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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. abporter

    Rife Machine vs PEMF Mats (Bemer and iMRS2000)

    @Opteezy No, I didn't get it.
  2. abporter

    Interview with Dr. De Meirleir about ME/CFS/SEID and Lyme Oct, 2014

    @Folk, I've been reading some positive things about ozone. Could you tell the source where you heard Yolanda is doing it now? Curious, thanks.
  3. abporter

    Nagalase levels

    Thanks Sushi. Was that the test from Health Diagnostics?
  4. abporter

    Nagalase levels

    It sounds like from what serg1942 said here that REDlabs has had different protocols for testing nagalase in the past, so maybe they have a different protocol from Health Diagnostics.
  5. abporter

    More info on GCMAF...

    After almost 7 years of undiagnosed Bb, my nagalase in Nov. 2013 was 1.08 (from Red Labs ordered by Dr. De Meirleir). I started injecting GcMAF (100 nanogram/wk) in Feb. 2014, ran out of it, and took a break from July to December 2014. I've had no adverse IRIS reactions from taking GcMAF and...
  6. abporter

    Nagalase levels

    After almost 7 years of undiagnosed Lyme, my nagalase in Nov. 2013 was 1.08 (from Red Labs via DeMeirleir) . I started injecting GcMAF (100 nanogram/wk) in Feb. 2014, ran out of it, and took a break from July to December 2014. I have been injecting again for about 10 weeks. In January (one month...
  7. abporter

    Improving Using Rife and CDS/MMS (Miracle Mineral Solution) for Lyme -- Coronavirus Update

    I was just reading in Rosner's lastest 2014 book of a doctor who recovered from using the Doug Coil machine. I'm thinking of purchasing a Rife machine and see that the GB4000 is very popular. However, I also see that I can purchase a Doug Coil machine for much less and it seems to be the most...
  8. abporter

    Improving Using Rife and CDS/MMS (Miracle Mineral Solution) for Lyme -- Coronavirus Update

    Hi Wayne, Thanks for sharing your experiences! I tried a Truerife.com machine once last week on their Lyme program, but the only herx I had was sleeping more the next two nights, nothing significant. This week I started Buhner's Lyme protocol and herxed the same day much more, but the following...
  9. abporter

    Rife Machine vs PEMF Mats (Bemer and iMRS2000)

    Thanks InvisibleJungle, I appreciate it!! :)
  10. abporter

    Rife Machine vs PEMF Mats (Bemer and iMRS2000)

    I have borrelia and mold exposure. My U.S. doctor recently recommended the PEMF Bemer mat to me. I began to research and saw that there is also the new iMRS2000 PEMF mat from another company that has received high reviews. Someone who is helping me research asked "What is the difference...
  11. abporter

    I am booked in to see Prof. de Meirleir in January

    I just watched this Shoemaker video on treating Borrelia and detoxifying neurotoxins: http://www.betterhealthguy.com/dr-ritchie-shoemaker-video-on-lyme It seems to make sense to detoxify neurotoxins while doing antibiotics and thus perhaps reduce a herxheimer reaction. However while...
  12. abporter

    How do you know if you are Methylating properly?

    Thanks Helen! Yes, I definitely have a problem tolerating alcohol, so I wonder if I even need to take and pay for the test, ~$325. I don't know either if it would tell me how much of what I should take concerning B12 and/or methylfolate. Perhaps I should just start with one of the simplified...
  13. abporter

    How do you know if you are Methylating properly?

    I recently was clinically diagnosed with Lyme disease. A friend who also has Lyme wrote this to me: "if you are going to be doing detox for lyme tx -- check out amy yasko's methylation panel. KNOW YOUR GENETICS for detox before you start taking stuff! I had extreme, almost suicide inducing...
  14. abporter

    What is your current regime?

    I have chronic Lyme. Can you tell me what HllT weight lifting is? I've just been able to start lifting weights after 8 weeks of 100ng/wk of GcMAF. I've been trying to keep my heart rate under my anaerobic threshold of 110 and doing higher reps of lower weights. Yesterday, I also just started...
  15. abporter

    Comment by 'abporter' in 'And it's started! (Week 1 Day 1)'

    @Thinktank, Hmm, KDM just wrote a prescription for me to get Nexavir via I.M. injections. I would prefer s.c., but that's not the prescription I received. Does it matter?
    • abporter
    • Blog entry comment
  16. abporter

    Comment by 'abporter' in 'Pre-Lyme Treatment (Week 1 Day 3)'

