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2002-ish presentation: Lynne Turner-Stokes (KCL) on MUS

Discussion in 'Other Health News and Research' started by Esther12, May 14, 2014.

  1. Esther12

    Esther12 Senior Member

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    A bit interesting as there were hints of things that I liked, along with some amazingly bad stuff. I want out!

    New link: http://www.eapm.eu.com/tl_files/content/Presentations/EACLPP_Turner_MUS_2002.pdf

    Old link that I'm sure was working, but is now not!:
    web.archive.org/web/20040604163043/http://www.eaclpp.org/presentations/Turner%20Stokes%20MUS.ppt

    A taste of it:

    6:

    19:

    25:

    26:
    27:
    28:
    29:

    31:

     
    Last edited: May 15, 2014
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  2. Valentijn

    Valentijn Senior Member

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    So what were the good parts? The quoted stuff is all horrible :meh:
     
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  3. Simon

    Simon

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    (btw, link doesn't work)

    Thanks.

    Sometimes we simply have to recognise the wisdom of our betters for the insight as to why we have squandered the best years of our life:

    6:
    So true, I had nothing but understanding, support and admiration from those around me, it was so much more rewarding than my career and social life had been. And don't even get me started on the hero-worship from doctors.

    Yes, so many advantages, but really it was being pestered non-stop for sex that led to me opting for this illness.

    Maybe it wasn't so bad and I should face up to my responsibilities in life. Thank you, Lynne Turner-Stokes, for your wisdom and insight.
     
  4. Esther12

    Esther12 Senior Member

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    New link: http://www.eapm.eu.com/tl_files/content/Presentations/EACLPP_Turner_MUS_2002.pdf

    Wessely will talk about these advantages of illness too... maybe our brave researchers are to be congratulated for having so thoroughly eradicated these perpetuating social factors? I've always been encouraged to recover with lashes of biopsychosocial disdain.

    Some bits like this sounded like, despite her views, she would not try to screw her patients over financially:

    38:
    Also, it sounded like her approach to 'managing' them wasn't that aggressive, and that only patients who wanted psychosocial management would have to put up with it:

    28:
    It was almost like she thought these patients were so hopeless that she wouldn't end up making life too much worse for them, despite her beliefs. (It's a bit dire that I'm impressed by a doctor who sounds like, despite her views, she won't make things worse, rather than expecting any to be helpful).
     
    Last edited: Aug 6, 2014
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  5. A.B.

    A.B. Senior Member

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    Ridicule is the next best response to this sort of psychonuttery. Please excuse me for reposting this.

    Written in 1951 when the idea that peptic ulcers were psychosomatic was popular.
    http://journals.psychiatryonline.org/article.aspx?articleid=144588

    This is what happens when "science" is based on questionnaires, subjective interpretations by researchers, and driven by belief in unproven hypotheses. And it sounds a lot like the drivel in this presentation. The allegedly identifiable psychological, psychiatric, behavioral abnormalities can be explained in many ways, not just via psychosomatic illness. Assuming they're even real and don't just exist in the head of the psychiatrist (see Rosenham experiment for examples of just that).
     
    Last edited: May 15, 2014
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  6. biophile

    biophile Places I'd rather be.

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    LOL Simon, particularly the part about using CFS as an excuse to stop the non-stop pestering for sex!

    CFS symptoms are at least as debilitating as most chronic diseases, how dare patients express concern?

    Constantly feeling like shit and decades of struggle,
    Relapses without prospects of overall improvement,
    Being forgotten or ridiculed by society at large,
    "These are a few of my favourite things".




    "Part of the normal human condition to exaggerate" was funny, given their own exaggerated emphasis on such factors.

    Sarcasm etc are also normal, so in an improvised rant in the same spirit as yours ...

    ---

    Yeah, I just love bragging about CFS and all the awesome attention and social mystique it brings. I'm addicted to the fact that a mere mention of having "CFS" makes people look at me as if I just dropped a loud smelly fart in a crowded elevator. The disdain and disgust from society at large makes me feel like an important part of the human race.

