Dr Kerr lost his job (they didn't extend his contract) and he has now been lost to ME and CFS research. He told a patient at the time that it was unlikely he would ever have a lab again and be able to do more.
Shocked that I had somehow missed knowing that
.
He looked like such a promising researcher. I wish the patient group themselves, wish we could fund and pay researchers and get ME/CFS research done, that we want done, ourselves.
.......
Note:
subtype 1 (cognitive, musculoskeletal, sleep, anxiety/depression)
subtype 2 (musculoskeletal, pain, anxiety/depression); subtype 3 (mild)
subtype 4 (cognitive)
subtype 5 (musculoskeletal, gastrointestinal)
subtype 6 (postexertional)
subtype 7 (pain, infectious, musculoskeletal, sleep, neurological, gastrointestinal, neurocognitive, anxiety/depression).
I dont think all these groups would be the same thing.
Ive got to know a couple of subgroup 4 ones over the years and Im SURE they didnt have what I have or even a minor variety of whatever I do have.
(I personally thought they probably have another illness be it a deficiency or something else.. something doctors were missing rather then ME/CFS).
I do thou believe this can all manifest differently in different people.
That subgroup 6 (postexertional) thou I think would mix strongly with all the other subgroups. I havent met many of those other subgroups who also arent postexertional. (other then a few here).
umm one of those subgroups is probably a more FM group
subtype 1? FM itself may cause anxiety, sleep issues, fibrofog. My nanna would fit this group but she also has IBS. (she certainly thou hasnt got what Id call ME/CFS just FM with things which go with FM).
My sister I'd say is subgroup 3 thou I do believe she's got a minor version of what I have thou her's didnt start in a traditional way with virally symptoms, she's never got virally symptoms and never has had the kind of neuro issues I get either.
Ive changed symptom wise with those subgroups, I used to be subgroup 7 (but with post exetional) but now days dont get much musculoskeletal stuff at all. I truely dont know where I fit in all that.
Not sure where those who has MCS as the worst symptom of their illness fit either or where do those who have POTS and autonomic issues being the most major part of the illness fit.
(many who only have POTS may be getting falsely diagnosed with havin CFS as POTS gives a lot of symptoms too).
I suspect many of those subgroups thou are the same thing. I like the fact that I researcher thou tried to break down our illness and tried to find subgroups. (If different like groups were studied I think more answers would be found.
