Severe ME Day of Understanding and Remembrance: Aug. 8, 2017
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2017 CFSAC Summary

Discussion in 'General ME/CFS Discussion' started by usedtobeperkytina, Jan 24, 2018.

  1. usedtobeperkytina

    usedtobeperkytina Senior Member

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    Gemini and Dolphin like this.
  2. Learner1

    Learner1 Professional Patient

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    Thank you for your nice summary of the committee members and how they are approaching their work. Reading this from a long way away it was nice to get a feeling for the committee.

    What are they tasked with doing and what did they accomplish? What is the work ahead of them in the coming year or five? And how can we patients support this effort?
     
  3. usedtobeperkytina

    usedtobeperkytina Senior Member

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    They made some recommendations. I forget what. All good.

    Most of their talk was about physician education, increasing or continuing collaboration, and getting the DA to fix their issues in what they communicate about the disease.

    There was lots of talk about whether they should target family care physicians or specialists (what specialty they weren't sure) with an education program.
     
  4. Learner1

    Learner1 Professional Patient

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    Family care physicians aren't up to the task. Immunologists, infectious disease docs, endocrinologists? Or, better yet, functional medicine docs?
     
  5. usedtobeperkytina

    usedtobeperkytina Senior Member

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