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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. I

    B-12 shot and sudden on set of extreme fatigue?

    When I first took a half dose drop of hydroxo-B12 it knocked me off my feet with immense fatigue. Over the course of the day it progressed to allover bone-deep pain that kept me from sleeping and near-nonstop watery diarrhoea. I thought I might need to go to the hospital, but I took a...
  2. I

    This really made me think

    Slowly losing my mind and personality has made me accept a different outlook on existence. Our own consciousness may act in dimensions and non-dimensions we can't even contemplate where we are now. The only thing I doubt the existence of is nothing...
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    Does anyone else take ages to heal from cuts'n'bruises?

    My wound healing has been getting worse and worse. My acne doesn't even heal any more, it simply becomes crystalised with the wound still underneath. I have been supplementing with a lot of zinc orally without taking any copper, and I think this may have made things worse. I tried applying...
  4. I

    Tired and sleeping in dreams

    I'm glad to know I'm not alone! I get the half-awake half-asleep thing with electric feelings on waking up sometimes also; I can get stuck coming and going for a couple of hours. Another weird one I had a while ago was managing to fall asleep with my eyes open. I could see my room clearly, but...
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    Tired and sleeping in dreams

    I pushed myself a bit too far over the weekend and an old 'symptom' came back to remind me. Not sure why I am posting this, perhaps because anywhere else I would sound crazy. I start to feel really exhausted within my dream, vividly physical and mental tiredness. This time it was as though I...
  6. I

    B2 I love you!

    Luckily B2 agrees with my gut. Manganese on the other hand churns up my intestine pretty bad. I even tried taking one ionic drop of 80mcg subliqngually and the portion I swallowed gave me soreness for a few days. It lead to eczema and joint pain when I tried bits of cut up tablets. I think I...
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    Methylb12 and adrenal fatigue?

    Taking hydroxo and particularly methyl B12 (Enzymatic brand) I started experiencing worse fatigue, sleeping more in the day and struggling to get back up, feeling woozy. Switching from Enzymatic to Jarrow seemed to make things slightly better, but I've since read Jarrow may now be weaker...
  8. I

    Alternative Ways of Administering High Dose Vitamin B12

    I have been trying B12 lozenges as suppositories, with some aloe vera gel to help it on its merry way. One day when I forgot to take one I did notice feeling worse, which seems promising. However, particularly after switching to Jarrow B12, I get quite a bit of pink mucous and sometimes...
  9. I

    UK: contact your MP! Commons attempt to debate Atos & 1,100 ESA claimant deaths

    Thanks. I will try this and spread the word. I think I fluffed my yearly reassessment on Wednesday. Dazed from waiting nearly two hours, the nurse kept putting words in my mouth :thumbdown:
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    Xeno/estrogens link to CFS/Fibromyalgia - Success!!

    Aromatase is the enzyme which synthesises oestrogen, and inhibitors act to block it somehow. I think aromatase inhibitor refers to drugs that reduce it, so maybe it isn't technically the same thing. I think it could be a good thing. I don't know how it applies to females or humans, since the...
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    Xeno/estrogens link to CFS/Fibromyalgia - Success!!

    I think I have a problem with oestrogen too... Unfortunately I would probably react to the soy in DIM. Though there doesn't seem to be much info about it, apparently K2 can be an aromatase inhibitor. One article cited this study: A calcium-deficient diet caused decreased bone mineral density...
  12. I

    Social Anxiety and M.E / CFIDS Has anyone had similar problems?

    Just wanted to say that I'm so grateful for this discussion... When I see other posters mention socialising I feel like I am the only one who struggles with it. Although my CFS is more recent, I became very unwell on antidepressants as a child and into my late teens. It's left me pretty stunted...
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    Simplified Methylation Protocol Revised as of Today

    This should probably be obvious but... How do you folk deal with salivation and the urge to swallow when you take a drop? Sometimes I feel like I accidentally swallow it, or I allow saliva to build up too fast and have to hold on to a mouthful of it. And also, in those who respond badly to...
  14. I

