International ME/CFS and FM Awareness Day is May 12: The World Will Know
Did you know that May 12 belongs to us? Lots of us are aware of this. We share the buzz on it amongst ourselves. We add blue ribbons to profile pictures. We raise our voices, join our hands, mount the few podiums available to us and tug at the sleeve of the rest of the world.
Discuss the article on the Forums.

(2008) Family illnesses among people with ME/CFS: Blood versus non-blood relatives

Discussion in 'Latest ME/CFS Research' started by Dolphin, Aug 12, 2010.

  1. Dolphin

    Dolphin Senior Member

    Messages:
    8,303
    Likes:
    14,602
  2. Marco

    Marco Old blackguard

    Messages:
    2,066
    Likes:
    2,182
    Near Cognac, France
    Thanks for posting this.

    I have to confess I found the article by Carruthers rather more fascinating.

    Not an easy read and rather philosophical but he makes several interesting points in :

    Dismissing the default notion of applying a psychological label to an illness when the underlying cause has yet to be determined (obviously);

    Considers ME/CFS from a systems/cybernetics perspective as an individual, dynamic response whereby the body's systems strive to maintain 'self' when faced with dysregulation;

    With the effect that any attempts at understanding the illness from a static reductionist perpective (which is what even the single pathogen, single pathology, single symptom studies must do to conform to the scientific method) must ignore the individuality and dynamics of the whole illness process and may unintentionally delay or divert finding an answer.

    Much better for clinicians and patients to explore how the illness as a whole develops over time as a means to identify the likely processes involved and those most likely to yield results. Or to put it another way, you don't need to be able to name the pathogen before assuming that there is underlying pathology and exploring the exact nature of that pathology.

    I'm pretty sure I haven't done the article justice.

    Well worth a read.

    PS - I've also now signed up for the Invest in ME e-news letter. Much more informative that the MEA publication.
     
  3. glenp

    glenp "and this too shall pass"

    Messages:
    753
    Likes:
    17
    Vancouver Canada suburbs
    Thank you for posting this, it looks great. I have saved it and will read it when I am having clearer days

    glen
     

See more popular forum discussions.

Share This Page