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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. S

    The Truth About the Ice Bucket Challenge

    I agree with @DanielBR, research and medical studies should be supported by public funds, because our health cannot be in hands of pharmaceutical or insurances companies. I have always supported the idea of a public health system, and if the governments don't want to spend too much money in our...
  2. S

    The Truth About the Ice Bucket Challenge

    We should make an Ice Bucket Challenge for CFS/ME but not with iced water please... I am very serious, no one knows about this illness. Me, before getting sick, i had no idea about it, and i worked in a pharmaceutical company!. Also, some donations for the cause would be nice, specially, for...
  3. S

    Do you sunburn? (making it a poll, easy to answer)

    I am very white and pale. But before i got sick i could have hours of sun and never got tanned or burned. After all i was born in a tropical country and i spent most of my childhood in the beach. After i got sick i tan very easily, even without sun, which is an indication of adrenal...
  4. S

    I need to lose some weight

    So, when i first got sick i was 58 kgs which is my perfect weight. During onset i lost 6 kgs, and i looked too skinny, corpse like. Very soon i realised that i needed to change my diet in order to feel better, so i have been two years without gluten, dairy and sugar. Instead of keeping my weight...
  5. S

    Any Scuba divers out there w/severe CFS?

    How many of us were scuba divers before getting sick? I used to scuba dive here in my country, but no so often, maybe once every two months. Now i know i couldn't carry the weight of the equipment which is about 30-35 pounds from the store to the beach, so i haven't gone scuba diving since...
  6. S

    Positive EBV IGM. Reactivated? Or is it lyme?

    @heapsreal thank you, by the way, i haven't tested HHV6, do you happen to know what other name they use in the laboratory for that virus? I have been through the list of test they offer and i can't find it. Is it roseola or rubeola perhaps?
  7. S

    Positive EBV IGM. Reactivated? Or is it lyme?

    @heapsreal thank you, could you give me some idea of the valtrex protocol? Because if the doctor refuse, i can buy it in the drugstore and take it by myself. Yes, i am that desperate...
  8. S

    Positive EBV IGM. Reactivated? Or is it lyme?

    @maryb thank you for your input. So, maybe it is true what i read about the EBV reactivation and the connection with lyme. I am going to talk about it with the doctor, I just hope that she is open minded about it. @soxfan in the tests i did two years ago included the four that you mentioned...
  9. S

    Positive EBV IGM. Reactivated? Or is it lyme?

    Hello all, Still looking for answers here so I went to a new doctor and after hearing all my symptoms she told me it could be a chronic infection. Really!? Never went through my mind jeje Anyway, she ordered serology for EBV and CMV which I did but i kind of knew the results already. I am...
  10. S

    Is it fibromyalgia or cfs?

    Thank you for your inputs. I have an aunt that has been living with fibromyalgia for 20 years, and she's got sjogrens and other health issues but not cfs. So, I guess that fibromyalgia runs in my genes. I understand also that the main symptom in cfs is PEM, but I'm not sure if i have that one...
  11. S

    Is it fibromyalgia or cfs?

    Hello again! So, the diagnoses that i received in august 2012 was fibromyalgia, but i had doubts because these symptoms remained after a viral infection. I have all the symptoms of both syndromes, how can i tell them apart?
  12. S

    Corticosteroids such as prednisone given during an acute viral infection may trigger ME/CFS

    I never thought about it, but now that you mention this, I remember having a really bad tendinitis in my knee and heel, five years ago. It was consequence of overtraining without proper warming before. When i went to the doctor he inyected me something to help with the inflammation, I'm not sure...
  13. S

    Is it a new disease or its CFS ?

    Is your doctor willing to treat you with antibiotics for the TB? I suggested to my doctor that i could have TB and she laughed at me. She said that i was not in the risk groups (whatever they are) and in the case i had TB i would be dead by now. According to my doctors, i'm the healthiest...
  14. S

    Is it a new disease or its CFS ?

    Thank you for your input. Unfortunaly for me i HAVE to have breakfast. If i take my 20 morning pills without food, i get a huge vomiting and fainting crisis. But i will take your advice about the dinner. I need to lose some weight i have put on in the last weeks. Maybe is the thyroid, i don't...
  15. S

    Is it worth seeing an ME/CFS specialist?

