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"101 Misconceptions About M.E." (February 17 blog post)

Discussion in 'General ME/CFS News' started by Dolphin, Feb 19, 2016.

  1. Dolphin

    Dolphin Senior Member

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    Hutan, erin, meg22 and 21 others like this.
  2. Mrs Sowester

    Mrs Sowester Senior Member

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    • There must be some secret, sinister reason why people with ME tend to stay at home and use the internet a lot
    • Probably the same reason they don’t buy many shoes

    Made me laugh :lol:
     
    Comet, Valentijn, moosie and 9 others like this.
  3. Jeckylberry

    Jeckylberry Senior Member

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    I like the one where you'll be pleased to know your bloods are normal. I can relate. Damn you, bloods!
     
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  4. barbc56

    barbc56 Senior Member

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    I never bought many shoes even before my illness but now I'm basically down to slippers and tennis shoes. I often wear just wear socks around the house. I prefer to think of myself as a minimalist!

    @Dolphin Thanks for another good thread!
     
    Comet, moosie, Vaiders and 3 others like this.
  5. Scarecrow

    Scarecrow Revolting Peasant

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    Or as my GP notes go:

    "I reassured the patient that all blood tests were normal. The patient was reassured."
     
    Mel9, Comet, Valentijn and 12 others like this.
  6. barbc56

    barbc56 Senior Member

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    Not to get off topic but I have a copy of a cscan that says:

    "The uterus appears to be missing".

    Rather wishy-washy isn't it?

    I read a funny article about these type of bloopers so need to find it. Real or not, they were hysterical!

    I'll have to find an appropriate place to put it as I'm not sure it's threadworthy.
     
    Mel9 and Comet like this.
  7. Jeckylberry

    Jeckylberry Senior Member

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    :rofl: So reassuring! I'm sure you came out of there with a whole new attitude!

    They think we fret over our bloods being abnormal, bless their little white coated hearts. It makes them feel reassured if we can give them normal bloods.
     
    Mel9, Comet, barbc56 and 2 others like this.
  8. worldbackwards

    worldbackwards A unique snowflake

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    Earth
    Enjoyed that. Some personal favourites:
     
    Jeckylberry, Comet, Valentijn and 8 others like this.
  9. Invisible Woman

    Invisible Woman Senior Member

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    One of my personal favourites over the years has been "CFS is just something that happens to women of a certain age. You'll get over it." :bang-head:
     
    Jeckylberry, Mel9, Comet and 3 others like this.
  10. hellytheelephant

    hellytheelephant Senior Member

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    How about: ' So you haven't really learnt how to manage your energy.':aghhh:
     
    Jeckylberry, Mel9, Comet and 2 others like this.
  11. moosie

    moosie

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    I laughed my head off reading this! I so needed to laugh. Started reading it calmly - 'yes', 'yes', 'yes', - by the time I got to no. "79. So that's all right then" I was literally crying with laughter. It's so well written. I get very fed up about all this crap and to have it pointed out how stupid it really is did me the power of good. Everything is just as awful as it was before I read it but somehow my heart is a little lighter. Thank you again spoonseeker :)
     
  12. justy

    justy Donate Advocate Demonstrate

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    A really great blog post, have shared on FB - seems a good way to raise awareness.
     
  13. Comet

    Comet I'm Not Imaginary

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    6. People with ME don’t want a psychiatric diagnosis because of the stigma
    7. Because we don’t have enough stigma already from having ME

    The infallible logic of pseudoscience will surely make us think it has cured this disease. :rolleyes:
     
    Last edited: Feb 20, 2016
  14. A.B.

    A.B. Senior Member

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    When many complain about PACE, the criticism can be ignored because it's coming from an organized campaign.
    When few criticize PACE, the criticism can be ignored because it's only a small vocal minority.
     