    Hi Valentijn, I'm have my Nexavir and HydroxyB12 on order. Any reason for injecting one at an angle and the other straight in? In the past, I've injected MethylB12 into my hip/buttock, but the thigh seems like it would be easier. Also wondering if it matters what part of the thigh (lower, upper...
    • abporter
    • Blog entry comment
  17. abporter

    Comment by 'abporter' in 'Pre-Lyme Treatment'

    Intersting Valentijn. I became sick while living in Norman, OK in 2007. I'm seeing KDM in Reno and even though I didn't show a positive for borrelia from Red Labs, he diagnosed me with gram negative bacteria based on my test results. He didn't order the LLT for me from here. But he said I can...
    • abporter
    • Blog entry comment
  18. abporter

    Ten Years of healing: No more congestive heart failure, FMS, CFS and minus 100 pounds

    Freddd, I was feeling enough like my old self to go buy some ski clothes on clearance this past week. (I just started GcMAF two weeks ago here in Reno. My energy with it and LDN have been enough to allow me to slowly start exercising again.) I don't have equipment now. I used to have 200cm...
  19. abporter

    Olympic Skier beat Lyme Disease

    T Thanks for sharing Sushi. I just watched it and my eyes watered up several times. Skiing was the sport that I was best at and loved the most. It was encouraging to see that even though it may take years of treatment, it is possible to recover. :)
  20. abporter

    Start Low and Go Slow - How to Be Safe On A Methylation Protocol

    @Little Bluestem I found it here: http://www.propax.com/nt-factor-lipids/
  21. abporter

    Start Low and Go Slow - How to Be Safe On A Methylation Protocol

    @caledonia Thanks, very helpful! Would you have the reference for the ratios you mentioned and methyl trapping? I wouldn't mind showing it to my doctor to educate him. :) Maybe it's in your Start Low... doc, I'll take a look. :)
  22. abporter

    Start Low and Go Slow - How to Be Safe On A Methylation Protocol

    @caledonia Also, just a discovery, I saw a MTHFR specialist in Austin before doing 23andme. He found I was not methylating properly and was borderline low in folinic acid. He prescribed me 5mg of Leuvocorin(folinic acid) twice a day and a compounded mixture of methylB12, hydroxyB12, P5P, and...
  23. abporter

    Start Low and Go Slow - How to Be Safe On A Methylation Protocol

    @caledonia Rich in his SMP recommended starting with 1/4 of a tablet and increasing to 2 tablets. How did you decide on 1/32 of a capsule?
  24. abporter

    The Electrical Apocalypse: Can we avoid it?

    @Helen Thank you for this information! My mind is a bit weary right now from being on my laptop all night, even though I slept about 12 hours during the day today. I will look at the links after I've had more of a break. Your comment on my CYP3A4 SNP is interesting. I was on Klonopin to help me...
  25. abporter

    Start Low and Go Slow - How to Be Safe On A Methylation Protocol

    @caledonia Thanks! I saw her new All in One multi and think I will start with that (maybe one pill a day, although 3 /day is the serving size). I did see on her CMT/VDR chart that I should be taking hydroxy or adenosyl B12. This probably explains why taking methylB12 can wipe me out. When you...
  26. abporter

    Start Low and Go Slow - How to Be Safe On A Methylation Protocol

    @caledonia Thanks for this! Have you compared Rich's SMP with Yasko's new SMP that you list in your footer? I just downloaded it from Scribed (thanks to you!) and am also looking at what Rich's latest SMP recommendations were on the CFS_Yasko yahoo forum...
  27. abporter

    The Electrical Apocalypse: Can we avoid it?

    This is a fascinating discussion to me. I was a computer programmer for over a decade, however now being behind my laptop drains my energy more quickly than if I avoid it. The more I am away from it, the more I can be on it later. If I've been on too much one day, the next day 30 minutes on it...
  28. abporter

    NADH during methilation protocol ?

    @daniariete2000 Interesting that you say that, a friend just hear Dr Birkmayer lecture yesterday in Albuquerque and brought back a brochure of his products. They cost 70 euros (~$95) for 60 tablets of 10mg. I'm not sure if the more stable hydrogen content is worth the cost for me at this time...
  29. abporter

    NADH during methilation protocol ?

    @Critterina May I ask what brand and form do you take it in and how much? I just heard some brands have more stable hydrogen content than others thus making it more effective.
  30. abporter

    Serious Newbie here, How do I interpret my results from AnalzyeMyGenes?

    The only homozygous result I got was: rs8176928 16 G 0.37 GG Homozygous Where should I go to find out the implications of this and what I might/should do about it? Also should I be concerned about the others that showed up that were not homozygous? Thanks!!!