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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. Furball

    Lyrica -- ( Pregabalin )

    I must admit reading " abnormal style of walking" & " changes in sexual interest" did make me chuckle
  2. Furball

    Lyrica -- ( Pregabalin )

    Thank you. Fingers crossed it permanent. I just read some of the side effects... Some bizarre one in there
  3. Furball

    Lyrica -- ( Pregabalin )

    Hi all, I hope it's ok to post about this in this subsection of the forum. Basically if anything my ME has gotten worse & I spoke to my Doctor as I know that codeine is highly addictive & I noticed that I was getting that way. It does help with pain but its not making the condition go away...
  4. Furball

    Disability allowance appeal tomorrow

    It was a DLA form. Well after my appeal , when the panel said that I should claim for mobility as my mobility has got worse since my initial claim, I sent a letter & was asked to fill in another form which was of course declined. I then sent them a letter explaining that it was in the panels...
  5. Furball

    Disability allowance appeal tomorrow

    Hi Anna, Hope your well It seemed to be a new kind of assessment form & think it stated that its going out to everyone . I'll see how I feel on the day but if I'm not doing to well he can talk to me while I'm in bed
  6. Furball

    Disability allowance appeal tomorrow

    I got sent a new form which I filled in & then a letter arrived saying that I would receive a letter ( any trees left?) with a date for appointment for a ATOS doctor to visit me. It always seems so threatening whenever ATOS are involved , almost Gestapo-like . Most if them are desk sitting , pen...
  7. Furball

    Disability allowance appeal tomorrow

    Hello all, I hope everyone is doing ok. As I've now worked out the mobile version of this forum I can post from my phone which helps when I'm in bed. Anyways I have a visit from an ATOS doctor next week , this came about after filling in a novel / form. Has anyone experienced this type of...
  8. Furball

    Pimples & Acne

    My doc has perscribed me some antibiotics which I'm not best pleased about but it's only a 1 week course. He thinks it was just be an extension CFS and hopes the course will clear it up. I sometimes think as if CFS /ME is just like a constant infection that works it's way around the body...
  9. Furball

    Pimples & Acne

    Hello all! I hope everyone is coping ok. I've been up & down of late but getting on with it. So new to my inventory of symptoms are large pimples over my chest ,acne like things ( I've never suffered from that in my life before now. Some of these buggers are scaramanga-esque!!! ) Anyone else...
  10. Furball

    UK BBC1 8:30pm Mon 28 Jan: Panorama - The Great Disability Scam?

    I couldn't believe the 1st girl , with severe learning difficulties ,who was told to be actively seek work!! Sickening. The comment " We can't look at each case individually" Horrific attitude . They must waste so much money on these appeals. Why isn't a doctor or specialists word listened...
  11. Furball

    Disability allowance appeal tomorrow

    Wow that programme on Bbc 1 Panorama " The great Disability Scam" had some very shocking attitudes by social Services etc. Truly disgusting :(
  12. Furball

    Hobbies

    I also play games but I find my attention wanders after a bit, actually in most things I now struggle to " get into" things due to being foggy
  13. Furball

    Hobbies

    Just wondered if anyone has anything they do while suffering? I used to play instruments & play a lot if sport ( football ,cricket etc) but of course that now is impossible, I've recently got a bird feeder station as I love wildlife & it's nice to help them out in winter & I've become a bit if...
  14. Furball

    do your symptoms increase when sick with cold/flu?

    I've had a cold for weeks now & it really floors me.. My joint pains seem to get more exaggerated & general fatigue. I can't really do too much when I'm like this & it's annoying.
  15. Furball

    Hydrotherapy -- Anyone had this

    Hi Sushi, to be honest I'm not really sure what type I'm having. They did say that it'd be fairly mild. I guess I'll find out soon enough
  16. Furball

    Disability allowance appeal tomorrow

    Great news Anna . Really pleased for you :)
  17. Furball

    flu shots - have you reconsidered this year?

    Darn! I was advised to have it & have since had the shot! Time will tell I guess.
  18. Furball

    Hydrotherapy -- Anyone had this

    Morning , So I'm booked in for this next week & wondered if anyone has any feedback on it. I did try to go for a swim a while back but I felt awful after 20 mins & spent the next 3 days in bed. I'm guessing its very mild exercise in a Luke warm pool. Thanks for any input
  19. Furball

    I found something that makes me feel significantly more energetic and happier

    I have heard that high % chocolate helps but sadly it didn't do anything for me
  20. Furball

    Disability allowance appeal tomorrow

    My key points were ( as people have stated on this thread ) that a lot of us struggle with repeating ,say , walking 50m or that preparation of a meal is possible but not always & ,myself would prefer someone around as I can get extremely forgetful . My mobility has become more of an issue but...
  21. Furball

    Numbness and tingling as dominant symptom.

    Hello, I had the tingling / numbness for about 6 months in my hands & right calf muscle. It's only on reading this thread that I realised that I no longer have it. I did mention it to My Doctor but to be honest it was just one of a long list of symptoms .
  22. Furball

    Disability allowance appeal tomorrow

    Well I'm back home & having a lie down. So, they " awarded" me the lowest rate but backdated from July last year, they did state however that I could appeal to have it upgraded as its clear that my condition has decreased since then & they suggested that I do so ( I thought that was very kind...
  23. Furball

    Disability allowance appeal tomorrow

    I'm out..... Phew that was eventful. Having a well earnt coffee at the moment. I got DLA... Will go into detail once I'm home... Long day. Thank you all so much for the advice. Furbie XX
  24. Furball

    Disability allowance appeal tomorrow

    Whoever wrote it was definatley in the UK this Summer
  25. Furball

    Disability allowance appeal tomorrow

    This is all excellent help, thank you so much. I haven't been out once since Friday & that was only as I had access to a car. I know tomorrow is probably going to put me in bed for a while but I really feel strongly about doing this, not just for me, mostly because the farcicality of...
  26. Furball

    Disability allowance appeal tomorrow

    Point taken Sasha, I'll look at it now. I guess a court room is not the place to vent frustration . Thanks for reminding me what's key here :)
  27. Furball

    Disability allowance appeal tomorrow

    I wouldn't get too stressed about it Anna. If there's one thing I've learnt with ME it's that humour is a must! Some of the symptoms are laughably bizarre from being too tired to eat a sandwich as all your energy went on making it to having the mind of stoned Goldfish . It is frustrating yes...
  28. Furball

    Disability allowance appeal tomorrow

    Ain't that the truth! The amount of re re tests " Just incase" The thing with ME that I struggle with is that it's hard to adapt as there is rarely stability. If I were missing a limb , I would lean to cope & adapt but with ME your physical or mental limits are constantly changing probably...
  29. Furball

    Disability allowance appeal tomorrow

    Thanks to both of you. Yup, I'm in the UK :)
  30. Furball

    Disability allowance appeal tomorrow

    Thanks Sasha, yes the repeated thing is a key issue with me. This week I've been out once since Friday & that's me done.... I'm feeling quite ill at the moment so I know the hearing will pretty much wipe out the next 3 days or so after. I think the process of " having to prove that you're ill"...