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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. L

    Can’t get Valcyte, other options for EBV, HHV6

    I’m having a difficult time getting more prescriptions for Valcyte because of the immune suppression side effect (I’m also fighting chronic Lyme). What else can I take to treat EBV, HHV-6, and CMV? Would Famvir and Valtrex be an alternative? I read Famvir targets HHV-6 and CMV and Valtrex...
  2. L

    Valtrex post-Valcyte to stay well

    HHV-6 and CMV and EBV… How do you keep HHV-6 and CMV from reactivating then if not Valtrex? I’m talking long-term maintenance….
  3. L

    Valtrex post-Valcyte to stay well

    Have any of you who have gotten much better with Valcyte then switched to maintenance Valtrex to keep your infections in dormancy? Does this protocol work?
  4. L

    CFS Dr. north of SF?

    Hi, Can anyone recommend a CFS Dr. in SF or north of SF? Thank you so much.