• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. mindglow

    Warning to people considering klonopin/clonazepam/rivotril

    yes, I took the survey prior to posting. I thought my post here would help further prove the point on our current benzo theme.
  2. mindglow

    Warning to people considering klonopin/clonazepam/rivotril

    Full of hope and excitement I entered my doctors office showing him a print out of this: http://phoenixrising.me/treating-cfs-chronic-fatigue-syndrome-me/the-first-symptom-sleep/treating-chronic-fatigue-syndrome-mecfs-and-fibromyalgia-a-prescription-for-sleep/klonopin Dr. David Bell's quote...
  3. mindglow

    B-12 - The Hidden Story

    I also have the plastic bottle
  4. mindglow

    B-12 - The Hidden Story

    Thank you so much for explaining this. Is it possible to buy active cobalamin adenosylcobalamin at the iherb.com store and if so, which is generally recommended as the one that actually works. thank you
  5. mindglow

    B-12 - The Hidden Story

    Thank you but it still doesnt actually say how much of each of the following to take daily unfortunately :( Solgar 800mcg as metafolin (In mouth upper lip for 45 minutes) Jarrow Methyl b-12 5000mcg (In mouth upper lip for 45 minutes) Enzymatic Therapies - B12 Infusion (In mouth upper lip for...
  6. mindglow

    B-12 - The Hidden Story

    I have re-read your post a number of times and I do apologize if I missed it but what other than the Methyl b12 do we need? Currently I am taking Solgar 800mcg as metafolin (In mouth upper lip for 45 minutes) Jarrow Methyl b-12 5000mcg (In mouth upper lip for 45 minutes) Enzymatic Therapies...
  7. mindglow

    Can you feel klonopin hit your brain ?

    I dont understand how Klonopin something that makes you feel sleepy helps with something like CFS!! I am sleepy all day, a klonopin is bound to knock me the **** out???! not perk me up. Have I misunderstood something here? I understand that klonopin calms the nerves down in some way and this...
  8. mindglow

    Comment by 'mindglow' in 'CFS/Neurasthenia in Taiwan (ME/Chronic Fatigue Syndrome)'

    MESSAGE FROM ANOTHER USER: I was actually in Taiwan for about 6 months seeing various doctors for CFS. Unfortunately, I don't believe there are any experts there. Conventional medicine in Taiwan is good, but in terms of CFS knowledge, they are behind the United States and Europe I would say. I...
  9. mindglow

    Vitamins for CFS

    o_O
  10. mindglow

    Vitamins for CFS

    thanks. Just to be sure, is it this? - http://www.iherb.com/Thorne-Research-Basic-Nutrients-V-180-Veggie-Caps/18123
  11. mindglow

    Vitamins for CFS

    high grade neuro formula multi-vitamins for CFS on iHerb.com - can anyone recommend? thank you
  12. mindglow

    mindglow

    Mindglow (James Ball) is also the director of the Buddhist Forum http://buddhismis.com
  13. mindglow

    CFS/Neurasthenia in Taiwan (ME/Chronic Fatigue Syndrome)

    While trying to find a CFS specialist in Taiwan I discovered that they actually refer to CFS here as 'Neurasthenia' in TCM (Traditional Chinese Medicine) ( Trad Mandarin: 神經衰弱; pinyin: shénjīng shuāiruò) which is interesting and translates into 'Nervous Breakdown'. In China and Taiwan...
  14. mindglow

    Getting treated/diagnosed in Taiwan is troublesome

    While trying to find a CFS specialist in Taiwan I discovered that they actually refer to CFS here as 'Neurasthenia' ( traditional Chinese: 神經衰弱; pinyin: shénjīng shuāiruò) which is interesting and translates into 'Nervous Breakdown'. In China and Taiwan, Traditional Chinese medicine describes...
  15. mindglow

    Getting treated/diagnosed in Taiwan is troublesome

    I dont really have the time/money to go abroad to see a doctor right now - If I were to go anywhere it would be Japan as that would be the closest to me....does anyone know how long I would need to stay there in order for them to do all the necessary tests to rule out other possibilities? I...
  16. mindglow

    Getting treated/diagnosed in Taiwan is troublesome

    I have gone through http://www.imeassoc.com/ (International Consensus Criteria) In A,B and C I can confirm I have at least one symptom in each category. However I cant say confidently enough that I have anything in the D category - its diffficult to say really...I do have some serious sweating...
  17. mindglow

    Getting treated/diagnosed in Taiwan is troublesome

    Hi all, firstly, thank you to whoever runs and supports this wonderful forum! Ok so here goes...for around 8 months now I have been waking up in the morning and getting around 2 hours of wakeness before I suddenly get hit by the sledgehammer of fatigue, I can only describe it as feeling like...
  18. mindglow

    First Hydroxocobalamin B12 shot today and B12 overdose

    Xandoff...still more effective than taking them orally I would imagine. I am having B12 injections 3x a week thanks
  19. mindglow

    First Hydroxocobalamin B12 shot today and B12 overdose

    plugging - present participle of plug (Verb) Verb: Block or fill in (a hole or cavity). Insert (something) into an opening so as to fill it. In other words stick it where the sun doesn't shine for better absorption (favourable results so far)
  20. mindglow

    First Hydroxocobalamin B12 shot today and B12 overdose

    Today I was administered with my first Hydroxocobalamin B12 shot - 6 hours later and after 'plugging' (please dont make me explain) some further b12 capsules in the form of 'Mecobalamin' starting to get concerned that If I continue like there may be a danger of Vitamin B overdose. Taken today...
  21. mindglow

    Simplified Methylation Protocol Revised as of Today

    unfortunately MethylMate B is out of stock so im going to try the Active B12 protocol instead and will come back to this later if it fails.