• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. K

    BMJ blog: Learning from doctors with long covid

    Learning from doctors with long covid - The BMJ
  2. K

    Guardian article about Covid long-haulers & ME/CFS

    That article also has a link to this one I'm a consultant in infectious diseases. 'Long Covid' is anything but a mild illness | Long Covid | The Guardian
  3. K

    UK: Telegraph article 5th June 2017

    http://www.telegraph.co.uk/health-fitness/body/changed-career-fifties-struck/
  4. K

    Daily Mail awareness article

    http://www.dailymail.co.uk/news/article-3590259/Teenage-girl-battling-chronic-fatigue-leaves-wheelchair-bound.html
  5. K

    Gut controls brain inflammation (Multiple Sclerosis)

    Researchers find evidence that diet, gut microbes can remotely influence brain inflammation https://www.sciencedaily.com/releases/2016/05/160509115131.htm "For the first time, we've been able to identify that food has some sort of remote control over central nervous system inflammation,"...
  6. K

    UK BBC1 Mon 18 Jan: Panorama - Can You Stop My Multiple Sclerosis? [Crossover cancer treatment]

    This claims Rituximab is safer. https://neuroimmunology.wordpress.com/2011/11/03/rituximab-vs-ocrelizumab-in-multiple-sclerosis/ I don't know who writes it but they also have a twitter account https://twitter.com/NeuroImmunology
  7. K

    4th/5th December Invest in ME donation matching

    Matching funds are still available! https://secure.thebiggive.org.uk/donation/to/6239/24084/
  8. K

    4th/5th December Invest in ME donation matching

    There are still funds available to double your donation. https://secure.thebiggive.org.uk/donation/to/6239/24084/
  9. K

    4th/5th December Invest in ME donation matching

    Matching funds for today are now used up. £800 was raised today. We have another chance again tomorrow Saturday 5th December at midday. https://secure.thebiggive.org.uk/donation/to/6239/24084/
  10. K

    4th/5th December Invest in ME donation matching

    https://www.thebiggive.org.uk/christmas-challenge/faqs/supporter-faqs/
  11. K

    4th/5th December Invest in ME donation matching

    The Big Give Christmas Challenge opens on Friday 4th December at 12pm (midday). At this time the Big Give funds are released to match donations. So when a donation to Invest in ME is made as close to 12.00 as possible the it could be doubled in value. The same thing will happen again Saturday...
  12. K

    UK Daily Mail: NHS service for Tired All the Time

    http://www.dailymail.co.uk/health/article-3298102/Hope-feel-TATT-s-Tired-Time-Unique-NHS-service-launched-combat-long-term-fatigue.html
  13. K

    UK Telegraph: New illness spread by ticks found similar to Lyme disease

    http://www.telegraph.co.uk/news/health/news/11953087/New-illness-spread-by-ticks-found-similar-to-Lyme-disease.html
  14. K

    Billionaire's whole family is struck with Lyme disease

    http://www.dailymail.co.uk/health/article-3279697/So-truth-Lyme-disease-epidemic-Suddenly-illness-doctors-blame-tick-bites-said-wave-devastating-symptoms.html "This month, researchers writing in CID said patients with chronic Lyme disease bear remarkably strong similarities to patients with...
  15. K

    Help!! Climbing Snowdon in 2 weeks and need some advice! :-)

    If you do this, you could be still regretting it in five years time.
  16. K

    Billionaire's whole family is struck with Lyme disease

    http://www.dailymail.co.uk/news/article-3244080/SEBASTIAN-SHAKESPEARE-Billionaire-s-family-struck-Lyme-disease-Phones-4u-founder-admits-completely-devastating-diagnosis.html
  17. K

    Invest in ME Selected for the Big Give Christmas Challenge 2015 - needs £2500

    http://www.investinme.org/IIME-Newslet-1508-02.htm
  18. K

    Get a Ringside Seat for Invest in ME’s 10th International Conference on 29 May

    Thank you for the conference reports. Invest in ME are great.
  19. K

    UK: Volunteers needed for Invest in ME research

    http://www.investinme.org/IIME-Newslet-1504-01.htm
  20. K

    Invest in ME May conference: Rituximab, Hornig/Metabolism, Exercise, Chia

    IiME donation matching today https://www.justgiving.com/ldifme/ When this page reaches £1329, a further £1000 will be added as an offline donation I think this is for March, so ends today. Currently at £995
  21. K

    Invest in ME International Conference 29 May 2015, London

    Dr Luis Nacul from the London School of Hygiene and Tropical Medicine http://www.investinme.eu/IIMEC10-news.shtml
  22. K

    Vote for Dr Myhill

    https://witness.theguardian.com/assignment/54d47c0ce4b00cb437de4585/1428927
  23. K

    Invest in ME International Conference 29 May 2015, London

    Professor Sonya Marshall-Gradisnik, Dr Don Staines, Dr John Chia http://www.investinme.eu/index.shtml#presenters
  24. K

    Scientists use fermented stools and gut-smelling pills to help spot disease

    http://www.dailymail.co.uk/sciencetech/article-2992212/Can-farts-reveal-cancer-Scientists-use-fermented-stools-gut-smelling-pills-help-spot-disease.html
  25. K

    Daily Mail: Report urges new name, better diagnosis for chronic fatigue

    comments accepted here http://www.dailymail.co.uk/health/article-2949369/Chronic-fatigue-real-disease-Doctors-draw-new-guidelines-diagnose-condition.html
  26. K

    Invest in ME International Conference 29 May 2015, London

    http://www.investinme.eu/index.shtml Some presenters now announced http://www.investinme.eu/index.shtml#presenters Dr Amolak Bansal, Dr Jo Cambridge, Professor Mady Horning, Professor Jonas Berquist, Dr Claire Hutchinson, Dr Oystein Fluge / Professor Olav Mella, and more yet to be announced.
  27. K

    Invest in ME/Prof Jonathan Edwards statement on UK Rituximab trial, 30 July

    Fundraising for the UK trial is now at £347,046 of £350,000. Less than £3000 until target.
  28. K

    Invest in ME gut research fundraising target £100,000

    I don't know any more, sorry. It says it is for the next phase.
  29. K

    POTS Associated with Significant Symptoms & Impairment -- BMJ article & pop press response

    http://blogs.telegraph.co.uk/technology/marthagilltech/100013845/me-yuppie-flu-and-why-those-with-treatable-diseases-get-more-sympathy/
  30. K

    Telegraph: ME, 'yuppie flu', and why those with treatable diseases get more sympathy

    http://blogs.telegraph.co.uk/technology/marthagilltech/100013845/me-yuppie-flu-and-why-those-with-treatable-diseases-get-more-sympathy/