1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
Give ME the Money
Graham McPhee spells out some of the cold, hard facts about the dismal state of ME research and politics, and has some suggestions as to what we can do about it ...
Discuss the article on the Forums.

2nd July - Statement From The Whittemore Peterson Institute - Regarding CDC Study

Discussion in 'XMRV Research and Replication Studies' started by VillageLife, Jul 2, 2010.

  1. VillageLife

    VillageLife Senior Member

    Messages:
    674
    Likes:
    36
    United Kingdom
  2. VillageLife

    VillageLife Senior Member

    Messages:
    674
    Likes:
    36
    United Kingdom
    Whittemore Peterson Institute Statement regarding
    Centers for Disease Control XMRV Study


    Contrary to the WPI study published in Science in October, 2009, as well as studies done by
    others, including the NIH and FDA, Mr. William Switzer of the Centers for Disease Control reported
    that his research team was unable to detect XMRV in CFS patient samples. This negative finding is in contrast to the WPI study in which we detected XMRV in 67% of CFS patient samples.

    To correctly replicate scientific studies it is imperative that researchers use the same methods
    and patient criteria to ensure accurate results. The methodology used by the CDC was not the same as
    that used in the WPI study nor was the patient selection criteria. In September 2009, WPI sent the CDC
    twenty confirmed positive samples and the appropriate methodology to help them develop a clinically
    validated test. However, this team chose not to do this.

    Until researchers use clinically validated tests to detect XMRV in patient samples, as WPI
    and their collaborators have successfully done, an accurate association of XMRV to any diseased
    population cannot be made. For this reason, WPI researchers and many others are currently validating
    more sensitive clinical assays to assist federal agencies in their search for the true prevalence of XMRV
    in the human population.

    WPI will continue its core mission to deliver answers to patients with neuro-immune diseases
    by supporting the development of accurate diagnostics and providing effective therapeutics and clinical
    care.
     
  3. maryb

    maryb iherb code TAK122

    Messages:
    2,924
    Likes:
    2,061
    UK
    Says it all really but is anyone listening.
     
  4. citybug

    citybug Senior Member

    Messages:
    522
    Likes:
    36
    NY
    The press must be bugging them for response.
     
  5. JPV

    JPV Senior Member

    Messages:
    300
    Likes:
    89
  6. Rivotril

    Rivotril Senior Member

    Messages:
    154
    Likes:
    0
    maybe they "use " the 67% number because thats the number that is officially confirmed in a peer reviewed paper. The later 95%+ percentages were found after additional studying but were never published in a scientific magazine. so in a kind of news release to "attack"the CDC thing, maybe they thought it would be better to use just the real scientifically confirmed percentage
     
  7. Trooper

    Trooper Senior Member

    Messages:
    105
    Likes:
    1
    UK
    This bit made me smile ^^ :Retro smile:

    Another well balanced statement from the WPI :thumbsup:
     
  8. omerbasket

    omerbasket Senior Member

    Messages:
    510
    Likes:
    13
    I think that this is the exact reason as to why they used this number.
     
  9. George

    George waitin' fer rabbits

    Messages:
    846
    Likes:
    44
    South Texas
    Dr. Mikovitz said in one of her interviews (can't remember where) that the supplemental paper was being reviewed for publishing, this was back in March. It annoys the hell out of me that some twenty papers including the WPI's two additional papers are being held up but they publish this pap by the CDC.

    Too much work has been done by too many good scientist. With the information out now by journalist that the DHHS has a hand in holding this information back I think the scientist themselves are starting to get a little pissed. I hope this set's off a firestorm.
     
  10. dannybex

    dannybex Senior Member

    Messages:
    2,279
    Likes:
    582
    Seattle
    Yes...

    That's precisely the reason.

    "This negative finding is in contrast to the WPI study in which we detected XMRV in 67% of CFS patient samples."

    eta: perhaps they could have said "...the WPI study published in the journal Science..." ?
     
  11. bullybeef

    bullybeef Senior Member

    Messages:
    476
    Likes:
    44
    North West, England, UK
    Maybe they want to save their follow-up study (~97% in ME) for when all the negative papers have shot themselves in the foot?
     
  12. Daffodil

    Daffodil Senior Member

    Messages:
    2,923
    Likes:
    895
    the last number i heard was 99% of the patient samples used in the science article have now tested positive.
     
  13. bullybeef

    bullybeef Senior Member

    Messages:
    476
    Likes:
    44
    North West, England, UK
    Yeah, I have heard that many different figures between 95-99% I thought I'd average it to around 97. We do with the paper to make it definitive.
     
  14. ggingues

    ggingues $10 gift code at iHerb GAS343 of $40

    Messages:
    4,118
    Likes:
    963
    Concord, NH
    Please Research World, (this includes you taxpayer funded gov't entities),

    Please DO YOUR JOB and help the sick get better! People have lost their lives to this horrible illness, some decades and decades, but some only YEARS! (Sarcasm). Meanwhile more people are becoming ill with this disease and will find that there are NO ANSWERS still after decades worth of "research".

    Take this research world! and listen up!!

    Until researchers use clinically validated tests to detect XMRV in patient samples, as WPI
    and their collaborators have successfully done, an accurate association of XMRV to any diseased
    population cannot be made.

    For this reason, WPI researchers and many others are currently validating
    more sensitive clinical assays to assist federal agencies in their search for the true prevalence of XMRV
    in the human population.

     

See more popular forum discussions.

Share This Page