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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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    Memo to NICE re: CG53 revision - Margaret Williams - 31st August 2010

    Permission to Repost http://www.meactionuk.org.uk/Memo-to-NICE.htm Memo to NICE re: CG53 revision Margaret Williams 29th August 2010 In addition to Professor Hoopers formal complaint to the Medical Research Council (MRC) about the PACE Trial on ME/CFS, there is the related...
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    Scottish CMO: "Looking for XMRV is not a worthwhile exercise"

    "The Scottish CMO is but a fart in the breeze, along with the entire UK based fartfest, they smell bad but it will pass." "Everything in your post has been discussed here with great intelligence and insight." How do these two sentences have anything in common?
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    Scottish CMO: "Looking for XMRV is not a worthwhile exercise"

    Hi there, I didn't realise that people here do not really seem to be aware of what's going on in the UK. At this time the official position of the UK and Scottish Governments is one of being "in denial" of XMRV. There was a study published in PLoS ONE by Imperial back in January but...
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    Scottish CMO: "Looking for XMRV is not a worthwhile exercise"

    The Scottish Chief Medical Officer's views on XMRV Quote from the Scottish Chief Medical Officer - Harry Burns.... "looking for XMRV DNA in patients with CFS is not a worthwhile exercise" http://www.meactionuk.org.uk/Scottish-CMO-Letter-February-2010.htm Details of Dr Harry Burns can...
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    PRESS RELEASE - Magical Medicine: How to make a disease disappear

    Hi there, People from my group are contacting newspapers but the more that do so the more chance there will be of the newspapers taking notice. Also, if you think this document would be interesting to anyone you know then let them know :o) If you know any groups who might want to host...
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    PRESS RELEASE - Magical Medicine: How to make a disease disappear

    Alternative download sites for Magical Medicine Please repost Magical Medicine: How to make a disease disappear From Professor Malcolm Hooper http://www.meactionuk.org.uk/magical-medicine.htm Alternative download links The file is in .pdf format and 6Mb and 442 pages long...
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    PRESS RELEASE - Magical Medicine: How to make a disease disappear

    MEActionUK PRESS RELEASE:- Professor Malcolm Hooper has today made a formal complaint to The Rt Hon The Lord Grayson and to the Medical Resarch Council about issues relating to the UK PACE Trial. The document below blows the lid on the techniques and tacttics used and it includes some...
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    UK letter to the Guardian newspaper re: Dr Crippen and XMRV - signatures

    Hello there, many thanks to everyone reading this who has added their support to our letter. So far we have over 250 signatures. Updates on the progress of our letter can be viewed here... http://www.meactionuk.org.uk/Guardian-Letter-Updates.htm
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    UK letter to the Guardian newspaper re: Dr Crippen and XMRV - signatures

    201 signatures and rising :o) Please see the letter on the web here .... http://www.meactionuk.org.uk/Guardian-Rusbridger-Final.htm ..... and scroll down to see the list of names. Thank you to everyone here for your support.
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    UK letter to the Guardian newspaper re: Dr Crippen and XMRV - signatures

    Thanks for your support Hi there, Just wanted to say "thank you" for supporting this. I started writing it last week and have had loads of support for it. People have offered useful information that I'd not had myself. So this letter is really a group effort. We hope to send the...
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    'Dr Crippen' & Lynn

    Hello there, As you may be aware I have been writing a letter of protest to Alan Rusbridger at The Guardian over the last few days. You can see the draft version of my letter here - http://www.meactionuk.org.uk/Guardian-Rusbridger-3rd-draft.htm And the previous draft was uploaded here -...