1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
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ME/CFS: A disease at war with itself
We can all agree that ME/CFS is a nasty disease, particularly in its severe form, but there are abundant nasty diseases in the world. What is unique and particularly confounding about our disease is that so much controversy surrounds it, and not only surrounds it, but invades it too.
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‘CFS patients feel increasingly isolated’ FemaleFirst.co.uk (Talkhealth Survey)

Discussion in 'General ME/CFS News' started by Firestormm, Sep 20, 2013.

  1. Firestormm

    Firestormm Guest

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    Cornwall England
    Not bad... am too tired to do this properly. But here's the ME Associations copy:

  2. minkeygirl

    minkeygirl Is Jim Jones alive and well on PR?

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    Left Coast
  3. alex3619

    alex3619 Senior Member

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    Logan, Queensland, Australia
    Actually if its only 70% thats a surprising finding, even if not a scientific finding. I was thinking more like 90%+.

    As for specialist CFS services, well, let the patient beware.
  4. PennyIA

    PennyIA Senior Member

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    Iowa
    What I like about it ... is that it's giving what seems to be an honest face to the condition in the media (which is too rare). I would love to think that if my loved ones read that - that they would ask me more questions about my health issues and try to learn more.
    Bob and alex3619 like this.
  5. Guido den Broeder

    Guido den Broeder *****

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    Rotterdam, The Netherlands
    The findings from our survey in The Netherlands are similar.

    Obviously these results are according to our expectations, but it is important to collect and post them regularly so that the rest of the world hears of it.

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