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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. R**

    Rich: Your thoughts this article.. High serum folate and avoidance of folates in food

    I think B2 plays a role in methylation? I am so confused at this point.. I thnk I saw it in one methylation diagram I recently looked at. Found this but not the diagram: It is also known that riboflavin, vitamin B2, is required to help reduce elevated homocysteine levels in those with...
  2. R**

    Rich: Your thoughts this article.. High serum folate and avoidance of folates in food

    I ran across this info which seems to support some of Fred's experiences. The woman who wrote the article found that high levels of FA in blood correlated with her health and symptoms were vast.. including EDS and parkinson's like symptoms, among others. She has to avoid food forms of...
  3. R**

    Stem Cells

    I havent read every post in the thread.. so not sure this was mentioned how how relevant it is to anyone.. listened to Christiane Northrup last night on PBS and she mentions that menstrual Blood contains stem cells. Google and found this...
  4. R**

    Recall Healing

    It appeals to me as well, Terri. Thank you for the links! Esp to Dr Joe.. didnt know of this resource. Also thinking of the Heart Math program as well as Journey to the Wild Divine for retraining, reformatting. Remembering something I read, heard about the heart actually being able to...
  5. R**

    Recall Healing

    http://www.recallhealing.com/recallhealing.html http://quantumhealingtyler.com/recall_healing Wish there was more detailed info...
  6. R**

    Recall Healing

    Just saw an interesting presentation on Recall Healing with the live stream of the Lyme Induced Autism conference.. very interesting... Anyone familiar with this and what do you think? Thanks! R
  7. R**

    Heart Math or Wild Divine for biofeedback

    Thank you both. I don't know which one to pursue, and they all sound interesting! My mew MD focuses on the ANS and told me I need to learn how to breath properly. I think I hold my breath. I've heard this is pretty common with dysautonomia. I may hyperventilate as well.. not sure what causes...
  8. R**

    Relationship between B12 and Folates

    If you don’t want to go through your doctor and pharmacist, Perque carries the hydroxycobalamin. (www.PERQUE.com or phone 800-525-7372) Here is something from their site about the benefits of the hydroxycobalamin. "The connection between vitaminB-12 and folic acid is also critical...
  9. R**

    Heart Math or Wild Divine for biofeedback

    has anyone tried or familiar with another's experience with either of these? On of my mds recommended heart math. This one has a portable device. Both are quite expensive. http://www.heartmath.org/ http://www.wilddivine.com/ Thanks! R
  10. R**

    KPU, B12 Therapy, Methylation Protocol Detox

    How are you all dealing with metals releasing? How are you binding without pulling out more??
  11. R**

    GI Biofilm/ infection/heavy metals

    Aquariusgirl... I dont know. I feel so lost on that board at times. EDTA is a biofilm buster.. so my question is what is she doing for what it is busting up? She has herbs for the gut... I think Usman has used EDTA in that too... then follow with the antimicrobial.. but the edta is going to...
  12. R**

    KPU & Mercury and other Heavy Metal Chelation

    Rich Thank you. This helps. I am taking B6, zinc (15 mg), and your simplified 5. I am taking some of yasko's helpers like nucleotides and NADH and trying to take a good look at gaba and glutamate balance esp since I am a COMT++ and have enough problems with excite-ment. Also not knowing...
  13. R**

    KPU & Mercury and other Heavy Metal Chelation

    Oh yes, Sushi. This is such tricky stuff. I cant tell a mercury dump from a lyme flare.. nothing I can tell apart except for the first time I took slivers of methyl folate and felt as if my legs were going to rot off.. got off the methyl folate and the symptoms calmed down.. followed by a UTM...
  14. R**

    Decreased oxygen saturation upon exertion

    Thanks, again, Kurt. Now which of the above! I'm so tired. And frightened.
  15. R**

    Decreased oxygen saturation upon exertion

    Ahhh.. OK. Thank you, Kurt. My hands were constricting. The pulmonary noticed that and put that together with scleroderma. I think he is fixated on that. The echo showed no pulmonary hypertension and the pulmonary functions test OK... he wants to check my lungs to see if there is further...
  16. R**

    Decreased oxygen saturation upon exertion

    can anyone recommend an portable (finger or other small device) oxygen meter brand? Thank you!
  17. R**

    Decreased oxygen saturation upon exertion

    I had the exact same thing happen to me today. I was about to start a new thread when I found this one. My O2 rate on sitting was 100. Then taking 3 laps around md office it was 89 very quickly into the laps. My pulmonary is freaking me out with talk of ruling out pulmonary hypertension and...
  18. R**

    pyroluria test results

    10-20 is low positive 20-50 moderate 50 up severe http://www.treatingautismconferences.com/Why%20Biomedical%20-%20Dr%20Anju%20Usman.pdf Also test results can vary. Some tests have been known to double (if you caught yours low) and even go up 10 fold. Also.. how the lab treats and...
  19. R**

    KPU & Mercury and other Heavy Metal Chelation

    Posted to another thread, but it applies here as well: I am getting from yasko that its better to get methlation stable before going after bugs and metals (the ones the methylation does not address.. in biofilm or whereever).. so here's a problem at least for me.. I take enzymes because my...
  20. R**

    GI Biofilm/ infection/heavy metals

    I am getting from yasko that its better to get methlation stable before going after bugs and metals (the ones the methylation does not address.. in biofilm or whereever).. so here's a problem at least for me.. I take enzymes because my blood tends to be thick... so I am going to be releasing...
  21. R**

    GI Biofilm/ infection/heavy metals

    Does anyone have the link to the microsilica site. Its IMD or somthing like that. I think they add thiol groups to the silica so its a super enhanced silica.. if I have that right. Silica is generally used to chelate lead, right? Not mercury.
  22. R**

    microsilica--powerful chelator

    Can anyone explain what microsilica is and why it is safe? Someone mentioned horsetail. I think horsetail has silica which is not the same as microsilica. I think microsilica is not a plant based product.
  23. R**

    Rife.

    Sushi, Thank you for reporting back. I think that is wise. I am guessing that a lymph setting would be safer than a metal detox setting. ?? I am still a mess. Had to go to ER. Not sure it has anything to do with the rifing. We also have a mold issue in this house and remediation this week...
  24. R**

    Rife.

    Thanks all. I am terrified to use all the frequecies and dont want to be. I have a perl. There is a general health setting they suggest you use 2=3 weeks prior to rifing for lyme or other more chronic pathigens. But the GH setting in addition to organ support, detox has frequencies for strep...
  25. R**

    Bemer 3000

    Thank you for the updates and info. :-) Robin
  26. R**

    Rife.

    Gut wrenching decision.:-D Now I am so second guessing myself. My husband is much better than me at taking these experiments in stride. I torture myself over each decision. I (we.. husband also has lyme but not terribly effected) did 20 seconds at 612 Wed PM which is a harmonic (think I...
  27. R**

    Rife.

    I have a rife. Can report back when I get the nerve to use it. There is a very good rife thread on Lymenet. Sushi, did you find you had to do the less is more timing with all frequencies or with certain ones?
  28. R**

    Bemer 3000

    Any Bemer or MRS updates? I would love to hear how this therapy is going. Thank you!
  29. R**

    R U Amygdalized?

    Cort: Anat Baniel Cort, which program do you use? http://www.anatbanielmethod.com/products-by-area.htm Robin
  30. R**

    Mikes Speech in D.C

    Wow. That was very powerful, Mike.