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Search results

  1. S

    Detection of Mycotoxins in Patients with CFS

    Will they be making their products available to patients outside of Brewer's practice?
  2. S

    Detection of Mycotoxins in Patients with CFS

    Does TAG also have the chelating agent? I have a bottle of unused Nystatin powder, but the chelating agent I had expired. Good do know about the capsule option for CSM. I've been taking the cellulose powder from Woodland.
  3. S

    Detection of Mycotoxins in Patients with CFS

    Has anyone considered using nasal probiotics? This website has info about people that have put kim chi juice up their nose and significantly improved their sinusitis. Sounds wacky, but there is actually research to support the concept. Susan Lynch at UCSF discovered that people with chronic...
  4. S

    Detection of Mycotoxins in Patients with CFS

    I'm on board with 1 & 3. #2 is more challenging for me given my skepticism about the tests and the entire theory, but if I am seeing noticeable progress (even if very slow) committing for 1.5-2 years is nothing. I've been sick for a lot longer than that. #4 is an issue right now.I recently...
  5. S

    Detection of Mycotoxins in Patients with CFS

    What are people planning to do now that ASL is out of business? Nystatin capsules are easy to obtain, but what about the chelating agent and NasaTouch?
  6. S

    Detection of Mycotoxins in Patients with CFS

    That idea is still controversial. Later research showed that just as many controls had fungal colonization of their sinuses as people with sinusitis. Susan Lynch's work at UCSF found that both controls and people with sinusitis have staph colonization, but the people with sinusitis have lower...
  7. S

    Detection of Mycotoxins in Patients with CFS

    Just checked back on this thread. It seems that Ifish and is family are the only ones here that have experienced noticeable/significant improvement on the protocol. Is that correct? I purchases a Sunlighten sauna and have been using it every other day for 40 minutes each time. I don't notice...
  8. S

    Detection of Mycotoxins in Patients with CFS

    Here's a little update FWIW. Despite continued misgivings about the RTL test, and the journals that the Hooper and Brewer studies have been published in (see this write-up for more on that), I'm going to start the Nystatin nasal treatment in a few days. Previously I did the ampho-B treatment...
  9. S

    Detection of Mycotoxins in Patients with CFS

    Roxanne, I developed horrific sinus inflammation and eventually even lost my sense of smell entirely (which had never happened to me). I felt extremely fatigued, body aches, couldn't sleep, had terrible post-nasal drip, and couldn't think straight. I don't know whether it was a flare-up of...
  10. S

    Detection of Mycotoxins in Patients with CFS

    According to the papers I've seen, the levels of mycotoxin that RTL is detecting are right in line with what has been detected in urine from exposure to mold in food. I will need to dig up the studies to give specific examples, but I remember this pretty clearly. For me, at least, the treatment...
  11. S

    Detection of Mycotoxins in Patients with CFS

    Losing investor money is not a crime, nor is making money on a legitimate enterprise. My concern after reading the article was about Hooper's integrity. Integrity is crucial in science because there are all sorts of ways that data and results can be manipulated before they even appear in a...
  12. S

    Detection of Mycotoxins in Patients with CFS

    Another reason I am mistrustful of this lab. Why does the original test cost $800 if they can do a retest for $150 (now $180)? What is so different about the re-test? As far as I can tell, it's identical.
  13. S

    Detection of Mycotoxins in Patients with CFS

    I am finding it difficult to get past this. After reading the LA Times article on Hooper, and considering the fact that RTL's methodology has never been published or peer-reviewed, as well as the research which clearly shows that mycotoxins from food show up in the urine, it is just hard for me...
  14. S

    Detection of Mycotoxins in Patients with CFS

    Another update. I have a full-blown sinus infection, which is extremely rare for me. Don't think that has happened in 15+ years. My theory is that I caught a virus from my daughter, but the ampho B spray was causing so much inflammation that I developed a sinus infection as a result. I've long...
  15. S

