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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. R

    CBS Treatment - Will You Feel Worse Before Better/List of Sulfur Containing Supplements?

    thanks for the tip. no i am not taking any methyl donors. i am strictly working on CBS right now. my sulfur levels are now below 200 from the last test strip i did so im goimg to stick with that for a month or so until that changes for the better. i will lower my hb12 dose though. i did a mega...
  2. R

    CBS Treatment - Will You Feel Worse Before Better/List of Sulfur Containing Supplements?

    thanks. yeah i think the hb12 possibly caused a detox reaction and then with a lack of water, i had toxic buildup. my sulfate levels have never been this low before... the hb12 has to be doing something good there.. thanks for all the tips. :)
  3. R

    CBS Treatment - Will You Feel Worse Before Better/List of Sulfur Containing Supplements?

    i see. thanks for hte info. i will try to cut out other things i don't need. caledonia, btw, get this. so i felt like crap this morning, did a sulfur reading, and had the reading above. then i drank a bunch of water and started feeling a little bit better. i just did a sulfur reading again...
  4. R

    CBS Protein Source?

    I think I am doing bad on a protein source with CBS A360A +/+. I've been eating steak everyday, but I think it is not helping me. I followed it because of low thiol diet. What are the best protein sources if we are restricting things with eyes? I was thinking protein powder, but is this...
  5. R

    Low Sulfur Calcium Source?

    i now use almond milk to get calcium. you can buy pure almond milk from whole foods, just an FYI for anyone curious.
  6. R

    CBS Treatment - Will You Feel Worse Before Better/List of Sulfur Containing Supplements?

    I have been doing low sulfur diet now for about 2 weeks and at first I was feeling way better. Like almost normal. I recently added in hydroxy B12 and ammonia RNA support and now I feel really crappy. I don't know what it is. I'm not sure if I'm bouncing back to feeling worse or I'm going...
  7. R

    Low Sulfur Calcium Source?

    So sesame seeds have too much sulfur in it? lol. Dang it.. I was hoping that was a quick way to get calcium.
  8. R

    Low Sulfur Calcium Source?

    thanks for the tip. how do you know the sulfur content of this, or how did you find this was low suflur?
  9. R

    Low Sulfur Calcium Source?

    Does anyone know a good source of calcium that is low in sulfur? the big sources i know are dairy and some dark green veggies.. but we can't have these. i think low calcium is hurting me
  10. R

    When Treating CBS, will you get low energy?

    thanks for the tip. i'm using heartfixer as well. i'm doing a lot of stuff. charcoal at night, yucca, l-cartinine, molybdneum, boron, vitamin e succinate. i'm getting ammonia rna/hydroxy on monday, so maybe those two out are playing some part. i'll give a try to the meat thing next time i eat...
  11. R

    When Treating CBS, will you get low energy?

    i see. so do you know though why i would get low energy from watermelon if its low thiol/low sulfur? do i have some other issue?
  12. R

    When Treating CBS, will you get low energy?

    I'm following the low thiol diet right now. I noticed when I ate watermelon today though (which is low sulfur) I got a massive hit of fatigue after an hour or two. I could barely function. I saw on heartfixer's site, he said this: If I am on the low sulfur diet, is this basically saying that...
  13. R

    COMT/VDR Both Heterozygous

    awesome, thank you for the post. now i know what i need! :)
  14. R

    MSM

    depends if you have the CBS mutation. too much sulfur combined with that = a recipe for disaster. i'm surprised i'm the first one to mention this, am I wrong about this?
  15. R

    COMT/VDR Both Heterozygous

    Hey everyone. Going through heartfixer and have the following issues: COMT V158M rs4680 AG +/- COMT H62H rs4633 CT +/- COMT P199P rs769224 GG -/- VDR Bsm rs1544410 CT +/- VDR Taq rs731236 AG +/- As you can see, I'm +/- for both COMT and VDR. From my research, COMT +/+ means I degrade...
  16. R

    How To Know Differences In Specific SNPs for one type of gene?

    thank you so much steve for your information. i will def. use your suggestions and try the things you have mentioend here as i've read the same information, but more scattered. i looked up the prices as well and they are very reasonably priced so it is worth a try. all this dna stuff is very...
  17. R

    Xeno/estrogens link to CFS/Fibromyalgia - Success!!

    thank you for that spreadsheet, that is very helpful document with this. i used it to look up CYP1B1, similar to what your girlfriend have, and I seem to have 2 that are +/- out of 3 (one is -/-). How does that test that she took determine if there is a problem, does it have to be +/+, or...
  18. R

    Xeno/estrogens link to CFS/Fibromyalgia - Success!!

    Gestalt interesting post that you make. i am suffering from side effects from propecia which includes a higher than average estradiol level, whcih makes me think some of what you said i may relate to. i got the 23andme test and tried to lookup the CYP3A4 gene, but it gave me 57 different SNPs...
  19. R

    How To Know Differences In Specific SNPs for one type of gene?

    Hello friends. I have looked at my 23andme test and found I have a mutation on CBS A360A (++, uh oh), however, on the other two CBS genes, I am -/-. I have read the heartfixer guy's website, but he just calls CBS gene overall, but doesn't talk about specific SNP's. How do you know which one...