Maybe it's time for another petition, this one (thoughtfully and politely) expressing patient lack of confidence in the AfME by UK patients. Then it can be cited any time AfME is about to support BPS research or other nonsense, and hopefully knock them out of any involvement they're having with the government or other organizations purportedly on our behalf. If anyone in the UK does feel inclined to make such a petition, please take your time, and get a committee of interested and constructive people together in a private group. It's disappointing when someone cranks something out in 15 minutes that inadvertently makes us look a bit unhinged, ignorant, and/or biased. If we want big numbers on petitions, they need to be of high quality, and not say anything that otherwise supportive patients can't sign on to.