• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. Wayne

    My son has been sleeping 14 to 16 hrs a day

    Hi @Hope_eternal -- I haven't been keeping up with this thread, but your son's situation keeps coming up in my mind a lot. The reason being is I can't help but think it's "possible" most of your son's ME/CFS symptoms are a result of his IBS. Which makes me think that the following 20-minute...
  2. Wayne

    ME as a permenant damage to the central nervous system

    Hi @andyguitar -- Just ran across a video a few days ago about a clinic in Florida getting dramatic results successfully treating stroke victims. Made me wonder if any of this is applicable to ME/CFS brains. Looking into this further is high on my "to do" list. I think there's a good...
  3. Wayne

    Brain functional connectivity in people with ME/CFS

    Hi @Hufsamor -- I do usually alternate hands, going from one to the other as I make my way from the back of my head at the base to the forehead--four different locations altogether. I actually do two repetitions at the brainstem area, as I feel it's the area that needs the most attention. I...
  4. Wayne

    low dose hydrocortisone without impairing immune response

    Hi @godlovesatrier -- You may want to check out the following thread where Dr. Levy writes extensively about his Vitamin C/Hydrocortisone protocol that was so helpful for him and his recovery from COVID. Below the link is a snippet from his long article. Dr. Thomas Levy -- How COVID Helped Me...
  5. Wayne

    Brain functional connectivity in people with ME/CFS

    I actually do it every day (and have for years), usually 1-2x, depending on need. I will do it even more often if my system seems to be calling for it. I almost always notice a shift, but occasionally I don't. The shifts I experience range anywhere from subtle, to pretty profound, leaving me...
  6. Wayne

    Brain functional connectivity in people with ME/CFS

    The young woman in the following video has some interesting things to say about brain function, and demonstrates a simple technique that she says can improve brain function significantly within a matter of weeks. Balancing the Cortices Technique
  7. Wayne

    My Recovery From CFS (1): First Thing First

    Hi @jjxx -- Try not to feel too bad, the forces at play in the conventional medical field have been running long and deep for over a century and which for the most part, tolerates little dissent or exploration of the main theses of their paradigm, or of their money making apparatus. If you've...
  8. Wayne

    VAGUS NERVE STIMULATION

    Hi @lenora -- If you read about three paragraphs at this link starting with "Velma is a seventy-two...", it dramatically illustrates how some castor oil therapy alone successfully addressed a 23-year long history of intense intestinal discomfort following a surgery. It sounds like your friend...
  9. Wayne

    VAGUS NERVE STIMULATION

    Hey @junkcrap50 -- Any chance you could provide a link to an Amazon product that matches your description? Thanks! -- BTW, I always appreciate your interesting and informative posts.
  10. Wayne

    Methylene Blue -- The "Perfect Supplement" For ME/CFS (?)

    Hi @Strawberry -- I doubt that your disrupted sleep was a fluke, and likely the result of the "energizing" MB. It can do that, and for those of us with sensitive systems, only a very small amount is all it takes. That's why when I start literally anything new, I make sure to take it in the...
  11. Wayne

    Methylene Blue -- The "Perfect Supplement" For ME/CFS (?)

    The below is from their website. Seems pretty benign to me; wouldn't exactly call it making outrageous, unscientific claims. Defies Aging MB helps to slow aging by enhancing mitochondrial function and energy production. Its antioxidant properties help to protect cells from oxidative damage...
  12. Wayne

    Methylene Blue -- The "Perfect Supplement" For ME/CFS (?)

    Hi @forestglip -- Small amounts of MB (which is what I recommend for maintenance purposes) shouldn't cause a problem with staining. I posted a testimonial on the first page of this thread where one guy said 3 drops a day prevented him from getting recurring UTIs. So there's benefit to be had...
  13. Wayne

    Reoccurring chickenpox and shingles.

    Hi @lenora -- Your vivid descriptions of how miserable your recurring shingles episodes were for you is what reminds me to send along potential treatment for shingles when I run across them. The description in your above paragraph is actually very similar to an experience I had after taking a...
  14. Wayne

    Reoccurring chickenpox and shingles.

    Hi @lenora -- Just ran across some interesting information on a doctor who successfully uses ozone to treat shingles. The video starts where he begins talking about it. The Benefits of Ozone Therapy
  15. Wayne

    How to heal your endothelium….

