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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. J

    GETSET (white) in Lancet 22/06/17

    I'm not sure what the real quality of life and functionality benefits of this study claim. The programme they received, on quick review, does not seem unduly harmful. The benefits are only those at three months, and do not translate into long term benefits. How less fatigued these patients are...
  2. J

    Is ME due to Ehlers-Danlos Syndrome "stretchy veins"

    Just a curiosity worth a mention: teenage girl with ME: then got EBV hepatitis; post-EBV: had marked varicose veins in one leg i.e. Acute Unilateral Varocose Veins Post EBV - Dr John L Whiting