    Cured Myself After 4 Years of CFS

    I describe myself as having chronic fatigue, I just like the sound rather than saying CFS. I fell a criterion short of the Consensus last time I checked, but this is the only forum that comes anywhere close...
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    CONFIRMED FOLATE DEFICIENCIES - PLEASE POST HERE

    Thanks Freddd. I will be glad if I don't have vegetable folate problems. I thought it might be B12 deficiency after another member suggested it, but methylfolate seems to be the only supplement I've tried that stops the symptoms. The same dose of hycbl without the folinic didn't cause any...
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    CONFIRMED FOLATE DEFICIENCIES - PLEASE POST HERE

    12mg+ methylfolate for folinic intolerant people sounds expensive... How much difference does a low veggie-folate diet make? Also, is all veggie folate the same? I figure I will just find a list of high-folate vegetables and avoid them as much as possible. - Thought I would share my experience...
  17. I

    where can i get my blood drawn privately in the UK - locally if possible

    Supposedly Boots will draw blood at some of their stores, but I doubt they could centrifuge or freeze. In the past have dropped in at a local private hospital ran by Nuffield Health, and they have centrifuged a plasma test for me before. It costs something like £25; I don't think they charged...
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    Rough start on SMP, suspecting folate issues

    Thanks, nanonug. I never thought it could be too little B12. I think to start off I will still avoid the folinic supplement just in case, then I might experiment with it again once I'm up and running.
  19. I

    Rough start on SMP, suspecting folate issues

    I have bolded my main questions at the bottom, those and the thread title are the main purpose of this post. Sorry, I'm not good at being concise! :Retro redface: I had quite a strong reaction when I tried hycbl yesterday. I took one drop and within 30 minutes felt like my gut was reacting to...
  20. I

    Shipping Supplements from U.S to U.K

    :headache: I should have checked this thread earlier because I just made two orders for around 17. I think I might still be able to cancel one of them. Thanks for the warning, I probably wouldn't have found out it had been lowered otherwise.
  21. I

    Shipping Supplements from U.S to U.K

    I always thought anything below 18 wasn't subject to duty? Perhaps I am just very lucky, but all my shipments under 18 come straight through. Gives me a bit more leeway. Come to think of it my hydroxy-B12 came through also, I didn't check what they marked it as. Which retailers will ship as a...
  22. I

    Has vitamin K-2 (mk-4 or mk7) helped you ?

    I started taking 5mg MK4 after I demineralised my front teeth experimenting with oral hygiene... The only noticeable thing for me was the skin on my face seemed to shed really fast for a couple of days after I started. I had sometimes taken it alongside vitamin E, so I will definitely stop that...
  23. I

    My understanding of treating adrenal fatigue

    A few years back after getting off SSRIs I tried to jump straight back into life and ran into all the"adrenal fatigue" symptoms (Uncontrolable shaking, bursting out in sweat and the room spinning if I became slightly stressed, also took me hours to become conscious enough to get out of bed)...
  24. I

    Feedback request: Gastrointestinal function, Triad (Organic, fatty and amino acids)

    I can't remember exactly, but I can specifically remember pain in the lower right corner of my abdomen. Sorry, I keep missing out details I did go to the doctor about this a couple of years back and got referred for a colonoscopy. They found lymphocytic colitis, but said it wasn't causing my...
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    Feedback request: Gastrointestinal function, Triad (Organic, fatty and amino acids)

    Wow, thank you for the detailed responses! My thyroid results are as follows: TSH 0.872 mIU/L (0.4-4.0) Total T4 116 (58-154) Free T4 15.4 (10-22) Free T3 5.15 (2.8-6.5) FT4:FT3 Ration 3.0 (2.0-4.5) Reverse T3 0.48 (0.14-0.54) Thyroglobulin <20 Peroxidase <10 I was diagnosed as coeliac with a...
  26. I

    Feedback request: Gastrointestinal function, Triad (Organic, fatty and amino acids)

    Hi, These tests are quite out of date now, probably coming up 9 months. I was putting all my faith in my doctor, but I just can't afford it any more. Sorry the PDFs are a bit big, all the scanning and PDFing has fried my brain! I've had to upload the main Triad test here...