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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. L

    Has anyone "pushed through" "exitoxicity" type sypmtoms?

    For me it was NAC that pushed me over the edge. I am +/- for two CBS SNPs. It takes me about a week or so of no NAC to simmer back down. Because I am COMT +/+ I just started using hydroxyB12 vs Mb12. I have not tried potassium. Perhaps I should because muscle cramps are a big issue for me.
  2. L

    Rich------Suggestions for CBS Mutation

    Again, thanks for the great advice. You gave me a brain cramp with your explaination on 5P5. :ill: I love it. The body is so complicated - which is amazing and wonderful when things are all working the way they ought to. On Lyme - I've never been tested. Something to look into I suppose...
  3. L

    Rich------Suggestions for CBS Mutation

    Thank you Rich - that was informative. I'm sure it is difficult to repeat the same information over and over. It is a shame there isn't an easy way to organize all the information that has been exchanged on this forum!! I'm getting methlyfolate (Metafolin) and mB12 in two forms - supplement...
  4. L

    Rich------Suggestions for CBS Mutation

    Hi Rich. I'm curious what specifically about FV's panel made you think that CBS was not an impact. The reason I ask is I have a similar results (ok SAMe, low glutathoine). I'm trying to learn as much about the various "levers" in the pathways since I'll be stuck trying to manage this for...
  5. L

    Help with Methlyation Panel

    Hi - I have recently had a methlyation panel done. I've also done the 23andme testing. I'm working with an MD, but I wanted to post my results here with the hope of gaining a better understanding of what the heck is going on with my biochemistry. I've posted some 23andme results here...
  6. L

    Help Interpreting 23andme Results.

    Well I double checked against the calico spreadsheet and what I posted is correct. I don't know about SUOX or NOS. I am sensitive to perfumes and get hives from sulfa based antibiotics, so my money is on the SUOX not being 100%. :confused:
  7. L

    Does anyone get side affects when taking Folate 800 mcg (as metafolin)

    I have those issues. I also feel dizzy. Metafolin seems to make my lymph nodes swell up. Don't seem to have that issue with mB12.
  8. L

    Help Interpreting 23andme Results.

    Thanks greenshots. I'll look for the calico spreadsheet. I have run through Prometheus, but I'm so new to the info I'm not sure it helped me. One thing I did notice about Prometheus is that it seems to contradict the 23andme interpretations. I've read the heartfixer info 3 times. :p It is...
  9. L

    Help Interpreting 23andme Results.

    Hi I'm new to all of this and I find it all so confusing. I ran my 23andMe results thru hixxy's program and got the following: MTHFR A1298C +/- MTHFR C677T +/- MTHFR 03 P39P +/- MTRR R415T +/- MTRR 11 A664A +/- ACAT1 02 +/- VDR BSM/TAQ +/- CBS A360A +/- CBS C699T +/- COMT H62H +/+ COMT V158M...