• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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    Chronic constipation

    Constipation – How about treating SIBO (Small Intestinal Bowel Overgrowth)? http://www.medicinenet.com/small_intestinal_bacterial_overgrowth/page6.htm#tocj In Europe, I think only Kenny DeMeirleir does that, though. The first antibiotic from the link above is used in the treatment protocol of...
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    B-lactam antibiotics- as an elastase inhibitor for Rnase-L fragmentation slowdown

    Constirpation What about treatment of SIBO? http://www.medicinenet.com/small_intestinal_bacterial_overgrowth/page6.htm#tocj The first antibiotic is in the treatment protocol of Prof. Mark Pimentel, L.A., too. http://www.anewibssolution.com/index.htm
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    One Woman XMRV Protest

    :Retro biggrin: :Retro biggrin: Although, for added effect, you may want to look very sick, too. For the next one-woman demonstration, I propose to get an IV infusion (just an electrolyte infusion, that's what usually gives me some relief) and wheel the stand with the bag of liquid around...
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    XMRV on the world meeting of blood transfusion from June 26th to July 1st, 2010

    XXXIst International Congress of the ISBT (International Society of Blood Transfusion) next week in Berlin (Germany), Congress Center Programme Wednesday, June 30th, Parallel Session S40, 3.00 pm, p. (14) 135 ; http://www.isbt-web.org/berlin/files/wednesday.pdf :balloons: XMRV: ANALYSIS OF...
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    Totally fed up

    Hello FEDUPJ, did you already do an MRI? Your symptoms sound like MS www.mult-sclerosis.org/mssymptoms.html . Unfortunately, there is no cure for MS, but in certain forums MS patients mention that they would like to try or already have tried LDN with some success...
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    Xmrv brain fog and a lot lot worse

    This cfs-girl blogs about her treatment protocol http://ldnjournal.blogspot.com/search?updated-min=2008-01-01T00%3A00%3A00%2B02%3A00&updated-max=2009-01-01T00%3A00%3A00%2B02%3A00&max-results=1. She takes LDN (as recommended by Dr. Klimas to forum member leaves) and has also taken nimodipine...