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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. ldn

    Modafinil UK

    Anyone have a reiiable supplier for modafinil / modalert in the UK ? My regular guy seems to have dissapeared since my last purchase-(buymodafinil.co.uk).Gives me a couple of decent days of functionality a week. Many thanks, LDN
  2. ldn

    23 and me raw data reader for mac osx

    Many thanks for Mac info- i'll give it a go tomorrow- and the Hitler/CFS clip was spot on !
  3. ldn

    23 and me results-

    Would someone be kind enough to fill me in on my methylation status- Ive had my 23 and me results back. The main ones are rs1801131 GT and rs1801133 GG. There is a list of about 80 mthfr snp's ,are there any other key ones in terms of mutations and CFS/methylation implications ? and which...
  4. ldn

    23 and me raw data reader for mac osx

    Anybody help ???- I have my 23 and me results but need to find a download to read the data compatible with Mac OSX 6.1 any other mac data crunchers out there ? Many thanks,LDN
  5. ldn

    POTASSIUM- when does the Hypokalemia stop ??????

    Thanks Fredd- taking potassium supplements definitely counteracts the drops- I just became concerned about taking too much and its interaction with the perindopril.The two days in London created an exceptional demand as it was the most active I have been since starting the methylation program...
  6. ldn

    POTASSIUM- when does the Hypokalemia stop ??????

    Hi Fredd Many thanks for your info- at the moment I am following Rich Van Konynenburg's simplified protocol ( with Dr Myhills UK adjustments)- could you please send me a link to the version which includes adb12 and l-carntine fumarate . Have been in London the last two days with quite a lot...
  7. ldn

    POTASSIUM- when does the Hypokalemia stop ??????

    Below is a link to Dr Myhill's version of the methylation protocol with details of UK available supplements. http://drmyhill.co.uk/wiki/CFS_-_The_Methylation_Cycle
  8. ldn

    POTASSIUM- when does the Hypokalemia stop ??????

    Hi Adreno and Daisychain I take about 2400mg magnesium chloride a day and notice a real difference for me compared to other forms of mg. I have had the mitochondrial function test done twice now ( ATP to ADP conversion etc ) through Breakspeare and Dr Myhill both with extremely poor results...
  9. ldn

    Simplified Methylation Protocol Revised as of Today

    Hi Rich Have been on the methylation program for about four weeks now-definite drops in potassium- supplementing with approx 1600mg tabs per day plus one or two bananas. Will the hypokalemia correct itself after a certain period on the active B's or will it only stop when I come off the...
  10. ldn

    POTASSIUM- when does the Hypokalemia stop ??????

    Have been on the methylation program for about four weeks now-definite drops in potassium- supplementing with approx 1600mg tabs per day plus one or two bananas. Will the hypokalemia correct itself after a certain period on the active B's or will it only stop when I come off the methylation...
  11. ldn

    MTHFR -any doctors or labs in the UK ??

    All biological guidance much appreciated- I am a typical arts right brainer.Have dived in and gone for 23 and me test-is there a novices thread to decoding the results ?, and a simpletons guide to principles of methylation anywhere on this excellent site ?
  12. ldn

    MTHFR -any doctors or labs in the UK ??

    Howdie doodie New kid in town. Keen to know if anyone has found any doctors in the UK specialising in MTHFR or any labs offering the test. Many thanks.