    Getting a fraction of the income, living in a small run down apartment, having trouble paying bills, and unable or struggle to do hobbies, taking hours to do what should take minutes; all these things are everything I ever dreamed of as a kid when thinking about my future career, I am so happy and fulfilled with how things are, I don't want it to change!

    All the constant admiration from peers makes me feel like a megastar. Talking about CFS just makes me the life of the party, especially the part about not being able to drink alcohol, smoke weed, pop acid, eat mushrooms, or do white lines. Forgetting stuff and not being able to talk for long just makes party conversations so interesting.

    The number of friends I have just grew exponentially after getting CFS. My Facebook and Twitter accounts are just overloaded with fans and real friends who follow my every move. Being unable to shower in the mornings without POTS and eventual migraine does wonders for hygiene and self-confidence.

    Using the CFS crutch is so empowering and useful. I feel so brave and manly, even better than having buff muscles or cage fighting. All the hot chicks just melt when I talk about PENE prohibiting normal sex, and urinary symptoms are so sexy. Asking for embarrassing help only when needed just makes me feel so much of a man in the eyes of society. I'm a man among men. All the men want to be like me, and all the women want to be with me so they can feel my CFSness.

    I crave the medical attention of disbelief. It makes me so excited to be a burden on the health system. Barred from extensive testing and receiving no useful treatment is great. Explaining over and over ad nauseam that GET was unhelpful, and risking another round of GET to amuse a new doctor, does wonders for my health and sense of being believed.

    I'm so uninformed about philosophy of mind and medical research that I just can't get past Cartesian substance dualism. There is a strict division between mind and body, psychological factors influencing health is impossible! I attack psychological research if it goes against these preconceived notions, never because of methodological flaws. I swallow every piece of quackery under the Sun without question, I'm just go gullible and love wasting money on fads!

    I fear the stigma of mental illness so bad that I'm in a massive denial about my psychological and social problems. My ego is so fragile that my whole world would come crashing down if I dared to consider the possibility that my mind is not in a state of Buddha perfection. Who cares if CFS has more stigma than mental illness and receives even less funding?

    My insight is so poor that I woke up one day with a touch of fatigue and freaked out. I talked myself into thinking mild fatigue was paralysis, and I panic at the tiniest tingle in my body, it must be proof of a serious life threatening disease. I can't distinguish PENE from DOMS, or between symptoms of illness from symptoms of transient emotions. I really should snap out of the faulty association between activity and symptoms. All those biological abnormalities that occur after exercise in the research are just coincidence and fueling my delusions.

    Ahhh, isn't this truly the good life?
     
    Last edited: May 15, 2014
  7. Sidereal

    Sidereal Senior Member

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    Hideous quackery.
     
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  8. Valentijn

    Valentijn Senior Member

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    My interpretation was that the junior doctors would be suckered into investigating and treating symptoms, so the senior doctors should take control to prevent that. Also that they want to keep the unmanageable patients coming in often enough that they don't get fed up and look for a doctor who will actually treat them.

    The part regarding benefits might be a concession that their usual stance regarding benefits doesn't work. If they don't help, we stop trusting them, we find a new doc, and we keep fighting for benefits. So her suggestion might be to end the benefits fight as early as possible, so that we don't have to keep believing we're sick to get on them, and can move on to our Magical Cure of Wonder.
     
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  9. Esther12

    Esther12 Senior Member

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    Yeah - I've been so successful managed into avoiding medical interventions (largely as a result of reading Wesslely papers and thinking 'I'd do anything to avoid that') that I can forget that people can end up having a lot of expensive stuff, and doctors can see avoiding that as really important.
     
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  10. Valentijn

    Valentijn Senior Member

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    It's not just the expense. Investigation puts us at risk of either having proof of pathology or being "harmed" by thinking that being investigated means we must be ill. And they absolutely freak out about the prospect of us becoming permanently hysterical over "minor" abnormalities!
     
  11. Esther12

    Esther12 Senior Member

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    My partner was just wondering if this meant that MUS were more common amongst us especially sexy people. Has there been a study? It is a psychosocial burden.
     
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  12. Simon

    Simon

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    Your partner may be on to something - and surely this is a worthy topic for a PhD thesis. I hope someone rises to the challenge.
     
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