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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. Michael Dessin

    Gcmaf-reactions and side effects

    Im thinking we have metabolism problems with D e.t.c. that patients with other disease may not have?
  2. Michael Dessin

    Gcmaf-reactions and side effects

    Totally agree...Us CFSers are a different breed for sure..we seem to go against the grain with everything
  3. Michael Dessin

    Questions for GcMAF experts

    It is much cheaper in Europe...the hard part is getting it to the U.S. thus more $ in taking the risk...in saying that..Enlanders price should include labs and visits e.t.c. or else its way expensive
  4. Michael Dessin

    Gcmaf-reactions and side effects

    Some patients have gotten very sick supplementing vit D w gcmaf
  5. Michael Dessin

    Questions for GcMAF experts

    Thats nuts and nearly double what it costs..You can get it much cheaper than that
  6. Michael Dessin

    Top Tiered CFS Physicians

    Alternative medicine practitioners who specialize in homeopathics, pleos, acupunture, balloon dilation, cranio..and other energy medicines have shown the best results..plus docs using ampligen or GcMAF
  7. Michael Dessin

    Article: Ch, Ch, Ch, Changes...Myalgic-encephalomyelitis Now and Then: 75 Years of ME

    I think Fukuda patients can be ME patients...patients within various CFS definitions can be ME patients..The disease ME has stages and can have different symptoms and appear very different with different biomarkers throughout progression
  8. Michael Dessin

    Article: Ch, Ch, Ch, Changes...Myalgic-encephalomyelitis Now and Then: 75 Years of ME

    I truly beleive Hydes description of ME..all of whats mentioned as it describes what Ive experienced...and totally right on researchers wanting testable evidence :( However I think there is conflicting views on what gradual onset really is. ME really has no gradual onset.. its always...
  9. Michael Dessin

    Article: Ch, Ch, Ch, Changes...Myalgic-encephalomyelitis Now and Then: 75 Years of ME

    Ric, how about this for manners,...You go on a long tirate about me, just because I thought Jill was ridiculous in her comments. Jill has a long history of putting down many people besides her ridiculous comments on her short stint with PH. If anyone, I am probably one of the most sensitive to...
  10. Michael Dessin

    treatment for worms has helped my gut a bit but why?

    Para Klenz by antitox is great for these parasites...they cause the most problems but easy to get rid of..6 weeks but should do off and on for a lengthy time. Klinghardt also talks alot about CCSVI at that conference which is a huge issue for ME patients! I just started balloon dilation which...
  11. Michael Dessin

    Antiretroviral Trial

    Undcvr/Jasper-- You've said alot of really good info in your posts, I think your really accurate on much of it. Hang in Sue
  12. Michael Dessin

    colonics

    Thanks Slay ;) UK...Im sorry to hear that, its so difficult tackling this disease. Just to let you know, anything that was detox related made me feel sicker for a long time, years. The physical benefits did not show for quite sometime, when enough toxins had been eliminated as well as focus...
  13. Michael Dessin

    colonics

    Removing that many toxins at once is not a waste of time..detox is needed..there is no way to detox faster than colonics..in regard to the other stuff I've noticed fungal/candida scripts never made any difference to me.. was like I was resistant to any medication as far as that. Colonics like...
  14. Michael Dessin

    colonics

    This is great feedback and as I said, its really true that they can be beneficial but can make people ill as well. There really is no doubt that colonics get rid of a shit load of toxins ;) Which is only a good thing. But the methods of removal by colonic or home enemas can be very harsh on...
  15. Michael Dessin

    Article: WPI Says No to Retraction Request/ Levy Study Dashes Hopes /NCI Shuts the Door on XMRV

    Enterovirus is most likely the viral trigger for the disease ME, doesnt mean we dont have retrovirus' as well. We have dozens upon dozens of virus, crazy stuff most people dont get, so having a retrovirus too would'nt be a surprise. We have lots of ups and downs in this disease because unlike...
  16. Michael Dessin

    colonics

    Colonics can be very harsh on the gut lining, which is already leaky in most CFS patients. They are extremely beneficial in clearing toxins, however on the flip side can make your gut much worse and you can get very sick. The first time I did a colonic I got very ill as it made my gut more...
  17. Michael Dessin

    Am I invisible ?

    Yeah and do you know the adverse effects of Tylenol? Just ask your physician about the IGG, CFS physician that is. What triggered mine?... hmm genetics than the virus
  18. Michael Dessin

    Am I invisible ?

    Um yes Im that guy..great comments from Willow and others. Really does boil down to politics. As far as treatment, from my experience IGG is the best option for those who just come down with CFS, fresh IGG to clear the virus before it gets deep into the tissues and cause the more dramatic...
  19. Michael Dessin

    Am I invisible ?

    SaveME..first words of advice if you have CFS, never ever listen to what the CDC/NIH says about your condition. Second, find a doctor who will administer IGG IV's and start Glutamine for your stomach in conjunction..there is a chance that that combo can make you well at your age and length of...
  20. Michael Dessin

    Comment by 'Michael Dessin' in 'PEM from HOME SUPPORT'

    Your in a tough predicament, you need assistance but at the same time the only assistance available is not properly trained in working with ME patients regardless of what they think. Is there anyway you can have your doctor write a note to them in regard to your concerns and how to help you in...
  21. Michael Dessin

    My recovery story

    I think both the last statements about mercury are valid. Detox and removing fillings are a great way to reduce the load, generally two years of detox is needed and you should feel much better. However there is deeply stored Hg as Mr Kite mentioned which is hard to get out. In general though...
  22. Michael Dessin

    My recovery story

    Not true, everyone with ME have mercury issues..heel spurs and dental issues are not links to this illness either
  23. Michael Dessin

    My recovery story

    Ian, take a good look at all of what Justy has said throughout this thread...Those are the facts about ME..again happy for your recovery but do not confuse your condition with the disease ME..CFS is a bullshit diagnosis for many conditions, unfortunatley ME gets lumped into that category, which...
  24. Michael Dessin

    HGH shots?

    @Neilk..Thank You...Really the important thing is to understand that our bodies function differently the normal people...so supplements that are supposed to be good for the general population can have adverse affect on us.
  25. Michael Dessin

    HGH shots?

    Nielk....Yes I do have experience...I was advised not to take it until my immune function was corrected...I then took it for several months to help heal damage sustained when sick...as well as gain muscle mass back.
  26. Michael Dessin

    HGH shots?

    HGH shots are great for the healing process once the immune system is functioning properly..not advisable to do before hand.
  27. Michael Dessin

    My recovery story

    I agree with Wayne, Hip and alot in these posts...I was extremely close to being on that memorial list...I've felt the worst of what this disease can throw at a human being but luckily survived. Coming from the point I was at, I feel truly blessed to even be able to have this conversation...