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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. S

    Is it a new disease or its CFS ?

    http://www.thebody.com/Forums/AIDS/Meds/Q193021.html?ic=2003 mycoplasma
  2. S

    Is it a new disease or its CFS ?

    http://www.whiteoutpress.com/articles/q22013/mysterious-hiv-negative-aids-infects-millions
  3. S

    Is it a new disease or its CFS ?

    http://vlgonvalcyte.wordpress.com/2012/06/28/man-down-millions-more-going-down-from-gwicfsautismlymeptsd/
  4. S

    Is it a new disease or its CFS ?

    Does anybody have any new information? Has anybody ever had there lymph nodes biopsied? wyomingscared any new symptoms or anything? Tee
  5. S

    Is it a new disease or its CFS ?

    ravikumarsu thank you for the update. I read the article, but could use help in understanding it. So far they are leaning towards some type of bacterial infection? Also they don't believe its infectious? Was there anything in the study that separated patients or did they all seem to fall in...
  6. S

    Is it a new disease or its CFS ?

    Hip I thought the same thing, sounds similar to that autoimmune deficiency found in Asians. So the original culprit works very similar to that of HIV? Right? In some way. By the way I test negative on the ppd test, always have. A chest x ray rules out wether a positive ppd is active or latent...
  7. S

    Is it a new disease or its CFS ?

    Hip have you had any recent follow ups since this last report, or have you heard of any new information about the study and possible cause yet. Thank you for the information
  8. S

    Is it a new disease or its CFS ?

    Sorry I met to say IFN-y that type of antibody?
  9. S

    Is it a new disease or its CFS ?

    Hip how did you find that article? Do you know anything about FIN-Y? Several have tried to reach out to immed.org, no help
  10. S

    Is it a new disease or its CFS ?

    urraco2012 sorry don't have the best resources at the moment thank you. Lol. I sometimes feel like there will never be a resolution to this thing. The only thing I'm banking on is the results of the gene sequencing test eraser went for. I try to piece bits of information together, but I have...
  11. S

    Is it a new disease or its CFS ?

    Wonder what type of pain and symptoms?
  12. S

    Is it a new disease or its CFS ?

    urraco2012 where are you from? Keep us posted on this story, you said they didn't announce the cause?
  13. S

    Is it a new disease or its CFS ?

    wyomingscared how did you're colleague contract his virus?
  14. S

    Is it a new disease or its CFS ?

    Does anybody still come on here? Anybody heard from hip,Collegeusername, ron,Omar or sherezade? Any ideas on creating a website?
  15. S

    Is it a new disease or its CFS ?

    @unrraco I was trying to show that according to Luc montagnier this has nothing to do with retroviral activity, so BOSTON states she was told after the studied her blood. Her exposure being sexual. If this were true, what other viruses mimic transmission, symptoms and chronic? If it were not...
  16. S

    Is it a new disease or its CFS ?

    Read this link, lengthy but good, answers some of our questions if you believe BOSTON illness following sexual exposure. Referred me back to hhv6 research. http://www.mecfsforums.com/index.php?topic=12278.15
  17. S

    Is it a new disease or its CFS ?

    wyomingscared you mean individual templates or a group one. I would like to create a survey for us with questions regarding symptoms, test exposure and timing and whether partner developed symptoms. Like a website that keeps it all on percentage. Like 95% experienced weight loss, 80% oral...
  18. S

    Is it a new disease or its CFS ?

    I guess I shall assume that nobody has come across a doctor that believes them? O know I never have.
  19. S

    Is it a new disease or its CFS ?

    http://arstechnica.com/science/2013/03/mississippi-doctors-functionally-cure-a-toddler-of-hiv/ Ok see at the beginning of this article it says " Mississippi doctors are reporting that they cured a baby of HIV etc etc" my point. Why can't there be an article that says " doctors report several...
  20. S

    Is it a new disease or its CFS ?

    ukxmrv yes frustrated. CFS has a lot of things going on, which seems very complicated and all though common, most don't appear to be sexually contagious from my understanding. CFS seems to have many things involved, each person has many things in common, but some differences. I'm frustrated at...
  21. S

    Is it a new disease or its CFS ?

    Ok so nobody found one doctor who cared, at all? Not one that believed you?
  22. S

    Is it a new disease or its CFS ?

    http://www.umassmed.edu/news/2013/research/retrovirus-in-human-genome-active-in-pluripotent-stem-cells.aspx
  23. S

    Is it a new disease or its CFS ?

    I wish that were the case, it would be so much easier. If we could find one doctor that believes our story maybe they can get the ball rolling.
  24. S

    Is it a new disease or its CFS ?

    Can anybody please answer that ques, I want to if anybody has come across one doctor or someone in the medical field that believes them? Anybody who has tried to help them? All it takes is one person in the medical field that cares to make a difference.
  25. S

    Is it a new disease or its CFS ?

    I'm always trying to find articles on research and can never find any except for aids phobia and mystery illness all in the head. Just seems like nobody in the medical field is putting 2+2 together. To everybody, has anybody come across a doctor that has taken them seriously when you told them...
  26. S

    Is it a new disease or its CFS ?

    Not quite sure what I was supposed to get out of that article except I'd say Agatha is one lucky lady, if only we could all be like that.
  27. S

    Is it a new disease or its CFS ?

    Omar88 are you having bad side effects? Is it helping at all?
  28. S

    Is it a new disease or its CFS ?

    http://www.newdaynews.com/openhouse/index.cgi/noframes/read/23553
  29. S

    Is it a new disease or its CFS ?

    http://ehealthforum.com/health/unknown-chronic-disease-i-know-that-i-am-really-sick-t352848.html A story that has caught my eye more than once.
  30. S

    Is it a new disease or its CFS ?

    http://www.life-sources.com/pages/Mycoplasmas-%26-Cell-Wall-Deficient-Forms.html