1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
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Can You Come for a Visit? My ME/CFS Says No
My daughter and son-in-law just had a baby last week. We are thrilled. But we won't be able to see the baby or hold her any time soon. We won't be able to take over little gifts or help out with housework or babysitting.
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197 Professionals and Advocates Send New Letter to Sebelius

Discussion in 'Institute of Medicine (IOM) Government Contract' started by slayadragon, Jan 2, 2014.

  1. slayadragon

    slayadragon Senior Member

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    A new letter dated December 26, 2013, has been sent to Secretary Kathleen Sebeliius regarding the government's attempts to re-define ME/CFS.

    >This letter repeats the request from the previous letter from experts and from the previous letter from advocates that the Department of Health and Human Services (HHS) adopt the Canadian Consensus Criteria (CCC) for the disease, rather than having the Institute of Medicine (IOM) develop a new definition.

    >The letter also states specific objections to the provisional slate of committee members announced to the public by IOM; asks for an increase in government funding for biomedical research into the disease; and requests that the government consistently call the disease by its proper name, Myalgic Encephalomyelitis (ME).

    >The signers of this new letter include fourteen of the individuals who signed the “experts’ letter” as well as the majority of those who signed the “advocates’ letter.”

    http://paradigmchange.me/wp/?p=334

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