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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. L

    Is it worth the trip/cost to Dr Montoya Stanford Clinic???

    I've seen Dr. Montoya for years, and he is an incredibly nice man, but his range of knowledge is really limited to infectious diseases and anti-viral treatment. I like to check in with him nonetheless (since I live in the area) but he's now having patient seen Dr. Bonilla, who I really...
  2. L

    Gordon Medical Associates (Collaborator with WPI) - Mikovts lecture and XMRV Findings

    anybody else finally get their Gordon Medical results? I got mine; negative on both antibodies and direct PCR for XMRV. Apparently, in advance of Judy M's presentation, everyone is being notified if they were in the study.
  3. L

    Antivirals for MLV-related Viruses (CFS type 1 to 4)

    I've been on Immunovir (also spelled Imunovir sometimes) for several years now and it really seems to help. Also been on low does Valtrex on and off, but that doesn't seem as clearly helpful. Neither one has brought my EBV or CMV titers down significantly. Immunovir is an immune modulator, not...
  4. L

    Already in a study, but no results. Shall I get VIPdx test if I can?

    Dr. G's study has about 200 people in it total, a mix of CFS patients and healthy controls. As I understand it, most of us are still waiting for results from WPI.
  5. L

    Already in a study, but no results. Shall I get VIPdx test if I can?

    I'm in this same study, and I hear this week from the practice that the results from the WPI are imminent and that an ARV trial is also in the works. Whether to believe that, I don't know. I guess the proof will be in the pudding. Until the PNAS paper, I think it would have been hard to push...
  6. L

    XMRV Study No. 4

    Today's Virology Blog by Vincent Racaniello has a very even-handed report up, mentions Dr. Goff's thoughts: http://www.virology.ws/2010/02/26/xmrv-not-detected-in-dutch-chronic-fatigue-patients/