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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. ronR

    Is it a new disease or its CFS ?

    did u check your IgE anti-bodies.....is it in normal range ?
  2. ronR

    Is it a new disease or its CFS ?

    http://www.guardian.co.uk/science/2013/mar/24/coronavirus-outbreak-middle-east-sars
  3. ronR

    Is it a new disease or its CFS ?

    http://m.guardian.co.uk/world/2003/nov/23/kenya.aids
  4. ronR

    Is it a new disease or its CFS ?

    http://m.guardian.co.uk/society/2013/mar/04/hiv-cure-is-breakthrough-seems Hiv cured. But traces of inactive virus remains,interesting read.
  5. ronR

    Is it a new disease or its CFS ?

    Even if someone have genes/proteins ,but not the entire hiv virus .....I wonder what kind of damage it would cause ??
  6. ronR

    Is it a new disease or its CFS ?

    These all are CO-FACTORS OF AIDS . These might be the reason ....or may be a ... Yet to be discovered co-factor responsible for HIV negative aids.
  7. ronR

    Is it a new disease or its CFS ?

    Can you elaborate on intracellular virus/bacteria ??
  8. ronR

    Is it a new disease or its CFS ?

    If I'm not mistaken ,one of your Western-blot was positive ? Do you think, it due to the HIV protein within Mycoplasma , caused it ??
  9. ronR

    Is it a new disease or its CFS ?

    Teedot , I don't think its different strain. Then it must be something else not virus .... May be Mycoplasma or something not yet known ?
  10. ronR

    Is it a new disease or its CFS ?

    urraco2012 , generally it unlikely for a same virus to cause infection twice. My guess, would be your symptoms returned after a gap of few years, which is reported to be happening in this disease. It goes on like that for some years . I guess most of the symptoms must have been resolved ??
  11. ronR

    Is it a new disease or its CFS ?

    wyomingscared , some people with this mysterious disease reported to have low cd4 /low wbc after few years. i have posted few links too about it ,in previous pages. What I have been reading about it, symptoms do comeback after some years of respite.
  12. ronR

    Is it a new disease or its CFS ?

    Hi urraco2012 , I'm asking that because I have elevated IgE levels and allergies, which I didn't have ....this came after my exposure. I suspect some pathogen (like Mycoplasma) might have elevated the IgE levels,which resulted in me being hypersensitive & allergic. I also came across few...
  13. ronR

    Is it a new disease or its CFS ?

    In case of Mycoplasma infection .... Would there be increase in IgE antibodies ....like hyper IgE ?? As it is a parasitic bacteria ?? Anyone here, have any idea ?????
  14. ronR

    Is it a new disease or its CFS ?

    Mycoplasma causing chronic arthritis . Outbreak of antibiotic-resistant mycoplasma bacteria due to “mutation” http://t.co/45GWxBjD
  15. ronR

    Is it a new disease or its CFS ?

    Do test for Mycoplasma and HHV4,HHV6,HHV8 if possible . And what are the symptoms(if any ) among the people,u have casual contact with .??
  16. ronR

    Is it a new disease or its CFS ?

    Your symptoms do match with mine. How long its going on ?? Anyone of your friend or family members,have some of these symptoms ?? Let's unite ,bring in more people . And we will reach a solution
  17. ronR

    Is it a new disease or its CFS ?

    I have stated in earlier posts ......that this pathogen might be COFACTOR of AIDS ,most probably A NEW MYCOPLASMA OR A NEW HERPES VIRUS. Good information by Teedot. I guess we need to approach someone like prof. Nilcholson ??
  18. ronR

    Is it a new disease or its CFS ?

    Hello, welcome I have seen your posts on ehealth forum . And invite other friends from that forum. We need to unite over here, more people means louder voice for our problem . And read the previous pages,that will answer your queries .
  19. ronR

    Is it a new disease or its CFS ?

    urraco2012, Coming back to the topic . U seem to believe in rare HIV strains. What do you think causing your symptoms ??
  20. ronR

    Is it a new disease or its CFS ?

    use of Xeljanz was associated with an increased risk of serious infections, including opportunistic infections (infections that occur primarily when the immune system is suppressed), tuberculosis, cancers and lymphoma. Xeljanz carries a Boxed Warning regarding these safety risks. Xeljanz...
  21. ronR

    Is it a new disease or its CFS ?

    Tofacitinib ....this drug was not approved till last October. People ,who are not even sure of their disease, should think twice before considering such drugs. To know more facts about that drug- CHECK THE LINK...
  22. ronR

    Is it a new disease or its CFS ?

    Good link ,interesting. Idiopathic CD lymphocytopenia that she's talking about here , is a matter of concern. Even I came across many people in different forums, who had this years/decade after initial symptoms.
  23. ronR

    Is it a new disease or its CFS ?

    http://www.thebody.com/Forums/AIDS/SafeSex/Q219812.html?ic=2003 http://www.thebody.com/Forums/AIDS/SafeSex/Q203328.html
  24. ronR

    Is it a new disease or its CFS ?

    Well , here's another link . Where symptoms came back after 10 years. Like HIV ?? http:www.//forums.webmd.com/3/hiv-and-aids-exchange/forum/1181/6
  25. ronR

    emergency report from China

    Nope , I don't have such a person at the moment. If the pathogen is in your blood, then it show the sequencing, use your blood only with latest technology All the best :-)
  26. ronR

    Is it a new disease or its CFS ?

    Hey Sherezade , I shared that link , just to exchange views. Even i think its not HIV, or HTLV . My best guess is....... It's a CO-FACTOR OF AIDS , which can be NEW HERPES VIRUS, or NEW MYCOPLASMA . It's not a respiratory virus ,neither a retro virus. It's transmissible like a herpes virus .
  27. ronR

    Is it a new disease or its CFS ?

    What are your symptoms ?? And exactly why do you think it can be htlv ?? You are suggesting a contagious retro virus ?? ....very unlikely
  28. ronR

    Is it a new disease or its CFS ?

    www.thailandguru.com/hiv-aids-thailand.html Heterosexual Transmission in Thailand: HIV Subtype E in Thailand, INTERESTING READ - just found out
  29. ronR

    Is it a new disease or its CFS ?

    Sure, I'm ready to join such groups :-)
  30. ronR

    Is it a new disease or its CFS ?

    Yeah , they can detect this but until the ignorance is there nothing can be achieved. I don't think it would be that tough to detect this pathogen,if all modern technology is used . If a case study on such patients can be done, then it can be found...if there's any similar sequencing or any...