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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. Mya Symons

    Has the Pall Protocol Been Discontinued?

    Does anyone know if the Pall Protocol has been discontinued? I took a break from it for a bit and wanted to go back on it. I looked and I can't find it where I usually find it (Nutricology.com). Does anyone know where I can purchase all the supplements for the Pall Protocol? Have they...
  2. Mya Symons

    Unexpectedly Homeless in Two Weeks Because of Medical Bills

    So you know when they say things come in 3's? My computer just shorted out on me and I'm working with my phone now. It's a little bit difficult because of arthritis. So I will have to check back in here later. Thank you again for all your well wishes and help. I really appreciate it.
  3. Mya Symons

    Unexpectedly Homeless in Two Weeks Because of Medical Bills

    Thank you so much. Too everybody, thank you. We really appreciate it.
  4. Mya Symons

    Unexpectedly Homeless in Two Weeks Because of Medical Bills

    Sorry, I'm not sure how to add my signature to it. Can someone explain?
  5. Mya Symons

    Unexpectedly Homeless in Two Weeks Because of Medical Bills

    Here it is https://www.gofundme.com/Rebecca-William
  6. Mya Symons

    Unexpectedly Homeless in Two Weeks Because of Medical Bills

    Yes, we've looked into everything. Everybody we know is on a lease and can't take us. My husband's brother is fixing up his home to sell and it is all torn apart, but he might let us stay in a tent in the backyard. So at least we will have some electricity. That's good. Anyway, hopefully we...
  7. Mya Symons

    Unexpectedly Homeless in Two Weeks Because of Medical Bills

    Hello. I was supposed to be staying at my daughter's house for a few weeks because I expected my husband and I to both have jobs when we got here. It has actually been several months now. Her landlord discovered we are here. She is going to live with her boyfriend's parents and we don't know...
  8. Mya Symons

    Cardiologist and Beta Blockers

    It's not always in rhythm. It often speeds up and slows down and then back up again when I check it. Sometimes it will also flutter or skip a beat.
  9. Mya Symons

    Cardiologist and Beta Blockers

    It's high at rest. It is highest when I stand in one place, when I take a shower and when the temperature is hot (over 70 degrees fahrenheit).
  10. Mya Symons

    Cardiologist and Beta Blockers

    The higher my pulse rate the more out of breath, dizzy, and nauseous I feel. I've had a high pulse rate now for several years. So yes, I did, but currently I don't know if it is attributable to the blood pressure or the high pulse rate.
  11. Mya Symons

    Cardiologist and Beta Blockers

    Do you know the name of the genetic test? I doubt my insurance would pay for it, but just in case I should check it out.
  12. Mya Symons

    Connection between Fibromyalgia, Hashimoto's and Sjogren's Poll

    Yes, I have Hashimoto's and Fibromyalgia.
  13. Mya Symons

    Cardiologist and Beta Blockers

    Yes, but I have never had high blood pressure before. It's always been low. I have read online some patient complaints that Propranolol sometimes does the opposite of what it is supposed to do. I think that is what is going on with me. I've stopped taking it and am waiting for my doctor to...
  14. Mya Symons

    Connection between Fibromyalgia, Hashimoto's and Sjogren's Poll

    I'm interested. Have you seen the study where they found 40% of people with fibromyalgia also have small fiber neuropathy? They theorize it is autoimmune neuropathy. I always wondered if Fibromyalgia is a yet to be discovered autoimmune disease.
  15. Mya Symons

    Cardiologist and Beta Blockers

    I just took my blood pressure. It is up to 138/82 and my pulse is 142. I don't understand why this betablocker (propranolol) is having the opposite effect. I'm going to stop taking it. I wish my doctor would get back to me? Does anybody know why a betablocker would actually raise someone's...
  16. Mya Symons

    Cardiologist and Beta Blockers

    So I tried to get ivabradine and the doctor wouldn't give it to me until I tried a medicine approved by my insurance company. She said if the first medication doesn't work, she will give me ivabradine. She gave me propranolol instead. I took 5mg today. I have a blood pressure and pulse...
  17. Mya Symons

    Cardiologist and Beta Blockers

    Thank you for the information on this one. I've done some looking into studies on ivabradine and it seems like the best option right now. I'm going to go to the cardiologist later today and I'll mention this.
  18. Mya Symons

    Cardiologist and Beta Blockers

    The doctor called. The results of my adrenal test are still in normal range. There are a lot of suggestions on heart medicines. Thank you. My question would be this then: Which heart medicine would be best to lower my heart rate WITHOUT lowering my blood pressure? So which one would affect...
  19. Mya Symons

    Cardiologist and Beta Blockers

    I am looking at it again. I think I am reading it incorrectly. What they put there was just more information. Whew! I had a slight panic for a second.
  20. Mya Symons

    Cardiologist and Beta Blockers

    I got my test results back and it is looking like it is not POTS, it is something in the endocrinology area. Of course I have to go back to the doctor to interpret the results and for more testing, but, until then, does anybody know what this could mean? I am most worried about the "strongly...
  21. Mya Symons

    Cardiologist and Beta Blockers

    Thank you for the good information Vasha. I really appreciate it. I'm curious, do you also have Hashimoto's and did you have a weird craving for salt before you were diagnosed with Addison's?
  22. Mya Symons

    Cardiologist and Beta Blockers

    Did you have to test low on cortisol before you were prescribed the fludrocortisone? I just had a cortisol test and am waiting for the results. However, it was to test for Addison's disease so I am not sure if it is the correct test for cortisol problems other than Addisons. I assume so. My...
  23. Mya Symons

    Cardiologist and Beta Blockers

    What is the treatment for hypovolemia?
  24. Mya Symons

    Cardiologist and Beta Blockers

    I have a question on this. Do most Beta Blockers cause hyponatraemia or is it just that one?
  25. Mya Symons

    Cardiologist and Beta Blockers

    Thank you for the responses. I also have pretty severe tachycardia. The cardiologist said my heart isn't resting long enough to get adequate oxygen everywhere it needs to be. When I stand up, the blood pressure drops and the heart races even faster. However, the tachycardia is now all the...
  26. Mya Symons

    Body jerks in the evening?

    If you can find a doctor who specializes in fibromyalgia, that would probably be best. Your average doctor doesn't really understand Fibro and doesn't know that some of the symptoms are muscle spasms and imbalance. Specialists are hard to find, however. I found mine through a fibromyalgia...
  27. Mya Symons

    Cardiologist and Beta Blockers

    My cardiologist offered to prescribe me a beta blocker. She did not explain herself well. I am wondering if you all can tell me about your experience with Beta Blockers. Do they work and what beta blocker works best? I am having a hard time accepting her offer. Truthfully, I think it is...