• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. anilla

    anyone also have a primary immunodeficiency (PID) diagnosis?

    Hello, everyone. I'm new-ish here. I'm having probably the worst flare of my life with tons of pain and no energy whatsoever. So I find myself in the throes of doing research again. A little background: I was sick for so long (years) with infection after infection until i was finally...
  2. anilla

    Persistent Immune Activation in CVID and the Role of IVIg in its Suppression

    hi everyone, i'm new here. I have both diagnosed ME and diagnosed CVID. i get IVIg infusions every four weeks. they help a little with the fatigue, but not a lot. the only thing the infusions really help me with is not getting infections.