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2nd XMRV Positive in the UK

Discussion in 'XMRV Testing, Treatment and Transmission' started by DysautonomiaXMRV, Jan 18, 2010.

  1. Hi everyone.

    I got my result today from VIPdx in the USA, and I am positive for XMRV by culture, and negative for XMRV by PCR.
    I've added my result to the forum poll.

    I'll take a break for a while, and I do hope that in the mean time people here can try and get tested as soon as possible.

    It's nearly 19 years since I was diagnosed and told I was suffering from 'unresolved grief' and 'somatization'.
    I wonder back then, if the XMRV test had been available - how life would have turned out?

    Thank you for all your help and support and for this great website that offers patients the vital ability to communicate.
     
  2. Smulan

    Smulan

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    cut

    Thanks for posting. Good luck DysautonomiaXMRV!
     
  3. joyscobby

    joyscobby Senior Member

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    UK XMRV Positive 2

    Take care of yourself and take it easy.:sofa: I am so glad for you. :victory:Do not know what to say but PM if you want to talk.

    From UK Positive 1 who is no longer alone thank you:Sign Good one::balloons::Sign Good Job::balloons:
     
  4. Hysterical Woman

    Hysterical Woman Senior Member

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    Congratulations??????????

    Please take care of yourself. Looking forward to seeing you back when you can.

    Maxine
     
  5. flybro

    flybro Senior Member

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    pluto
    Thanks for posting Dys,

    and take seriuosly good care of yourself.
     
  6. sproggle

    sproggle Jan

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    Teesside, England UK
    Thanks for posting your results DysautonomiaXMRV and keeping us in the loop. The truth will out!

    Take care, I'm sure it will take a while to sink in...
     
  7. Koan

    Koan Be the change.

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    Dys,

    :victory:



    :hug:
    Koan
     
  8. Lily

    Lily *Believe*

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    We're here for you. Take care. Looking forward to hearing from you again when you're ready.
     
  9. kit

    kit

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    Absolutely. Thank you Phoenix Rising Forum administrators et. al. who make it possible for us all to know what is going on.

    And thanks to Joyscobby and Dys, thanks for posting your results. Take good care. :Sign Peace:
     
  10. sleepwalking

    sleepwalking

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    It must be a relief to finally know what has caused all this misery and stolen precious years. My sincerest best wishes and healing thoughts.
     
  11. Kati

    Kati Patient in training

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    Same as Koan- she couldn't have said it better!
    dys, not to worry, there will be other XMRV+ in UK in no time.
     
  12. anne_likes_red

    anne_likes_red Senior Member

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    Hey, :Retro smile:
    Thanks for sharing your news and adding to the poll.
    Take the time you need.
    (But I know we'll all be richer if you don't become a total stanger.)
    Anne.
     
  13. Martlet

    Martlet Senior Member

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    I'd never wish a retrovirus on anyone, but congratulations on your result. At last, you have something to point to.

    I echo everyone's sentiments. Don't stay away any longer than you must. I value your input!
     
  14. all the very best-----
     
  15. Advocate

    Advocate Senior Member

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    I'm glad your long wait is over. Come back when you can.
     
  16. rebecca1995

    rebecca1995 Apple, anyone?

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    Congratulations, DysautonomiaXMRV!

    I hope the positive result will open up new treatment options for you in the future--and that you get a bit more respect from medical professionals in the meantime!

    Take that, Simon Wessely and Myra "if it was there we would have found it" McClure!
     
  17. fds66

    fds66 Senior Member

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    Thanks for sharing your result. Take as much time as you need.
     
  18. starryeyes

    starryeyes Senior Member

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    I'm glad you know now and thanks so much for sharing your news with all of us. Don't stay away too long.

    :hug:

    tee
     
  19. CJB

    CJB Senior Member

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  20. Knackered

    Knackered Guest

    I'm wondering whether I should get tested now, I'm not sure whether my doctor would sign for it, if not what would be my best course of action?

    DysautonomiaXMRV:
    Do you have Canadian Criteria CFS? If you do I'm gonna get the test done I think.

    I'm excited as hell now.
     

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