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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. Inspired

    Slurred speech/dysarthria

    Wow, Helencz - your symptoms sound so much like mine 2 years ago. It was a challenge to diagnose..they symptoms appeared to be caused by a lesion in the pons (part of the brainstem). Other conditions had to be ruled out, such as myasthenia gravis & Lyme. You mentioned that your doctor doesn't...
  2. Inspired

    Weird neurological symptoms

    @optimist, There definitely were foods that made me feel hyper. This included raw kale, hemp protein powder, grains, methyl folate supplement... Good luck with your investigation. I wish you lots of patience.
  3. Inspired

    Weird neurological symptoms

    @optimist, very interesting that doc called you back. Let us know what happens at your appointment...
  4. Inspired

    Riding in car causes draining fatigue.

    I'm glad you mentioned this , Sue. This was an issue I used to have riding in the car, especially on the highway, or riding on the train. It was helpful to stare at a fixed point on the dashboard. Boring, but it helped :)
  5. Inspired

    Weird neurological symptoms

    Optimist, thanks for sharing the video. I experienced several of the symptoms you described. I remember researching and finding many possible causes. My symptoms matched several conditions (I had many symptoms in addition to what you listed). I channeled my inner Nancy Drew meets...
  6. Inspired

    Nutreval Interpretation Guide

    Caledonia, thank you so much--that is a fantastic document!
  7. Inspired

    Nutreval Interpretation Guide

    Lynne, MetaMetrix labs says, "High urinary excretion of 3-methylhistidine indicates active catabolism of muscle and is a marker for skeletal muscle breakdown"