  15. Old Bones

    Old Bones Senior Member

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    Three other misconceptions about ME came from a "Yoga Guru" (also a medical doctor) visiting a local studio. He advised that ME doesn't occur in India. He further stated that ME is an illness that is caused by:
    • living in an affluent society -- told to me after asking how many vehicles our household had (two -- both old "rust buckets"), and after noticing my hands were "soft", meaning I didn't do much manual labour
    • sexual abuse by parents in childhood (no explanation given)
    • being weak due to having been born in the wrong month of the year (in my case winter, when sun exposure was reduced)
    I had attended a few restorative yoga classes, and one of the studio owners suggested I pay for a private consultation with this "joker". They treated him like a god. The whole consultation was recorded on video, which we still have. It took quite some time before we were able to laugh about it. The video shows me being coached (by his assistant) through the personal yoga program he devised for me, while he watched from a distance -- a series of contortions no body should be expected to perform. When I started to shake uncontrollably partway through, he asked if I was on drugs. I later showed my program to the yoga studio owner, and she stated it was the most strenuous she had ever seen, suitable only for an extremely-experienced yoga practitioner. That further reinforced his inaccurate opinion about ME. I spent five days on the couch recovering from this abuse, and I never returned to the yoga studio. In fact, when they phoned some time later to entice me back, I gave them a "piece of my mind" about their guru. I wasn't polite!
     
  16. Jeckylberry

    Jeckylberry Senior Member

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    @Old Bones : what is he saying? If you follow his logic, if ME is caused by sexual abuse and car fumes, and no one at all has ME in India, then that means they don't have those things in India.. Interesting since the online news channels have been reporting on it. You wouldn't think they'd bother if no one gets it.

    http://timesofindia.indiatimes.com/...a-biological-illness/articleshow/46418076.cms

    These quacks won't get challenged in their shonky ideas if they deal mainly with healthy people! He got all enthusiastic about curing you but brought no intuition, observation or even respect to the interaction. Not enough healing practitioners of any persuasion are open and teachable. Too many masters for something they don't know enough about. Ignorance and enthusiasm is a dangerous combination.

    It's just another example of the conceit of the well.
     
  17. Old Bones

    Old Bones Senior Member

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  18. Jeckylberry

    Jeckylberry Senior Member

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    Yes, true, arrogance is being ignorant only you don't know it then act under that conceit. Enthusiastically!
     
    Mel9 likes this.
  19. barbc56

    barbc56 Senior Member

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    Possibly the Dunning Kruger effect also called the arrogance of ignorance, plays into this.

    I agree that this is prolific with many alternative practioners but there is a continuum and the medical profession doesn't get a pass on this. First year medical students might fall under this effect.

    When I started my studies at the university in psychology, after a few courses, I thought I had most of the answers when it came to human behavior. Pretty obnoxious. :rolleyes: By the time I graduated, actually by the end of the year, I realized that human behavior is complex, unpredictable and there is no one answer for everything. Just as most of life. I didn't study therapy but know several who have and they say the same thing. There are more unanswered questions than answered questions.

    This is supposed to be a common occurance, whatever the area of study as well as other fields when first starting.

    QUOTE]The Dunning–Kruger effect is a cognitive bias whereby relatively unskilled people suffer from illusory superiority, mistakenly assessing their ability to be much higher than it really is. Dunning and Kruger attributed this bias to a metacognitive inability of the unskilled to recognize their own ineptitude and evaluate their own ability accurately. Their research also suggestscorollaries: highly skilled individuals may underestimate their relative competence, erroneously assuming that tasks which are easy for them are also easy for others.[/QUOTE]

    https://en.m.wikipedia.org/wiki/Dunning–Kruger_effect

    ETA Some, I won't point fingers here, are just plain arrogant as well as wearing blinders

    ETA I have this thread confused with another one. Hint: First year medical student. There are so many threads, I can't keep them straight. But it's positive as there have been so many developmens in such a short period of time and the information is appreciated!
     
    Last edited: Feb 21, 2016
  20. Jeckylberry

    Jeckylberry Senior Member

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    Figures there's a name for it!
     
    barbc56 likes this.

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