• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. Vicariousdancing

    Tips for Finding Reliable Prescription-Free Online Pharmacies

    Sorry to comment on an ancient thread. Please let me know if there’s a newer one. Several of these pharmacies (goldpharma was recommended to me by several people) are now asking for ID to prove age. This seems like a great way to get an identity stolen. Any thoughts on this? Has anyone given...
  2. Vicariousdancing

    Current fav MCAS med: Phenibut

    Does anyone have any preferred sources of Phenibut? I’ve been curious for a while...
  3. Vicariousdancing

    Physicians diss SEID/CFS/ME on Reddit

    I'm just going to leave this here. http://np.reddit.com/r/medicine/comments/2wncib/chronic_fatigue_syndrome_is_now_to_be_called/ Be careful what you post. We don't want to be "emotional," just good, hard facts. and citations.
  4. Vicariousdancing

    Does anyone else have ME and MS????

    I am sitting in the hospital right now newly diagnosed with MS. I've had ME 12 years. 2 years ago my MRIs were clear and now they are not. I know some ME patients have lesions. My doctors here are not ME literate. Has anyone else been diagnosed with MS? or misdiagnosed? how do you tell an MS...
  5. Vicariousdancing

    P2P workshop for ME/CFS Dec 9th and 10th 2014

    Also, there are tweetstorm protests every Saturday from 7pm-8pm EDT, 4-5pm Pacific. http://theothersideofthestretcher.wordpress.com/weekly-stopp2p4me-tweetstorms/ I'd argue for taking the tack that we're trying to educate ignorant people, rather than chastise negligent people. (Regardless of...
  6. Vicariousdancing

    NIH asks for public input into ME/CFS literature search by July 17th

    The NIH is doing a literature search on ME/CFS in preparation for P2P. (See more about P2P here http://forums.phoenixrising.me/index.php?threads/p2p-workshop-for-me-cfs-dec-9th-and-10th-2014.30990/#post-474590) If we can't get P2P cancelled, it would be good if they had good information. So I...