• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. R

    Metabolic Trap//Who got worse on l-tryptophan?

    I tried tryptophan several years ago and it made me sicker for days. A few weeks later I triied it again with the same result and threw the rest out.
  2. R

    COVID-19 Long Haulers Act (& ME/CFS research $?) introduced

    This is from 5/20/21. Drs. Anthony Fauci and Walter Koroshetz on the Turning Point... : Neurology Today (lww.com) What is post-acute sequelae of COVID-19, or PASC, and how is it different from other post-viral syndromes like chronic fatigue syndrome? Dr. Koroshetz: We know very little about...
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    COVID-19 Long Haulers Act (& ME/CFS research $?) introduced

    Sorry, I don't know all the details and I don't have the mental stamina now to learn too much more. The bill has only been introduced so far. It may change. I am not aware of any specific figures on how much will be spent on ME/CFS It can be read here. I have not read it all...
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    COVID-19 Long Haulers Act (& ME/CFS research $?) introduced

    Based on my experience starting three decades ago as one of the few ME/CFS lobbyists, this looks good. I wish I was still able to be involved in it. We will eventually see if it helps us. A lot of efforts went into this and it is greatly appreciated. If I have this right- There was a hearing...
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    COVID-19 Long Haulers Act (& ME/CFS research $?) introduced

    Bipartisan Long Hauler Legislation Introduced Before Congress! Thanks to your dedication and advocacy efforts, the COVID-19 Long Haulers Act (H.R. 2754) was formally introduced before Congress! The legislation was first announced during Advocacy Week by Representatives Don Beyer (D-VA) and...
  6. R

    current OMF-funded research projects underway at the Open House - May 1st 2021

    I am getting a reverberation on the video.- anyone else?
  7. R

    Rivka Solomon speaks on NPR Newshour tonight (4/22/21): ME/CFS and Long COVID

    Read the Full Transcript Judy Woodruff: As we all hope and end to the pandemic is in sight, this past year leaves a spotlight on a disease often overlooked, chronic fatigue syndrome. This week, more than 1,000 people living with chronic illnesses lobbied members of Congress for more support...
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    Rivka Solomon speaks on NPR Newshour tonight (4/22/21): ME/CFS and Long COVID

    Rivka on Twitter: "Tonight, the @PBS @NewsHour w/ @JudyWoodruff airs a piece on #MEcfs. Thx to an amazing @MassMECFS volunteer for this graphic. (Pix is of an @unrestfilm event yrs ago. Slide behind me is a statement of support for people w/ ME fr the entire Massachusetts Congressional...
  9. R

    Laura Hillenbrand articles on ME/CFS

    This interviw is from several years ago but I think it is very good.
  10. R

    Coronavirus: what your country is doing, how you feel & general discussion

    Is there a better thread that this should also be posted on? These are two new articles. "What Doctors on the Front Lines Wish They’d Known a Month Ago" "At Lincoln Hospital in the Bronx, Dr. Nicholas Caputo followed 50 patients who arrived with low oxygen levels between 69 and 85 percent...
  11. R

    What Doctors on the Front Lines Wish They’d Known a Month Ago: proning

    Is there a better thread that this should also be posted on? These are two new articles. "What Doctors on the Front Lines Wish They’d Known a Month Ago" "At Lincoln Hospital in the Bronx, Dr. Nicholas Caputo followed 50 patients who arrived with low oxygen levels between 69 and 85 percent...
  12. R

    Coronavirus: what your country is doing, how you feel & general discussion

    "Ford, 3M, GE and the UAW to build respirators, ventilators and face shields for coronavirus fight"
  13. R

    Coronavirus: what your country is doing, how you feel & general discussion

    "India’s prime minister decrees 21-day lockdown to curb virus" https://apnews.com/176c1393bb1d93a2fb39d2f714d04f8b
  14. R

    Coronavirus: what your country is doing, how you feel & general discussion

    WHO daily situation reports https://www.who.int/emergencies/diseases/novel-coronavirus-2019/situation-reports
  15. R

    Coronavirus: what your country is doing, how you feel & general discussion

    The Guardian continues to run a daily digest of stories from around the world. https://www.theguardian.com/world/series/coronavirus-live
  16. R

    Coronavirus: what your country is doing, how you feel & general discussion

    There are other stories of getting ventilators from outpatient and veterinary clinics as well as military and "obsolete" stockpiles.
  17. R

    Coronavirus: what your country is doing, how you feel & general discussion

    Other clever medical supply solutions hashtag- https://twitter.com/hashtag/macgyvercare?src=hashtag_click
  18. R

    Coronavirus: what your country is doing, how you feel & general discussion

    Is there another thread this should also go in?
  19. R

    Coronavirus: what your country is doing, how you feel & general discussion

    "As bioethicists, we teach medical students, residents and fellows that every clinical encounter involves moral and ethical decision-making. As these three stories illustrate, the pandemic sharply focuses this paradigm and raises the stakes. What can clinicians do when faced with these kinds of...