Severe ME Day of Understanding and Remembrance: Aug. 8, 2017
Determined to paper the Internet with articles about ME, Jody Smith brings some additional focus to Severe Myalgic Encephalomyelitis Day of Understanding and Remembrance on Aug. 8, 2017 ...
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2 Recent questions to UK Secretary of State for Health

Discussion in 'Latest ME/CFS Research' started by MeSci, Oct 13, 2017.

  1. MeSci

    MeSci ME/CFS since 1995; activity level 6?

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    http://www.parliament.uk/business/p...s/written-question/Commons/2017-10-11/107232/
    Justin Madders: To ask the Secretary of State for Health, what
    assessment he has made of the effectiveness of support provided by his
    Department for individuals suffering from myalgic encephalomyelitis to
    access further education.

    http://www.parliament.uk/business/p...s/written-question/Commons/2017-10-11/107238/
    Justin Madders: To ask the Secretary of State for Health, when NICE
    plans to update its guidance on myalgic encephalomyelitis.
     
    FTY, suseq, Jan and 11 others like this.
  2. MeSci

    MeSci ME/CFS since 1995; activity level 6?

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    Cornwall, UK
    slysaint and Esther12 like this.
  3. MeSci

    MeSci ME/CFS since 1995; activity level 6?

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    There is now an answer to the first question:

    Steve Brine

    The National Institute for Health and Care Excellence (NICE) guideline
    on Chronic Fatigue Syndrome/Myalgic Encephaolomyelitis, published in
    2007, makes a number of recommendations in regard to accessing
    education. The clinician overseeing an individual's care should provide
    information on returning to work or education and recommend flexible
    adaptions that would make this possible. This may include, with consent,
    clinicians liaising with education providers and support services. The
    ability of a person to continue in education should be addressed early
    and reviewed regularly.

    The NICE guidance set outs best practice for clinicians on the
    diagnosis, treatment care and support of people with the condition and
    supports commissioners to to plan services for local populations. The
    full guidance can be found at the following link:
    http://www.nice.org.uk/guidance/cg53

    On 20 September 2017, NICE announced its decision to undertake a full
    update of the guidance. More information on this decision can be found
    at the following link:
    http://www.nice.org.uk/guidance/cg5...nt-2007-nice-guideline-cg53-pdf-5964455783941
     

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