we can treat XMRV should we need to in the future. We appreciate your sharing.
  9. liverock

    liverock Senior Member

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    Sorry if I got the wrong impression-I think it was the 'finger in the dyke' sentence that made me think things were not progressing. Good to hear that you are and looking for new initiatives.:Retro smile:

    Have you considered using Humic Acid along with your anti-retrovirals?

    It seems to be effective against HIV and some other viruses such as Coxsackie and the HPV's.

    http://gateway.nlm.nih.gov/MeetingAbstracts/ma?f=102276321.html

    http://www.humichealth.info/

    http://www.supremefulvic.com/resources.php
  10. Daffodil

    Daffodil Senior Member

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    hmmm....that article posted by mindy said something about drugs that might help clear the XMRV reservoirs....they've gotta be saying that to be provocative. we are nowhere near able to clear any retrovirus reservoir yet!

    sue
    xoxo
  11. gu3vara

    gu3vara Senior Member

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    Are you considering trying to get your hands on gcmaf injections in the future, so far it appears like the most promising treatment but quite expensive and still hard to find
  12. shannah

    shannah Senior Member

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    That caught my attention too. I didn't think the reservoirs had even been identified yet. Does she know something we don't?
  13. Daffodil

    Daffodil Senior Member

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    no i think people just want us to read the next installment. they will likely just name some of the stuff they are trying to use to clear the HIV reservoirs and tell us it should be tried for XMRV too.

    i have been reading a lot about HIV lately and i have noticed that every week , there is some new article with the word "cure" in the title. its all a publicity stunt i think

    sue

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