‘CFS patients feel increasingly isolated’ FemaleFirst.co.uk (Talkhealth Survey)

[Firestormm]

Not bad... am too tired to do this properly. But here's the ME Associations copy:

‘CFS patients feel increasingly isolated’ | FemaleFirst.co.uk | 20 September 2013

From ‘FemaleFirst.co.uk’, 20 September 2013. Story by Taryn Davies.

Sufferers of Chronic Fatigue Syndrome (CFS) are feeling increasingly isolated due to their family and friends’ lack of understanding of their condition, a study has revealed.

The study, carried out by talkhealth, one of the UK’s leading online social Health communities, revealed that a massive 70 per cent of CFS sufferers felt that their family and friends did not understand their condition and appreciate the affect it had on their lives.

Furthermore, nearly half of the respondents felt that their condition had not been taken seriously by a medical professional, adding to their feelings of isolation.

The study showed that the top five most common symptoms experienced by CFS sufferers are tiredness after exertion, un-refreshing sleep, muscle and joint pain, chronic physical exhaustion and cognitive difficulties such as memory loss...

 

[minkeygirl]

Well duh.

 

[alex3619]

Actually if its only 70% thats a surprising finding, even if not a scientific finding. I was thinking more like 90%+.

As for specialist CFS services, well, let the patient beware.

 

[PennyIA]

What I like about it ... is that it's giving what seems to be an honest face to the condition in the media (which is too rare). I would love to think that if my loved ones read that - that they would ask me more questions about my health issues and try to learn more.

 

[Guido den Broeder]

The findings from our survey in The Netherlands are similar.

Obviously these results are according to our expectations, but it is important to collect and post them regularly so that the rest of the world hears of it.