Discussion in 'General ME/CFS News' started by Tom Kindlon, Oct 8, 2016.
It feels odd to have my story featuring in this when the journalist didn't interview me.
It's a pity it doesn't mention our reanalysis http://www.virology.ws/2016/09/21/no-recovery-in-pace-trial-new-analysis-finds/ , led by Alem Matthees, which found that CBT or GET didn't lead to recovery in the PACE Trial. However the article may have been written before this data was released.
Reading it, I had assumed that they'd spoken to Tom.
Some off details in that too.
They needed you to put them straight Tom!
This magazine is notorious for being full of scare-mongering & pseudoscience. It's terrible. If I knew nothing about me/PACE, and saw this published there, I'd assume the criticisms were unfounded. It's good the word is getting out there but it's a shame it's through this particular publication!
The magazine's title is a dead giveaway, even if one is not acquainted with the contents.
We can expect anti-doctor and anti-psychiatry groups to pick this up more and more, though its also the case that more moderate and careful media will also do so. On the specific publication (WTDDTY) I have nothing to say as I have not investigated myself. I will say that the public needs to be educated about the medical system, including its failings, as do doctors themselves. As long as the reporting is accurate I am not much worried about articles in more dubious media sources, and this looks like a good article. If it gets too hyped then I become worried, for just as we were against the PACE findings for rational reasons, so we should be against anti-PACE hype. The facts are enough.
The biographical details looked like a paraphrasing of those in the David Tuller article, I'd guess they mainly copied that, changed it a bit, and threw in a couple of other things they found from other sources. Kind of on the level of a lazy student.
From David Tuller:
Looks like you've got a year older (43 to 44) and gone from "bulky" to "strapping", so good for you .
That, Sir, is an excellent post!
Somebody sent me this:
I don't feel inclined to do it myself at the moment but somebody else could if they wanted.
Given that a comment above shows the article is basically plagiarised from David Tuller's one, a reckon he's not a good 'journalist' to target.
Out of interest, is Ben Goldacre & the All Trials campaign aware of the re-analysis? Given their aims are for all trials to be published & the data made available, a large-scale studying fighting not to release their data, then when that data is re-analysed it shows their conclusions were wrong, seems right up their street.
Goldacre's chummy with Wessely, and completely refuses to engage regarding PACE.
Urgh. That's disappointing. I respected Goldacre as a doctor campaigning for science before vested interests. I guess not.
Yeah, a lot of people feel the same way. The hashtag #AllTrialsButPACE was fairly popular among ME twitter users for a while
Somebody has told me it has now appeared in the Polish edition of the magazine:
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