1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
Nitric oxide and its possible implication in ME/CFS (Part 2 of 2)
Andrew Gladman explores the current and historic hypotheses relating to nitric oxide problems in ME/CFS. This second article in a 2-Part series puts nitric oxide under the microscope and explores what it is, what it does and why it is so frequently discussed in the world of ME/CFS....
Discuss the article on the Forums.

2012 Chase Community Giving Contest - Voting, Promoting (Ways to Help!)

Discussion in 'Fundraising' started by frenchtulip, Sep 3, 2012.

  1. Merry

    Merry Senior Member

    Messages:
    1,358
    Likes:
    615
    Columbus, Ohio, USA
    Neuro Immune Diseases Alliance (NIDA) is at 58th with 860 votes.

    Phoenix Rising an NEID Corporation is at 118th with 489 votes.

    If these two organizations can at least hold their positions they will win $20,000 and $10,000 respectively.

    The other ME/CFS organizations, I believe, are not on the leaderboard.
     
  2. frenchtulip

    frenchtulip Senior Member

    Messages:
    552
    Likes:
    341
  3. frenchtulip

    frenchtulip Senior Member

    Messages:
    552
    Likes:
    341
    Here is another great contest poster for us to use! If you are on Facebook, there is a version you can "Share" at ME Awareness: Words and Pictures: https://www.facebook.com/MEAwarenessPics?ref=ts
    You may wish to include the contest standings when you post. Below is today's update from ME Awaress:
    Chase Community Giving has entered into its second half and your votes are needed more than ever. Here are the current standings of the eight ME/CFS organizations taking part this year (in order of number of current votes):

    Neuro-Immune Disease Alliance (NIDA) 1,020 votes
    Phoenix Rising An NEID Corporation 534 votes
    Rocky Mountains CFS Association Inc 69 votes
    Organization for Fatigue and Fibromyalgia Education and Research (OFFER) 62 votes
    New Jersey CFS Association 46 votes
    Enterovirus Foundation 38 votes
    Wisconsin CFS Association 14 votes
    HHV-6 Foundation 2 votes

    Please consider casting your votes and encouraging others to do so too. Currently, only the top two of our organizations are in line to win but this can change very quickly so more votes are always needed.
     
  4. Merry

    Merry Senior Member

    Messages:
    1,358
    Likes:
    615
    Columbus, Ohio, USA
    As of 8:30 EST:

    Neuro Immune Diseases Alliance (NIDA) 63rd with 1085 votes.

    Phoenix Rising an NEID Corporation 142nd with 551 votes.

    These two organizations, which have been in the running to win cash, continue to slide in the standings.
     
  5. Anne

    Anne Senior Member

    Messages:
    126
    Likes:
    170
    Scandinavia is pitching in!

    RME, the Swedish national ME Association, has created a Facebook event:
    https://www.facebook.com/events/143503745793340/

    - and RME has also sent an e-mail to all members, encouraging them to vote for Phoenix Rising and NIDA

    ME Foreningen, a Danish ME Association, has created an event too:
    https://www.facebook.com/events/103252766495772/

    Norges ME-forening, the Norwegian national ME Assocation, has posted on its wall:
    https://www.facebook.com/MEforeningen?ref=ts

    And the Norwegian journalist and author of the book about ME "De bortgjemte" (The Hidden Ones), Jorgen Jelstad, has posted on Facebook:
    https://www.facebook.com/pages/De-Bortgjemte/273407159344792

    Can we Nordic advocates challenge the rest of you....? ;-)

    PS. Cort and other PR team members, are you OK? I haven't seen posts in a while. Hoping all is well and that you're not giving up on Chase!
     
    Merry likes this.
  6. Merry

    Merry Senior Member

    Messages:
    1,358
    Likes:
    615
    Columbus, Ohio, USA
    Contest stats as of 8:15 EST today:

    Neuro Immune Diseases Alliance 62nd with 1279 votes
    Phoenix Rising an NEID Corporation 153rd with 624 votes

    So, NIDA up one position from yesterday. Phoenix Rising continues to slide.

    ME/CFS organizations not on the leaderboard:

    Rocky Mountain Chronic Fatigue Syndrome Association 79 votes
    New Jersey Chronic Fatigue Syndrome Association 49 votes
    Enterovirus Foundation 43 votes
    HHV-6 Foundation 2 votes

    Six more days in the contest.
     
