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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. P

    Peptides - using and dosages

    Hi! I would think saline would burn. I regularly do peptide shots but use bacteriostatic water to mix. I do sq FYI thymosin alpha one is being looked at for covid infection. So def a good one to have
  2. P

    Ketamine

    I searched here and only found one thread from 3 years ago on ketamine. Anyone has used it since then and would like to share their experience? Thank you
  3. P

    Xyrem

    Hello everyone, Does anyone use Xyrem? Can you please share your stories? My husband is considering taking it. He is concerned since he is taking klonopin about 2-3 mg/day and trazodone 50 mg to sleep. Anyone take xyrem with some of these drugs? Please let me know! Thank you! Elena
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    IVIG

    Thanks everyone for your replies. He has a PICC line so doing it IV form is no problem. I calculated dosages per his weight and it came up to be 80 grams? Sounds like a lot? I might have calculated it wrong! Emma, he has CFS and lyme
  5. P

    IVIG

    Hello, My husband is super sick and we are trying to see if IVIG will help him. There's so much info and it's too difficult for me to do searches and go through it. Wondering if anyone can reply to this post with my questions: 1. What testing to do before IVIG? IGG, IGM, IGA? What am i...
  6. P

    New biomarker test for ME/CFS: NADPH measurement at Riordan Clinic

    Is test available to general public?
  7. P

    Florinef

    florineg Yes that is correct, but you cannot get it in US. We buy it from a Canadian pharmacy
  8. P

    Florinef

    My husband took it couple of years ago for OI due to CFS and it really helped his standing. However, he found that he had to continually increase the dose to get the same effect. He later switched to pure aldosterone from Canada which has been helpful but not like Florinef.
  9. P

    Electrolyte drinks suggestions +recipes?

    Lectrolyte drink from Dr. Enlander has no sugar in it.
  10. P

    Problems with Prof De Meirleir's clinic

    Can someone please share email for kalida? I would like to buy 4ME
  11. P

    Nexavir is the same drug as Kutapressin

    What is the website or email address for Netherlands supplier?
  12. P

    EECP

    Hello, Anyone on the boards have tried it? I know Dr. Enlader does it in his office. I am trying to figure out his protocol. I heard that he wrote a paper on it? If anyone has a link to paper or his protocol please let me know! I am trying to do EECP through a local cardiologist and i am sure...
  13. P

    magnesium levels not going up even with injections

    Ottie, I don't think blood levels of magnesium is a good indicator, so don't go by those. The best way to increase magnesium in the body is by injections, but it looks like you are doing those. Consider adding taurine as it helps. Also, you can try magnesium cream as well as nebulizing magnesium
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    Transformational Breathing

    I had a session on transformation breathing. It was about an hour and a half of breathing with the teacher's guidance. I felt lightheaded after the session probably to increase of oxygen, a little energetic, but it didn't last for more than couple of hours. I got the cd from their webiste...