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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. E

    Is it a new disease or its CFS ?

    What exactly are your symptoms?
  2. E

    emergency report from China

    I am better for the moment, but still weak and sleepy but can't sleep during the night, I fall asleap easly but wake up everynight around 3 and can't fall asleap again. When my problems started again last year in November, finally the third doc. diagnosed me with mycoplasma but without...
  3. E

    Is it a new disease or its CFS ?

    Yes I confirm I was good last three years. I took b12 injections and vitamins and magnesium. I had quite normal life but not completely recovered.
  4. E

    Is it a new disease or its CFS ?

    My cd4/cd8 were low 3 months after the infection but the ratio was ok. cd4 were 545 and cd8 sth like 300. I don't have any acute phase blood done, didn't know it exists. My condition for the moment has changed a bit: instead lower body temp I have constantly low grade temperature 37,3C just as...
  5. E

    Is it a new disease or its CFS ?

    In fact it is the only thing we can do. I used to try to follow the same path, I was one of the first in this forum with the symptoms, you can check my old posts written as madday. A also spent lot of money for the specialists and tests. My symptoms were very severe, during 4 months I couldn't...
  6. E

    Is it a new disease or its CFS ?

    I think youare too optimistic Omar88. I am struggling with my disease for almost 7 years now, also thought the more we are the bigger chance is somebody would help or at least try to help. I used to post at different forums write many letters to medical research centers and agendas all of them...
  7. E

    emergency report from China

    My Thyroid is ok according to the tests. I have all of my blood analyzes OK, done one month ago. What are your symptoms, can you write the whole story how it started and progress? Did you have an period of relief? In my case it looek like non-HIV AIDS although this time, after 2,5 years of...
  8. E

    Is it a new disease or its CFS ?

    Hello to everyone, I have experience with the starange new disease since 2006. After 4 years (around 2010) I became to feel much better. Now, two months ago the more less similar symptoms came back, what is more my girlfriend started to have similar symptoms can't recover since 2 months. This...
  9. E

    emergency report from China

    Hi Hip and all of you! What you wrote about Hanchuchu is what I have said in my previous post. I know your forum, we shared emails few years ago (I dont remember I wrote to you as madday or edward). Then I have stopped as I have started to feel much better, and even believed I got rid of the...
  10. E

    emergency report from China

    I am from Poland. I have just checked history of my results. I was wrong as for the cd4/cd8 count three months after infection. CD4 was 549, CD8 345 the ratio 1,59 which might be seen as normal but just above the norm. Don't know what to do? Will I ever start to feel ant better?
  11. E

    emergency report from China

    ronR, I have checked my cd4/cd8 count three months after the infection for the first time. I had cd4 549 (range from 500) cd8 345. CD4 were just above the norms but still the ratio was ok. Now, 3 weeks ago I had CD4 1055 and CD8 460 so you might say the ratio is perfectly normal. My...
  12. E

    emergency report from China

    In April 2006 I had sexual intercourse with an unknown woman and 3 days later my nightmare begun. These are the main symptoms: 1. Constant low grade fever – lasted for about 3 years, in later stage only in the evenings dropped below 36.0 C which was accompanied with sweats. 2. Severe night...