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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. Z

    Post Valcyte Fatigue: Has anyone else experienced this?

    I've had sinus issues as well over the years. They can bring phantom smell sometimes. I would suggest colloidal silver nasal flushes. Described here -> http://www.colloidsforlife.com/silver_Sinus_Infection_Sinusitis.html I was told that Varicella virus can be active in the nasal passages so I...
  2. Z

    Post Valcyte Fatigue: Has anyone else experienced this?

    In a nutshell, tested positive for EBV, HHV6 and Varicella Zoster & low Natural Killer cell function by Dr. Kogelnik. I was prescribed Valcyte at 1800mg per day for 3 weeks followed by 6 months of 900mg day. It was well tolerated and during the 5 month mark I was able to walk for 25 minutes...
  3. Z

    GCMAF Questions

    Bykerchic I have the same problem with histamine. I dosed the Gc-Maf at 1/50th of a Noakes vial per week (added sterile water, preloaded syringes and froze). Felt better and tolerated for several months but this faded discontinued after about 4 months in favor of immunovir. Also felt better on...