Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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‘CFS patients feel increasingly isolated’ FemaleFirst.co.uk (Talkhealth Survey)

Discussion in 'General ME/CFS News' started by Firestormm, Sep 20, 2013.

  1. Firestormm

    Firestormm Guest

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    Cornwall England
    Not bad... am too tired to do this properly. But here's the ME Associations copy:

     
    JaimeS likes this.
  2. minkeygirl

    minkeygirl But I Look So Good.

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    Left Coast
    Well duh.
     
  3. alex3619

    alex3619 Senior Member

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    Logan, Queensland, Australia
    Actually if its only 70% thats a surprising finding, even if not a scientific finding. I was thinking more like 90%+.

    As for specialist CFS services, well, let the patient beware.
     
  4. PennyIA

    PennyIA Senior Member

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    Iowa
    What I like about it ... is that it's giving what seems to be an honest face to the condition in the media (which is too rare). I would love to think that if my loved ones read that - that they would ask me more questions about my health issues and try to learn more.
     
    JaimeS, Bob and alex3619 like this.
  5. The findings from our survey in The Netherlands are similar.

    Obviously these results are according to our expectations, but it is important to collect and post them regularly so that the rest of the world hears of it.
     

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