Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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12 Things You Should Never Say to Someone with a Chronic Health Condition

Discussion in 'Lifestyle Management' started by RustyJ, Dec 19, 2014.

  1. RustyJ

    RustyJ Contaminated Cell Line 'RustyJ'

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    Noosaville, Aust
    This is almost a year old, and I am not sure if its been posted before, but I thought it hit the nail on the head. I think Ive had all of these said to me, except for the skin condition one below.

    http://www.healthline.com/health-news/ms-12-things-not-to-say-022814#2
     
  2. barbc56

    barbc56 Senior Member

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    Wow! I think I have heard every single one of these. Now I need an article on how to respond without my blood pressure going sky high.

    Yes, eyebrow waxing is indeed painful.:D

    Thanks @RustyJ
    Barb
     
    taniaaust1 likes this.
  3. jerrymcfadyen

    jerrymcfadyen Senior Member

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    East Bend, NC USA
    My constant favorite is ...
    2. “You don’t look sick to me.”
     
    ebethc, RustyJ, AndyPandy and 2 others like this.
  4. Little Bluestem

    Little Bluestem Senescent on the Illinois Prairie ❀❤✿Ƹ̵̡Ӝ̵̨̄Ʒ✿❤❀

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    Midwest, USA
    I don't have a problem with ...
    4. “I’m sorry.”
    Funerals are not the only place the condolences are appropriate.
     
    ahimsa likes this.
  5. taniaaust1

    taniaaust1

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    Sth Australia
    I got one which cut said to me by my nanna this week when I was asking for "necessary" accomendations for my illness and disability

    "Dont be so selfish, think of your family."

    ..........

    That "Im sorry" one wouldnt bother me, "You're so brave" doesnt bother me either thou I dont resonate to it at all.

    The ones on that list which bother me the most when I get them from people are "It could be worst" and "I get tired too" (so a different way of saying "I know exactly what that feels like when you tell someone you have ME/CFS.. and unfortunately I find this one very common.).

    I get the "You are looking better" or "You are looking great" one often from nanna. I dont like that at all but cause she's the only person I usually get that one from, it doesnt bother me as much.
     

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