    Hi @Garz -- Thanks for your excellent post, remarkably good information. I'd say I'm also about 70% recovered after functioning around 20-25% for decades. I had past Lyme and Bartonella diagnoses, and have done most of the Lyme treatment protocols out there (no antibiotics however, which I...
  16. Wayne

    Nicotine patch experiment

    Hi @godlovesatrier -- Do you believe the pulsatile tinnitus is from having COVID? I had long COVID for a year following infection about two years ago. The most LC persistent symptom was chronic vertigo being worse than normal. Whether or not it's a coincidence, this last symptom dissipated...
  17. Wayne

    Cumin (Cuminum cyminum): Possible PEM Blocker

    Hi @ilivewithcfs -- Makes sense to me. Could you fill us in on what brand works for you? -- Thanks!
  18. Wayne

    triglycerides Low?

    I don't think you need to be concerned about low readings. My triglycerides number is 66, and I'm extremely happy it's that low.
  19. Wayne

    My recovery story

    I'd be curious what those "health concerns" might be. I've always read that these kinds of treatments are very safe and efficacious. Perhaps there's concerns if it's not administered properly? Also, I would recommend you consider supplementing with Methylene Blue while you're working on this...
  20. Wayne

    Methylene Blue -- The "Perfect Supplement" For ME/CFS (?)

    I got the new MB product on Amazon "kit" in the mail today, and even though I haven't yet mixed water with the powder (1 gram of MB powder already in each of the 6 bottles), I have to say I'm incredibly impressed with this product. It just exudes quality, and includes everything needed to make...
  21. Wayne

    My recovery story

    Hi @Guwop2 -- Re: "any ligament is resorbed by the body, nothing special needs to be done about it". I sort of did a double take when I read the above. My first question was, "what if the ligament is infected?" And how does this dentist know that the ligament is resorbed?" Or that nothing...
  22. Wayne

    Methylene Blue -- The "Perfect Supplement" For ME/CFS (?)

    Hi @Katt, Thanks for your update. It seems like your experiences are similar to mine, in that it feels helpful for "getting through the day". Regarding your suggestion about getting a COA for any MB product, I just discovered what appears to be a new MB product on Amazon. I was impressed not...
  23. Wayne

    Substantial improvement with (strange) dietary adjustments

    Hi @Wonkmonk -- I'm finding your posts on diet and digestion interesting. I made a post 4-5 years ago about HBOT improving gastroparesis and various gut and digestive issues. Here's a LINK in case you're interested. Have you ever thought about "stretching" various parts of the spine and...
  24. Wayne

    Hawthorn berries helping a LOT with sleep

    Hi @Mary -- I've been meaning to mention that I recently started regularly using a hand held massager (similar to this one). I started using it because of some pain and stiffness in various parts of my body, especially my lower back. I discovered that when I use it all over my body for 5-10...
  25. Wayne

    Dr. Thomas Levy -- How COVID Helped Me Regain Good Health

    Hi @Judee -- I can't really say, as it's been so long since I did an initial trial with the expensive Livon. However, my wife muscles tests every supplement she takes, and she does fine with the Mercola Lipo. C. I take about 2-4 grams/daily of the Mercola Lipo C, but I also use bulk sodium...
  26. Wayne

    Daily episodes of blurry vision and pain around eyes

    Hi @Artemisia -- Sorry to hear about your vision problems, and hope you can find some way to improve things for yourself. -- I was in a situation years ago where my eyes started giving out on me. I would describe it as them becoming "extremely tired" after being on the computer for only a few...
  27. Wayne

    Why do people with depression like listening to sad music?

    I was in a store recently, and kind of stopped in my tracks when I heard a somewhat familiar song I had not heard in years. I felt pretty captivated by the song, and was able to find it on YouTube when I got home. The author of the of the song apparently wrote it when he was 19 years old...
  28. Wayne

    Low cholesterol

    Hi @Abou -- Did you ever find something that worked to fix your low cholesterol? I just watched a video that said eating large amounts of egg yolks is often recommended for people with genetics that result in too low cholesterol.
  29. Wayne

    Cumin (Cuminum cyminum): Possible PEM Blocker

    Hi @ilivewithcfs -- I can certainly relate to what you're saying, as it's happened to me what feels like countless times. I have a bit of different take on what this means however. Though it may seem that something has 'stopped working", I think it's possible that it was able to bring as much...
  30. Wayne

    Very noticeable improvements in brain fog using Dr Greg Russell-Jones's transdermal B12 oils (which provide a similar dose to B12 injections)

    Hi @godlovesatrier -- Have you considered Methylene Blue? This LINK will take you to the post with the following information. MB gives my brain a consistent "lift" every day. I've also found Huperzine A to be quite helpful. -- Best...