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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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    Article: Light on ME/CFS I: Bad Reception: A Key to ME Uncovered? The Light Gene Expression Studies

    http://blogs.wsj.com/health/2008/07/08/fda-still-mulling-warning-for-pfizers-lyrica/ What can I say.....just one more of this studies by Big Pharma which will help them sell their product...... Cort, do you have any conflict of interest to declare ? Maybe like a little ghost writing fees ...
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    The Other Spanish XMRV Study - Stalled

    Hi all, I have received the following pm from somebody who speaks spanish and has been in contact. (Since i do not speak Spanish , I cannot contact them my self.) If anybody has any more questions, they can contact Clara Valverde, or as Eric said.
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    The Other Spanish XMRV Study - Stalled

    http://www.theoneclickgroup.co.uk/news.php?id=4312&sms_ss=facebook&at_xt=4d5ab6aa27062198,0#newspost http://www.thebodypro.com/content/art39610.html Eric, Can you please ask them for more detailed scientific information; testing methods, study design, and if there is any pharma company...
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    The Other Spanish XMRV Study - Stalled

    I have watched the drama now since month: a few people in the ME/CFS cyber space have managed to spread paranoia and many just parrot along and bubble away in the same tune ! I am sick and tired from it, literally :In bed:! Stop speculation, inform your self, check the facts, and than...
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    Japanese call for XMRV research (severe ME

    This is the face of severe ME/CFS ! What a good news report ...
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    GREAT SUCCESS OF THE MANUAL for Fibro, CFS, MS , MCS FOR PROFESSIONALS (CFS Liga)

    http://www.ligasfc.org/ Published on January 31, 2011 by edu Received news that the manual "New Challenges in the query: What to do with Fibromyalgia, Chronic Fatigue Syndrome, MS and Multiple Chemical Sensitivities? Communication Manual "is having a large spread in the Spanish and Latin...
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    URGENT ! SpanishCFS Liga needs our help , please sign petition !!!!

    Eric, great job writing to them and asking for more information ! Maryb, I would love to do more, but I do not speak Spanish, understand only what I get from the google translation and ASSSEM blog. This limits my ability to get really active. If people are interested to form a Online...
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    Asssem - Spanish ME/CFS organisation, has posted interesting article !

    I attach the google translation which is very bad. If somebody could translate this document in to proper English it would be great ! ASSSEM has asked some hard hitting question concerning "The IV International Course, Recent advances: Treatment of fibromyalgia and chronic fatigue"...
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    Article: Dr. Mikovits Talks! The XMRV Santa Rosa Lecture: Part II by Lannie

    IrsiCaixa has found the same reduction in CD57 (NKCells activity) as Dr. Judy Micovits described in this Lecture. Important independent confirmation. Please support the Spanish CFS Liga :Sign Help...
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    URGENT ! SpanishCFS Liga needs our help , please sign petition !!!!

    Rita, Yes, you are so right ! This research is the most serious in Europe and it is important globally ! It is independent research , confirming the research done by the WPI, and they are in contact with the WPI. They want take the next step to study the pathology of XMRV and related viruses...
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    URGENT ! SpanishCFS Liga needs our help , please sign petition !!!!

    I am very disappointed by the lack of response here !
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    URGENT ! SpanishCFS Liga needs our help , please sign petition !!!!

    URGENT! The Health Ministry denies funding for research XMRV URGENT! The Health Ministry denies funding for research XMRV Published on January 13, 2011 by edu THE HEALTH MINISTRY DENIES FUNDS TO CONTINUE THE INVESTIGATION XMRV IN CHRONIC FATIGUE SYNDROME, WHAT CAN YOU DO? January 12, 2011...
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    URGENT ! SpanishCFS Liga needs our help , please sign petition !!!!

