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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. M

    High serum B6 with tons of fasiculatoion paresthesias

    Hello, I'm more of a lurker but appreciate the accumulated wisdom here. I have a friend with a very high serum Vit B6, > 100 (Labcorp 5.3-46). His B12 is also high. He was taking a product with B6 50mg and is now off all Vit B6 but is now taking solely P5P. We are wondering if his 6 year...
  2. M

    Best sublingual Methyl B-12?

    Quick question to Fred or others confident of their answers: Is transdermal methylcobalamin --via a cream applied to skin-- workable? Is it clearly inferior to sublingual? inferior to deep sq? I ask because a physician friend is inquiring. I don't see why someone would do transdermal when...
  3. M

    Glutathione & Precursors - Detox or Induced Methylb12 and Methylfolate Deficiencies?

    I hope Fred is around to comment. My neuropathy is steadily getting worse in the past few months. I have lyme and co-infections (finally diagnosed in 2005 after no diagnosis for 9 years). I have been on intermittent antibiotics x 5 years. The only thing different since the worsening...
  4. M

    Vasoactive intestinal peptide (VIP)

    Elcatonin raises VIP Hi folks,,, I was googling about how to raise VIP and I found this forum. I have lyme with MCS, low VIP, high C4a, osteoporosis, etc... I am looking for how to raise my VIP... looks like I can treat my osteoporosis and low VIP (and gum recession? and brain pain??)...
  5. M

    B-12 - The Hidden Story

    Hello Fredd, Are you familiar with Leesburg Pharmacy in VA (a compounding pharmacy)? I was thinking of getting some meB12 injectables from them (25mg/cc,,,#10ml for $80). I believe you mentioned University Pharmacy in SLC? Are they conscientious re light and meB12 preparation? Also, if you...
  6. M

    B-12 - The Hidden Story

    Fredd, are you familiar with Pure Encapsulations B Complex Plus? It looks to me to be a better formulation than Jarrow's B Right. Pure Encaps. product has the pre-activated forms of several b vitamins and active folic acid (methlyfolate) and MB12: Each capsule contains: B-Complex Plus...
  7. M

    B-12 - The Hidden Story

    Thanks Rich, Before testing I went off all B12 for 3 days,,, but before I went off for 3 days I'd read these boards, and had re- started some methyl 5 mg SL once a day for about 4 days/week x 1 week,,, over the year had been doing drops of hydroxyCB-- 2-3mg SL -- by Scientific Botanitcals...
  8. M

    B-12 - The Hidden Story

    Question re labwork for B12 (is this an ok place to ask?) Via Quest Labs I had a normal CBC: a very Low Vitamin B12 binding capacity, unsaturated (transcobalamin) 287 (nl= 650-1340); a high serum B12 1513 (nl= 200-1100); a normal methylmalonic acid; Also had both MTHFR mutations and low...
  9. M

    B-12 - The Hidden Story

    I had a question for Freddd: Does he recommend a pharmacy for the methyl B12 shots? and does he recommend a dosage per syringe? At another forum I read were someone got #30 syringes of 25mg/ml for $100. That sounded pretty good to me.... At that dose one syringe would give 5 doses of 5mg...
  10. M

    Glutathione & Precursors - Detox or Induced Methylb12 and Methylfolate Deficiencies?

    Hmm.. this thread looks quiet... maybe I'm posting at the wrong place, but I had a question for Freddd: Does he recommend a pharmacy for the methyl B12 shots? and does he recommend a dosage per syringe? Thanks,, this has been a fascinating read. I come from the lyme borrelious camp (many...