    I've been for a year in a gluten/dairy/yeast/caffeine free diet. The only thing i have not been able to cut is sugar, but i'm trying. Yes, i have gotten better enough to study, but i can't work full time yet. I still don't feel "normal" since i can do activities like walking or going to...
  16. S

    Have you tried a home hepatic cleaning?

    Thank you Sushi jeffrez and AbbyDear. I guess that to see the benefits you have to do several, i'm still considering the risk of a relapse. If i decide to take the risk, i will post my experience.
  17. S

    Have you tried a home hepatic cleaning?

    Hey guys, I was reading about hepatic cleanings and it is indicated for these followings pathologies (sorry, i couldn't find a list in english, but i bet you understand most of them): Cáncer Candidiasis Depresión Parkinson Cefaleas Tinitus Sida Alopecia Gota Esclerosis Múltiple y Lateral...
  18. S

    Andrew Wakefield links autism to CFS

    Thank you for your answer about having a kid with autism Madison, that idea is hunting me since i became sick and found out the two illness similarities. I don't have a CFS diagnosis yet, though. But i think my problem is not being able to get rid of toxins, i have a candida overgrowth, which...
  19. S

    Andrew Wakefield links autism to CFS

    I'm convinced that CFS and autism are linked somehow. I say it because i never had any sign of autism growing up. I was a very social kid, finding new friends all the time, good results at school. When i was 26 i even worked in sales, with a lot of success. I can't imagine an asperger working as...
  20. S

    Is it a new disease or its CFS ?

    Oh dear, sounds so familiar... Anyway, it would be interesting to know the functioning of your adrenal glands. Ask a doctor if you could test that.
  21. S

    Is it worth seeing an ME/CFS specialist?

    That's an excellent idea, Tania. If any of those patients are reading this, i would appreciate to pm me and give me their opinion. Sushi already did and gave me some valuable information. Thanks
  22. S

    Is it worth seeing an ME/CFS specialist?

    Dont get me started on doctors! I've been in 30 different ones during one year and half, i've gotten the "it's-all-in-your-head" speech 28 times, one diagnosed me with fibromialgya and last, my psychiatrist, who believe me and she is trying to help me, but of course, there's not much she can do...
  23. S

    Tachycardia -- What are effective treatments?

    Thanks SOC, Sushi and Urbatravels. I hope i can find it in UK and i will give it a try.
  24. S

    Tachycardia -- What are effective treatments?

    Hi SOC, I'm very glad to read that you are doing so much better. Just one question: Do you make the electrolyte drink yourself? Or do you buy it? Do you mean gatorade or something like that? Thanks
  25. S

    Is it a new disease or its CFS ?

    Hi UKXMRV, i was reading that candida overgrowth can damage your adrenals. Do you have candida issues? I am cleaning and detoxing my body, with diet and supplements. I hope i improve with that.
  26. S

    Is it a new disease or its CFS ?

    Hi guys, i havent forgotten about you, but i have been kind of busy these days. I'm working on my adrenal fatigue, with some herbs, trying to get rid of the candida, and working on improving my sleep quality. I'm glad to say that i lower my sleep medicine dosis (seroquel) to half and it's...
  27. S

    Is it adrenal fatigue?

    Hi Caledonia, Just to know, what does "methylation" means? I would like to try that. Thanks.
  28. S

    My worst symptoms, need tips please

    About constipation, i can relate. I have suffered from it many years, even before i got sick. It's a family thing i guess, specially because in my family we follow the Atkins diet. Anyway, constipation got worse after i got sick, and i was tired of laxants, so, i found something in Amazon that...
  29. S

    Tachycardia -- What are effective treatments?

    I was diagnosed with sinusal tachycardia and chest angina, and the doctor put me in procolaran 5 mg (ivabradine) twice dayly. It has improved a little with the tachycardia, and a lot with the chest angina, that is gone. I don't know the cause but there's something curious i want to share. I'm...
  30. S

    Is it a new disease or its CFS ?

    First you say this: And then you say this! Man, really? Then i would rather have hiv! At least there are treatments avalaible! Anyway, Wyoming, i beg you not to worry anymore about hiv. I'm willing to bet that your next and hopefully last hiv test will be negative. And about the above...