    Detection of Mycotoxins in Patients with CFS

    Skiii, glad to hear your sinuses have finally cleared. The last week has been one of the hardest of my life. I had a cold/flu that I caught from my daughter when I first started the ampho B treatment about 3 weeks ago. I did the treatment for 2 weeks, taking both the chelator and ampho B twice a...
  16. S

    Detection of Mycotoxins in Patients with CFS

    I'm now four days off of the ampho B and I'm very slowly starting to recover. I actually lost all sense of smell for a few days (only now getting a hint back), I think because the sinus inflammation got so bad. That had never happened to me before. The reason I'm cautiously optimistic about...
  17. S

    Detection of Mycotoxins in Patients with CFS

    How do you know if it has become an infection? I guess an ENT has to determine that? The nasal swab that detected it didn't say whether it was an infection; it just said that it's there. I'm so reluctant to take long-term antibiotics, even in a lower dose, because of the history of gut issues...
  18. S

    Detection of Mycotoxins in Patients with CFS

    Thanks lfish. I'm not really trying to combine the Shoemaker approach with Brewer's treatment at this point, more just reporting on what I've done. I was also using Shoemaker's explanation of ERMI and HERTSMI-2 interpretation because that's the only one I'm aware of, and I haven't heard Brewer...
  19. S

    Detection of Mycotoxins in Patients with CFS

    Thanks Skiii and detts. I was not taking the BEG spray at the same time as the ampho B + chelating agent. Timing was as follows: — August: first RTL test. OTA = 0. AT = 0. MT = 0.38 — October: BEG spray; I also re-tested C4a in the middle of the BEG spray/CSM treatment, and it had gone up to...
  20. S

    Detection of Mycotoxins in Patients with CFS

    Hi everyone, I found this thread a couple of hours ago while searching for more information on the Brewer protocol, and I just finished reading all 45 pages. Whew! Very long story as short as possible. Been sick for about 16 years. Started while traveling in Asia, never been the same since...
  21. S

    Best forum for Lyme?

    I've suspected Lyme for many years, but my test results have been equivocal (borderline positive IgenX, low CD-57 count but negative on other tests). I decided to do the new Lyme culture assay from Advanced Labs, and I got the results this morning: positive. I made an appointment with a LLMD...
  22. S

    Recommended testing for methylation block?

    Great, I just ordered all 3 of their books. Will watch the video and the slides as soon as I'm able. Thanks again!
  23. S

    Recommended testing for methylation block?

    Sorry, I forgot to mention that I work in a somewhat unique way with a particular patient population. I begin with a case review, which includes a fairly comprehensive blood panel with markers for blood sugar, oxygen deliverability, metabolic/immune function, iron status, etc. It includes...
  24. S

    Recommended testing for methylation block?

    Rich, Thanks so much for the comprehensive rundown. I've seen your document on interpreting the methylation panel, which is very helpful. I already have an account with Metametrix and use them for stool testing, so I will look into their other profiles that you mentioned. I've been...
  25. S

    Recommended testing for methylation block?

    Hi Fredd, I'm a clinician, so I'm interested in testing for my patients.
  26. S

    Recommended testing for methylation block?

    I'm wondering what the current consensus is on the best testing to identify a methylation block (and thus determine who might benefit from the protocols discussed here). From what I gathered from searching the archives, the two recommended tests are the Genova Diagnostics Metabolic Analysis...
  27. S

    B12/methylation research bibliography?

    Thank you, Fredd. I will check out the thread on the wrongdiagnosis site. I appreciate all of the hard work you've done on this.
  28. S

    B12/methylation research bibliography?

    Thank you, Rich. I've seen both protocols and there appear to be significant differences. I've read some of the discussion about those differences as well. I will probably end up trying both protocols with my patients, depending on their presentation. (Incidentally, I noticed you did the...
  29. S

    B12/methylation research bibliography?

    I recently discovered this forum, and I'm so grateful for the depth of investigation happening here. I'm a clinician and I regularly screen for B12 deficiency using serum B12, urinary MMA and homocysteine (as well as a CBC). Not surprisingly, I frequently discover deficiencies. Until recently...