  7. Merry

    Merry Senior Member

    Messages:
    1,358
    Likes:
    615
    Columbus, Ohio, USA
    bumping
     
  8. Merry

    Merry Senior Member

    Messages:
    1,358
    Likes:
    615
    Columbus, Ohio, USA
    Contest stats as of 8:30 am EST:

    Neuro Immune Diseases Alliance is 66th with 1555 votes. Phoenix Rising an NEID Corporation is 161th with 761 votes.

    Other ME/CFS organizations continue to pull in some votes but still are not on the leaderboard. Rocky Mountain CFS Association is top of this group with 83 votes. To get on the leaderboard, an organization would need at least 668 votes.

    Four days remain in the contest.

    Thanks to all who are helping out.
     
  9. Merry

    Merry Senior Member

    Messages:
    1,358
    Likes:
    615
    Columbus, Ohio, USA
    Contest stats as of 3:15 ET, 18 September:

    NIDA at 69th place with 1831 votes.

    PR at 167th place with 955 votes.
     
  10. taniaaust1

    taniaaust1

    Messages:
    8,265
    Likes:
    5,220
    Sth Australia
    Yesterday I emailed the SA CFS society (I would of done it earlier but Ive had to much other stuff to sort out) , asking if they could put something on their site up about chase and ask for needed last votes for the two ME/CFS orgs (I had all the needed info in my email to try to make sure that time and effort wouldnt stop that being done).

    Unfortunately thou that didnt happen (or maybe they just didnt get to reading my email) as todays international news on the site is about the lack of virus findings :( .
     
  11. Merry

    Merry Senior Member

    Messages:
    1,358
    Likes:
    615
    Columbus, Ohio, USA
    Thanks for your effort, tania. frenchtulip emailed the organizations in Australia and New Zealand right before the contest started, and then one of us sent a follow up message about voting strategy to the same organizations. I believe that SA CFS Society was on the list, but I'm not thinking clearly at this point. I can see that having someone who is a citizen of the same country contact organizations might be more effective.
     
  12. Nielk

    Nielk

    Messages:
    5,464
    Likes:
    6,020
    Queens, NY
    Until what time is the voting open today?
     
  13. Merry

    Merry Senior Member

    Messages:
    1,358
    Likes:
    615
    Columbus, Ohio, USA
    Nielk, voting ends at 11:59:59 pm ET.
     
  14. Nielk

    Nielk

    Messages:
    5,464
    Likes:
    6,020
    Queens, NY
    Thanks Merry. So, we have less than 14 crucial hours to go!
     
    Merry likes this.
  15. SpecialK82

    SpecialK82 Senior Member

    Messages:
    897
    Likes:
    475
    USA
    The newsletter that Cort put out last night has really helped!

    We were are 179 Tues 6:00 PM, now we are at 163 Wed 5:30 - what a great boost.

    It's still tough for both orgs - unfortunately NIDA still slipping down to 84 from 79 last night.
     
    Merry likes this.
  16. Nielk

    Nielk

    Messages:
    5,464
    Likes:
    6,020
    Queens, NY
    We - each one of us can make a difference.
    Only 12 hours left.
    Your vote can mean the difference of $30,000.
    $20,000 for NIDA
    $10,000 for PR

    This is a lot of money for just a few mouse clicks!
     
    Merry likes this.
  17. frenchtulip

    frenchtulip Senior Member

    Messages:
    552
    Likes:
    341
    NIDA just posted they are in 92nd spot! Votes are badly needed!
     
  18. Nielk

    Nielk

    Messages:
    5,464
    Likes:
    6,020
    Queens, NY

    Last 6 hours of voting.

    If you have not yet voted, please do so now.

    NIDA http://on.fb.me/PKAbwN


    Phoenix Risinghttp://on.fb.me/QaTK6a


     
    Merry likes this.
  19. SpecialK82

    SpecialK82 Senior Member

    Messages:
    897
    Likes:
    475
    USA
    We are getting it done in this last minute push:

    In the 6:18 PM leaderboard update -
    - PR climbed up to 136! :p
    - NIDA has moved down to 87 since this AM at 84, however from a post above I see that NIDA was in even worse spot earlier today - so C'mon Midnight - we are ready for you!!
     
    Nielk and Merry like this.
  20. frenchtulip

    frenchtulip Senior Member

    Messages:
    552
    Likes:
    341
    Here is a lovely 'thank you' created by one of our artist-advocates for us to use. FundraisingPic_9.jpg
     
    Merry likes this.

See more popular forum discussions.

Share This Page