    I think the petition is not active anymore, because the The Health Ministry has already denied the petition for funding research into XMRV. But sign anyway and please support the Spanish CFS Liga in any way you can. See second post below.
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    Article: 2011: A Look at the Year Ahead For ME/CFS

    Please do not turn my words around, you understood very well what I meant ! I said it is a waste of time and our resources to do studies which arevery questionable. That this study is questionable is more than clear and you just confirmed this to me. I do not have time nor energy to go into...
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    Article: 2011: A Look at the Year Ahead For ME/CFS

    Cort, If you insist viagra could be "serious" possible treatment to look into , I like to have the full name of Friedman, links to this proposed study, (background information) and information on previous studies by Friedman. There are several Friedman with online shops who sell Viagra. I...
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    Article: 2011: A Look at the Year Ahead For ME/CFS

    AND : while such BS is receiving attention and research funds, the WPI has submitted 10 grant applications, and none have been funded!!! Very funny , :victory: indeed , for whom ? I am furious, insulted, frustrated and angry...................... And do not understand the nonchalant...
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    Article: 2011: A Look at the Year Ahead For ME/CFS

    I find it offensive and in the face, because such a study is as questionable as graded exercise and cognitive behavior therapy in ME/CFS patients as a suggested treatment , or the proposed study by the CDC . Yes why not, we such desperate people, we just try anything, even if complications of...
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    Article: 2011: A Look at the Year Ahead For ME/CFS

    Enid, I want to make something clear. I find Friedman insulting. The notion that this man is contributing in any way to serious research and treatments for our sick children, is to me, a mother of son who is seriously ill, and me by the way too, insulting ! Not to mention the risk Viagra...
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    Article: 2011: A Look at the Year Ahead For ME/CFS

    Are you kidding me !! We have children laying in their beds day in day out, some to weak to even eat and have to be tube fed, and Friedman comes up with such a BS ? This is insult ! I wonder how much more we have to take. Would any Doctor talk of Viagra as a treatment for AIDS patients or cancer...
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    Comment by 'aruschima' in 'Support for Tanniaust'

    Ecoclimber, Thanks for saving Tania's live .
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    Comment by 'aruschima' in 'Support for Tanniaust'

    Tania , What can I say...... Hang on ! Our lives will improve, treatments will come. Hang on and stay with us, your not alone. Sending love, warm hugs, and understanding. Aruschima Om Namah Shivaya
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    New Klimas Paper- NPY, Stress, HPA Axis and CFS

    I agree, once more diverting attention away from important biomedical research . It could have been a step further in validating the disease, if the interpretation would have been directed and had highlighted the very serious issues association to Hypothalamus/ brain abnormalities/ white/grey...
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    New Klimas Paper- NPY, Stress, HPA Axis and CFS

    It is unfortunate, actually very manipulative, that this study (paper) highlights the stress factor of elevated NPY . NPY has been found and associated in many disorder and diseases. It is certainly wrong (I think) that elevated levels should be construed as a bio marker for ME/CFS, since it is...
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    Minocyclin

    Hi Glenp, 1.The ringing in the ear sounds like Tinnitus and sounds like a side effect of Minocycline Side effects Minocycline may cause upset stomach, diarrhea, dizziness, unsteadiness, drowsiness, headache and vomiting. Minocycline increases sensitivity to sunlight. It has also been...
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    Retrovirology Publishes Five Papers on XMRV and Contamination

    I believe the whole issue of advocacy has not been to well handled by us; to much focused on validating XMRV, instead of focusing to validate the disease itself. Of course you can argue that by proving XMRV is real, you will eventually prove the disease is real, but this alone is a risky move...
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    Retrovirology Publishes Five Papers on XMRV and Contamination

    Brrrrrrrrrr, freeezing cold. Well , I am afraid the ball will stop rolling. We just started to get some recognition, the ball was rolling and if this is not countered immediately with some real strong statements and action on our part, we are fu.....d. This is not just about the science...
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    Retrovirology Publishes Five Papers on XMRV and Contamination

    http://www.retrovirology.com/content/7/1/111 Hi Eric, How is Barcelona ? Must be freezing cold too? Thanks for trying to calm us down, however, I think the statement above is reason to worry. Considering though from whom it is coming from not surprising, as you said. However, I say it...
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    Spanish XMRV researchers to report Dec 9 on immune dysfunction

    Thanks for translation Lot of info seems to contradictory and confusing. I guess we have to wait until they come out with the ASSAM paper in English. Funding problems :Retro frown:, seems the same all over. What we have to do, rob a bank ?:Sign Help::Sign Please::Retro cool::winking: