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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. C

    CFS and Rheumatoid arthritis

    i need to go into more aggressive therapy. any experiences with various DMARDS?i am trying to find out which one would hurt me less. methotraxate? sulfasalazine? or biologics? any insights?
  2. C

    RA Anyone?

    I could not dare to start mtx but i tolerate plaquenil so far and i think it helps.
  3. C

    RA Anyone?

    "Now I'm just happy that this RA diagnosis has helped me understand some of the symptoms I had/have...so I feel better in a weird way..because it cant be passed of as just something that alot of people dont think is real...like CFS/ME or mental health problems." i share your opinion on that. I...
  4. C

    RA Anyone?

    i have been diagnosed with RA on top of CFS, I wonder if there are others who have the same problem? how do you handle it?
  5. C

    freezing foods

    Thanks
  6. C

    freezing foods

    Thanks. What about freezing? Can i freeze a cooked food which was in refrigirator for sime time? Like 6 to 24 hours
  7. C

    freezing foods

    Hi all I freeze my cooked food. I remember reading somewhere that cooked food should be placed in freezer within two hours after cooking to prevent bacterial growth. Is that true? thanks..
  8. C

    I am undergoing ozone therapy

    Hi Do you know if sodium citrate used during the therapy might be problematic for us? thanks.
  9. C

    Terrible time during summer

    Hi all Thanks so much for your answers and great tips. You were very helpful. I will make use of them. snowdrop.. no .i can not go outside. i have trouble inside. Last year i used sea salt liberally but could not manage the problem. can not use a/c much either as i can not tolerate small...
  10. C

    Terrible time during summer

    Thanks to all who have answered. Don't feel well. Will write you later. Best wishes..
  11. C

    Talking wipes me out.

    Listening is worse than talking for me.
  12. C

    Terrible time during summer

    Hi all. I am having terrible time during summer, i think that is because i can not keep my electrolyte levels balanced. What do you do about that. I drink salt water but still can not manage the problem. Thanks.
  13. C

    Ozone Therapy

    Hi all Just started ozone therapy. After reading some of the posts here i am now worrying if it might hurt me. I am very ill,at late stage cfs,also have rheumatoid arthritis. I have some questions. If it is too heavy for me would it create symptoms after the first session? first session went...
  14. C

    Getting a Laptop

    Thanks frank. Yes, i meant wifi :)
  15. C

    Getting a Laptop

    Thank you so much all for your help. You have been so helpful. What do you thinkabout wirelass modem usage? Thanks.
  16. C

    Getting a Laptop

    Hi all It is first time i will get a laptop. I am lying down on my left side, knees oulled towards the chest. I need to get a laptop i can use at this position. Could not decide betwen apple mcbook and hp Pavilion with touch screen. Both have similar weights former being little lighter. I wonder...
  17. C

    Alternative healing center at Europe

    Thanks so much Mary.You are very helpful.Best wishes.
  18. C

    Alternative healing center at Europe

    Thank you so much. You are very kind. This looks quite expensive :)
  19. C

    Alternative healing center at Europe

    Thanks very very much Will check.
  20. C

    Alternative healing center at Europe

    Barb Thanks barb. I don't wish to visit emergency unless there is something really urgent as i am sensitive to medication. Actually i don't feel too bad. yes i have weight loss but i can live with it. this doctor said i was in starvation mode and i was going to die. he made me so upset, i could...
  21. C

    Alternative healing center at Europe

    i have adrenal fatigue since long time. It is nothing new. he says RA treatment only would not help me as i also have adrenal issues.
  22. C

    Alternative healing center at Europe

    He told me that i was in such a bad shape that it would be impossible for him to treat me. Could it be that he did not wish to treat me because i was complicated case He says mainstream medicine can not do much for me.
  23. C

    Muscle loss

    I think weight loss occur at later stages.
  24. C

    Alternative healing center at Europe

    He said that i was in cachexia -wasting syndrome- and it was difficult to reverse it.
  25. C

    Alternative healing center at Europe

    Thanks so much. I might need a second opinion.. can not go into details about my tests or treatments at the point. It will be too long and i am quite exhausted :)
  26. C

    Alternative healing center at Europe

    Really not sure..
  27. C

    Alternative healing center at Europe

    I live in Turkey. He says there are such places in Germany,Austria or Switzerland..
  28. C

    Alternative healing center at Europe

    I also have rheumatoid arthritis.No,he does not have any financial interest in this. He does not advise specifically anywhere. He just says i am too sick to be treated at home.thanks.
  29. C

    Muscle loss

    thanks/ what do you think caused it? or how did you recover? thanks.
  30. C

    Alternative healing center at Europe

    i lost about 25 pounds over the last two years. I am about 70 lbs at the moment.i also have muscle loss problem and chronic illness anemia. i am on adrenal support but he says it is not enough. he says that i need to be fed with special food,given vitamins intravenously,given cortisone etc so...