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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. R

    My CFS Bug

    Thank you Sushi, but I should admit I'm not such a stranger to these parts. I was thinking anonymity was the way to go in case I end up posting pictures somewhere. This might be the only way to interest a good researcher. If anybody knows a capable ME/CFS researcher like Dr. Klimas, Dr...
  2. R

    My CFS Bug

    Hi Enid, These spots are the size of a droplet and only appear when I sensitize to something and have a reaction. It only takes a couple hours for my inflammation and spots to appear. If you have a food or something you are intolerant to, test it out.
  3. R

    My CFS Bug

    Hi Maryb, Yes I'm familiar with Dr Klinghardt's work and the thinking on scars. I think they're energetically compromised and more susceptible to infection. I've a friend who had rhinoplasty and is now suffering with almost constant sinus infections. I think it's pretty much a fluke that...
  4. R

    My CFS Bug

    I'm a PWC of many years with a fairly typical presentation. The one really unique symptom I have is an old scar on my penis that becomes inflamed when I'm exposed to anything I'm intolerant to. Normally there's a baseline of inflammation, but when I eat something I'm intolerant to, or am...