How we can hijack the media, in four easy lessons
Love it, hate it, good story, bad story... the media are going to keep reporting on ME/CFS no matter what. But isn’t it time that we saw that coverage as an opportunity?
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25 Action Items to Assist Gulf War Veterans (including CFS research)

Discussion in 'General ME/CFS News' started by ixchelkali, Aug 2, 2010.

  1. ixchelkali

    ixchelkali Senior Member

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    Long Beach, CA
    "Veterans Todays" posts this testimony before VA Committee on Oversight and Investigation, July 27, 2010: http://www.veteranstoday.com/2010/07/28/twenty-five-action-items-to-assist-gulf-war-veterans/
    The testimony was submitted by Denise Nichols, Maj, USAFR(ret), RN(ret health), MSN, Gulf War Veteran, and Vice Chairman National Vietnam and Gulf War Veterans Coalition.

    Here are some of the action items concerning CFS:

    It occurs to me that #22 could backfire for veterans if they got it, depending on which CFS/ME/Fibromyalgia "experts" they got. I seem to remember that a few years ago William Reeves was working with the VA on fatigue studies (of course, my memory isn't very reliable these days).

    I agree that veterans with Gulf War Illness need to be included in XMRV studies. I wonder if there's anything we could do to promote this? It seems like it would be one way for the ME/CFS to honor and help our war veterans. Maybe it could be as simple as trying to remember to include GWI when we are talking about the spectrum of neuroimmune diseases like fibromyalgia and MCS.
     
  2. Frickly

    Frickly Senior Member

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    Texas
    Thanks for this post. I try to keep an eye on veterans today but missed this one. I am certain that WPI is testing the blood of veterans with GWI. I can see how #22 might be a problem but I also see why this is needed. The top researchers in the field are not in the military and if the military cuts itself off from civilian doctors and researchers then the patients will/are suffering.
     
  3. SOC

    SOC Senior Member

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    Thanks for the heads up, ixchelkali. We do need to remember, and include, our vets with GWI.
     
  4. HopingSince88

    HopingSince88 Senior Member

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    Yesterday President Obama gave a speech to a Veterans group, which I watched live over the internet. He mentioned better support for veterans with illnesses and specifically mentioned PTSD and for their carers, but there was no mention of Gulf War Illness.
     

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